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ALS Assoc. Indiana @ALSAIndiana

To discover treatments and a cure for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest.

Joined October 2011
  • Tweets 2,223
  • Following 131
  • Followers 1,125
473 Photos and videos
Join ALSA Indiana for the upcoming Powerful Tools for Caregivers course! The first class is February 8th at 1pm EST via Zoom. To register, please contact Chelsea Richards at chelsea.richards@als.org or 317-767-1407. Can’t wait to see you there! #ALS #caregiver #selfcare
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#ALS can cause people to have difficulty breathing and keeping their airways clear. Here are 3 of the essentials for maintaining airway clearance in individuals with ALS 👇 🔺 Protect the airway from aspirating 🔺 Maintain adequate cough 🔺 Measuring airway clearance ability
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For more information about how to manage breathing for individuals with ALS, check out our seminar here ➡️ fb.watch/hBze_4P6Bp/ #ALS #whateverittakes #ItTakesAllofUs #healthcare #respiratory #airway
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ICYMI: In October, a man from Indianapolis biked 100 miles to raise money and awareness about Hoosiers living with #ALS. Learn more about his incredible journey and how his #fundraising efforts changed the lives of folks living with ALS 👉 wthr.com/article/news/local/… #ItTakesAllofUs
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For many, #driving is a necessity for maintaining independence and financial security. Unfortunately, diseases like #ALS can affect a person’s ability to safely operate a vehicle. Check out our article for more info ➡️ als.org/navigating-als/resou… #ItTakesAllofUs #disability
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We have a lot of great things planned for this year! We can’t wait to connect as a community and work together to support those living with ALS and fund #research to cure #ALS! Keep up to date with our calendar here: webin.alsa.org/site/PageNavi… #ItTakesAllofUs #ALSwalk
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There are several therapy options to support #respiratory and ventilation functions for folks living with #ALS, include ⬇️ 🔹 BiPAP 🔹 Bi-Level 🔹 Non-invasive ventilation 🔹 Tracheostomy 🔹 Portable ventilator 🔹 Multi-Function ventilator More info ➡️ fb.watch/hBze_4P6Bp/
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If you’re a caregiver to someone living with ALS, consider checking out our #Caregiver Education Course! Learn how to #support the specialized needs of people living with #ALS and develop greater confidence in your caregiver responsibilities. Enroll here: als.org/navigating-als/for-c…
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Many patients are concerned about the high annual cost of #Relyvrio, a new drug that can help slow the progression of #ALS. Learn more about how patients are navigating the healthcare system to access this critical #medication 👉 fortune.com/2022/12/18/als-p… #ItTakesAllofUs #medical
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If you or your family are in need of #medicalequipment, check out our equipment loan closet! We can offer donated and durable medical equipment to families in need. For more info, contact us at connie@alsindiana.org. #ALS #whateverittakes #ItTakesAllofUs #donations
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The Lawrence and Isabel Barnett Drug Development Program is an exciting funding source that allows us to fund ALS-related research projects for preclinical trials. Read more ➡️ web.alsa.org/site/PageNaviga… #ALS #whateverittakes #ItTakesAllofUs #STEM #scienceresearch #sciencefunding
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What age does ALS start? 🤔 Most people who develop ALS are between the ages of 40 and 70, with 55 being the average age of diagnosis. Learn more here ➡️ als.org/understanding-als/wh… #ALS #whateverittakes #ItTakesAllofUs #genetictesting #ALSquestions
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If you’re seeking guidance on your journey with #ALS - or information to help care for someone with ALS - consider joining one of our local support groups! ❤️ Join today 👉 webin.alsa.org/site/PageServ… #whateverittakes #ItTakesAllofUs #PALS #caretakers #supportgroup #mentalhealth
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While #ALS can be genetically passed down, about 90-95% of ALS cases occur in individuals with no family history of ALS. For some individuals, ALS is caused by a gene mutation that can be passed down genetically or occur sporadically. #whateverittakes #ItTakesAllofUs
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Check out this blog for more information about the genetics of ALS and if you or your family is at risk of ALS ➡️ als.org/research/research-we… #genetictesting #ALSquestions
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Looking for some fun, wheelchair-accessible destinations across Indianapolis? Check out this list from accessibleGO for a list of fun, ALS-friendly activities 👉 accessiblego.com/articles/To… #ALS #whateverittakes #accessible #accessibility #wheelchair
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The US department of #Veteran Affairs has approved to cover RELYVRIO, the new drug recently approved by the FDA to treat ALS. #Veterans living with #ALS will now have access to RELYVRIO through their VA benefits. Read more here ➡️ als.org/stories-news/va-appr… #whateverittakes
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Early #symptoms of ALS can look different for everyone. Here are a few of the common early signs of ALS 👇 ✳️ Muscle weakness ✳️ Fine motor issues ✳️ Change in vocal pitch ✳️ Difficulty swallowing Learn more here 👉 als.org/understanding-als/sy… #ALS whateverittakes #ItTakesAllofUs
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Your donations help us fund critical research to find a cure for ALS and support those living with ALS across Indiana. Consider making an end of year donation today ➡️ webin.alsa.org/site/PageNavi… #ALS #whateverittakes #ItTakesAllofUs #research #medicalresearch
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The money raised in 2014 and beyond during the #IceBucketChallenge brought us AMX0035, an effective #ALS treatment. This drug has been FDA approved, but now what? Medicare and private insurance companies will need to determine what they will cover before it is available.
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Learn more 👉 als.org/blog/amx0035-approve… #whateverittakes #ItTakesAllofUs
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