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ALS Connections @ALSConnections

ALS Connections aggregates info, resources, & video related to #ALS Amyotrophic Lateral Sclerosis/#MND Motor Neuron Disease. Tweets by @mcb1219 & @cswhitlatch

Joined June 2012
  • Tweets 1,249
  • Following 1,078
  • Followers 1,081
Photos and videos
Ancient Virus May Cause Crippling Disease ALS, Study Finds ow.ly/SWq6P
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Debate still flaring: A Dispute Flares Over Data for a Nascent ALS Drug and an FDA Review ow.ly/LVbyA

A Dispute Flares Over Data for a Nascent ALS Drug and an FDA Review

Over the past few weeks, a nascent drug for treating ALS, which is also known as Lou Gehrig’s disease, has become the latest example of the epic struggle over access to treatments for fatal illnesses.

wsj.com
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The push for an ALS drug, and why the FDA has such a tough job ow.ly/LrPmN
Help Wayne Bender battle #ALS with communications technology and breathing assistance ow.ly/LoaxN via @bryanbender
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Laura Somerville Woodall encouraged offers of help to her be redirected to others ow.ly/LfWaq

A Davidson woman’s spirit lives on in foundation’s efforts

Laura Somerville Woodall died in February after battling ALS for nine years, but had become the inspiration for A Giving Spirit Foundation that helps others fighting the disease.

charlotteobserver.com
Interesting follow up to Washington Post story: Money angle is missing from Post’s coverage of a new ALS drug ow.ly/LfVoz
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ALS Connections retweeted
TEISSIER@philippe1949
4 Apr 2015
Replying to @ALSConnections
@ALSConnections @KimBulgarelli think priority is to hurry up !!!!
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Molecular pathway that suppress tumors appears to clear damaged proteins in neurodegenerative diseases #ALS ow.ly/LaRcf
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Washington Post expertly lays out both sides of the GM604 debate. Thoughts? ow.ly/LaQKX

ALS patients press FDA for quick access to controversial biotech drug

The agency should balance “hope and hard science,” some patients say, but others urge caution.

washingtonpost.com
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Link between Inflammation and ALS Established ow.ly/L2I3t
FDA Grants Orphan Drug Status to AB Science’s Masitinib Drug For ALS ow.ly/L2HMf
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ALS Connections retweeted
OFFICIAL ACCOUNT
@lesleycrack
31 Mar 2015
The Living with #ALS Daily is out! paper.li/chapin4u/als?editio… Stories via @ALSAlabama @MNDVic @ALSConnections
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KTH Royal Institute of Technology Reveals 3 Proteins Associated with ALS Progression ow.ly/KYLhU
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Senate passes Steve Gleason Act of 2015, added as budget amendment ow.ly/KYKUZ

Senate passes Steve Gleason Act of 2015, added as budget amendment

The Senate Thursday passed a budget amendment to help patients diagnosed with diseases, such as amyotrophic lateral sclerosis.

wdsu.com
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ALS Connections retweeted
Grasshopper12@Lemonroadz
29 Mar 2015
Replying to @ALSConnections
@ALSConnections #Please #sign and #rt petition for expanded access of #all #ALS #treatments and #drugs click change.org/p/expanded-access… #endALS
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ALS Connections retweeted
Kerri@kerrifulginiti
28 Mar 2015
Replying to @ALSConnections
@ALSConnections Proud of Change.org petition. Now petitioning White House wh.gov/iWMcT Spread the Word. #FDAHope4ALS
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Nearly 500,000 people have signed a petition to get FDA approval of potentially life-saving drug for #ALS patients ow.ly/KTmpH

Thousands Sign Petition for ALS Drug

Nearly 500,000 people have signed a petition to get FDA approval of a potentially life-saving drug for patients with ALS or Lou Gehrig’s disease.

nbcwashington.com
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Neil's final chapter - filmed 2 weeks ago is an intimate look at love and the heroic actions of a caregiver #ALS ow.ly/KTm2K

Neil's final chapter

Our final interview with Neil and Suzanne Alexander, shot just two weeks before Neil succumbed to the ravaging effects of ALS, Lou Gehrig's Disease, proves how a local couple's love story was made...

wtae.com
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FDA grants orphan drug status to Treeway's ALS treatment ow.ly/KNzuY

FDA grants orphan drug status to Treeway's ALS treatment - PMLiVE

Amyotrophic Lateral Sclerosis drug TW001 gainsregulatory benefits

pmlive.com
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With great sadness we announce the passing of ALS Advocate Neil Alexander, founder, of @LiveLikeLou4 ow.ly/KKgHE
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