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Action Kidney Cancer @ACTION4KC

Patients first & foremost: the only UK patient led, patient managed kidney cancer charity; supporting patients, carers and their families since 2006

Joined July 2015
  • Tweets 2,178
  • Following 1,705
  • Followers 1,376
672 Photos and videos
Join us at the @IKCCorg Global Symposium. This is a great opportunity to join the conversation with patients, carers and health professionals about the emotional wellbeing challenges of living with #kidneycancer how to manage them and get support. actionkidneycancer.org/get-i…
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This years @IKCCorg #WKCD2026 is focusing on Emotional Wellbeing, they have provided us with an Emotional Well Being Check-in if you would like to take this and find out how to be involved on the day, please follow the link below: actionkidneycancer.org/get-i… #kidneycancer
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A big thank you to Karmen and Karolina who completed the Edinburgh Half Marathon to raise awareness in their home country of Sweden and to raise funds for us. Thank you to friends and family who contributed generously to their fundraising. Read more: gofundme.com/f/action-kidney…
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Well done Cara for completing two marathons in a month, we think you are amazing! Cara completed the London Marathon and Edinburgh Marathon to mark the 10 year anniversary in memory of her beloved dad David. Please read more about Cara: justgiving.com/page/cara-hop… #kidneycancer
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We are delighted to be part of the #Bigcancerconverstaion in Manchester today and to be working with @Cancer52org on this important work. #kidneycancer #Strongertogether
Cancer52 also on Bluesky @cancer52org.bsky.social@Cancer52org
Mar 16
Today we’re hosting the #BigCancer52Conversation in Manchester focusing on how we can work together to support implementation of the National Cancer Plan, in relation to rare and less common cancers.
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Our colleague Steve Pointon attended the EAU conference in London. He joined a panel who discussed the importance of shared decision making for patients. The panel included top professionals in #kidneycancer We contributed by ensuring they understood the patient perspective.
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C is for Cancer podcasts We appreciate podcasts are a popular way people learn and find reliable information. To help we have identified and added some to the Help and support area of our website. actionkidneycancer.org/.../p… #kidneycancer #bypatientsforpatients #StrongerTogether
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Final results from the COSMIC-313 study have been published. A triple combination as a first treatment for advanced #kidneycancer helped people by keeping their cancer under control for longer compared to just the two immunotherapy drugs. Find out more: actionkidneycancer.org/caboz…
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Our latest Ask the expert video explains how immunotherapy works and explores why immunotherapy can be effective for some people with #kidneycancer, but cause severe side effects or fail to work in others. To watch the video: actionkidneycancer.org/help-… #StrongerTogether
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Last week the Government published the National Cancer Plan for England. We welcome the plan and are committed to working together to ensure it delivers for people affected by cancer. #kidneycancer #OneCancerVoice #bypatientsforpatients #StrongerTogether
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The new National Cancer Plan for England,has a particular focus on rare and less common cancers like #kidneycancer We welcome the plan’s specific commitments to improve diagnosis, focus on research, and improve access to specialist care. To read more: actionkidneycancer.org/new-n…
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World Cancer Day theme this year is United by Unique. We know this through the people we have helped, supported and made friends with along the way. Please follow the link to read their individual stories. actionkidneycancer.org/help-…... #UnitedByUnique #StrongerTogether
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The National Cancer Patient Experience Survey is now open for people who have recently been treated for cancer in England. For more information and to complete the survey: actionkidneycancer.org/natio…
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Warm wishes for the festive season to all of the patients and families whose lives we have touched and those we have yet to meet, our fundraisers, supporters and everyone we have worked with throughout the year. If you need help/support: actionkidneycancer.org/ #kidneycancer
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A new approach to diagnosing #kidneycancer, called the Cambridge kidney One-Stop Mass Investigation Clinic, was trialled at Addenbrooke’s Hospital in Cambridge halving the time from biopsy to treatment decision. Read more about the trial here: actionkidneycancer.org/cambr…
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There is still time to order one of our timeless glass hearts, green ribbon pins or one of our charity wristbands, as a gesture to family and friends who have helped make a difference. To find out more: actionkidneycancer.org/.../g… #kidneycancer #bypatientsforpatients
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Smoking is one of the risk factors for the development of many cancers including #kidneycancer The NHS is launching a Quit smoking campaign this New Year, including an app with a free personal quit plan to help people make healthier choices. Read more: actionkidneycancer.org/quit-…
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Is there someone special in your life you would like to show your appreciation to? Our glass hearts are a great way to do this, it could not be easier, to find out how to do this, please follow the link below: actionkidneycancer.org/get-i…
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(ESMO) has published a patient guide on immune-related side effects and their management. This will help families affected by kidney cancer better understand immunotherapy-related side effects and management. To find out more: actionkidneycancer.org/patie…
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Please save the date for our annual Northern Soul and Motown Charity All Day event on Sunday 10 August in Crewe for a full day of great music and dancing organised by the Pointon family. For info: actionkidneycancer.org/event… #kidneycancer #bypatientsforpatients #StrongerTogether
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