Our aims are to raise issues affecting people with Down syndrome, promote equality, campaign for equal access & highlight the innate worth of people with DS.
Joined January 2021
- Tweets 270
- Following 1,201
- Followers 951
- Likes 285
84 Photos and videos
APPG for Down Syndrome retweeted
😍😍😍
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APPG for Down Syndrome retweeted
Wonderful seeing Portsmouth DSA’s Lizzie on @itvnews! 🌟A successful apprenticeship proving that people with Down syndrome & LD can thrive in the workplace benefiting the whole community. Well done, Lizzie!
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APPG for Down Syndrome retweeted
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APPG for Down Syndrome retweeted
Feb 16
It's been FOUR years since parliament passed the Down Syndrome Act, backed by the government and all mainstream parties.
But it has STILL not been implemented
The law is so vital for the 50,000 people in the UK with Down Syndrome:
thetimes.com/uk/politics/art…
@LiamFox @kenross2011
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We are looking forward to meeting with @zubirahmed to discuss the #DownSyndromeAct Guidance
Four years after Down’s syndrome law, nothing has changed thetimes.com/uk/politics/art…
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APPG for Down Syndrome retweeted
📣GREAT NEWS!📣
The deadline for responding to the Down Syndrome Act draft guidance consultation has been extended to 30th March 2026!! 🙌🏼
#DownSyndromeAct
#InclusionMatters
#DownSyndrome
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APPG for Down Syndrome retweeted
We’re thrilled to announce that the draft Guidance for the Down Syndrome Act has officially been published!
This is an important step forward for our community. The consultation runs until 28th January 2026, and we’ll soon share how you can take part and make a difference.
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APPG for Down Syndrome retweeted
“The Bill presumes the best instead of legislating for the worst.” When we already know that disabled people face serious healthcare inequalities, overlooking these real risks would leave vulnerable people even more exposed under an #AssistedDyingBill.”
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APPG for Down Syndrome retweeted
Powerful words from @TommyJessop, who joined the @APPGDS to speak out on the urgent need for stronger safeguards in the #AssistedDyingBill. Reading his letter to the @UKHouseofLords, he made it clear: we are #NotCollateralDamage Read Tommy’s letter here: shorturl.at/fh5sr
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APPG for Down Syndrome retweeted
Full agenda at today’s @APPGDS AGM. Discussions incl. safeguarding concerns in #AssistedDyingBill, Post-16 transport loophole & updates on DS Act Guidance. Great to welcome NDSPG Advisory Group members from across UK to share their reports & insights. @LeeBarronMP @S_A_Russell
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APPG for Down Syndrome retweeted
Ahead of the 2nd Reading in @UKHouseOfLords, #NDSPG Patron & Actor @TommyJessop has launched our #AssistedDyingBill campaign with a powerful letter raising concerns about the bill’s lack of robust safeguards. Read his letter here shorturl.at/oUPNK @DavidAltonHL @zatzi
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4 Jun 2025
Thank you Minister @SKinnock @DHSCgovuk for working with the @APPGDS & @NDSPolicyGroup to ensure the #DownSyndromeActGuidance is meaningful, robust & will improve outcomes for all. Reassuring timelines are confirmed for public consultation.
@DamianHinds @garrettflo
#andrewcooper
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3 Jun 2025
Thank you to contributors, guests and members for participating in today’s APPG for Down Syndrome. Details of topics below ⬇️
@garrettflo
@DamianHinds @grahamstuart @CIDDRG @LiamFox @LeeBarronMP @jackabbott90 @jackmrankin @JimShannonMP
@MoncktonR @LeeAndersonMP_
A packed agenda incl. delays & ongoing issues with the #DownSyndromeAct guidance, the #AssistedDyingBill, & reported changes to EHCP eligibility. Thanks to Cambridge Uni @CIDDRG for their Alzheimer’s presentation & @garrettflo for sharing the Advisory Group ICB challenge results.
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APPG for Down Syndrome retweeted
30 May 2025
Minister @SKinnock explains why the consultation on the Down Syndrome Act 2022 - pioneered in @UKParliament by @LiamFox & @BaronessHollins has been delayed. @APPGDS @DamianHinds @DownSyndrome @DownSyndromeLPL @HumanRightsCtte @LordSpeaker @CommonsSpeaker @HouseofCommons
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14 Jan 2025
“As co-chair, it is a privilege to pick up on Sir Liam’s work; the next critical phase needs to be the publication of supporting guidance for the #DownSyndromeAct.” @DamianHinds
A really encouraging article by @DamianHinds MP showcasing the voluntary work of founding officers @kenross2011 @rachaelross21 Its a pleasure to work with Damian & we’re grateful for his collaboration and efforts in the @APPGDS and #DownSyndromeAct
damianhinds.com/news/power-l…
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19 Nov 2024
Productive APPG for Down Syndrome with valuable contributions from @DownsCheshire and @NDSPolicyGroup Advisory Group highlighting their day to day challenges with education, employment, housing and healthcare.
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8 Oct 2024
Delighted to relaunch the @APPGDS with excellent cross party support, welcoming our new co-chairs, @DamianHinds @GoAndrCoop
Thanks to our new members & @NDSPolicyGroup & particularly our policy network leaders, @fionnathan, Ed @garrettflo for their informative presentation.
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APPG for Down Syndrome retweeted
20 Mar 2024
Today we celebrate World Down Syndrome Day, a global awareness event aimed at amplifying the voices of people with Down’s syndrome, highlighting their vital role in our communities and calling for their full participation in anything affecting their lives.
@APPGDS, @NDSPolicyGroup
#WDSD2024 #NDSPG
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7 Feb 2024
RT @NDSPolicyGroup: Thank you @DHSCgovuk for a very informative meeting tonight with members of our Advisory Group. Thank you to all who ca…
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6 Feb 2024
RT @NDSPolicyGroup: ‘……we have passed 2 landmark pieces of legislation - the British Sign Language Act and the #DownSyndromeAct.’
This is…
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