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Aaron (Long Covid ME billboards) retweeted
SOCIAL MEDIA OUTREACH TOMORROW!
At 10am Paul Garner, Trudie Chalder & Alan Carson are presenting on Long Covid at RCPsych Congress.
The community have serious concerns about this framing. 58 orgs & 1200 signed an open letter.
Template to C P below šļø
ALT Campaign infographic titled "#HearOurVoices" and "#RCPsychIC", demanding better ME and Long Covid framing from the Royal College of Psychiatrists. Left side shows a woman pushing a young woman in a wheelchair on a path. Below this, a dark block titled "1 Why?" states 58 orgs and 1200 people signed an Open Letter regarding concerns over Long Covid framing at the 2026 International Congress, noting "our concerns remain." The main text outlines a "Social Media Campaign" with three steps: 1) JOIN community outreach on June 15th, 2) POST your story for congress attendees, 3) AMPLIFY using tags #RCPsychIC and #HearOurVoices. It provides a post template supporting up-to-date scientific representation and meaningful patient engagement. Bottom right includes a pink QR code, a link to "longcovidadvoc.com", and the "LONG COVID ADVOCACY" logo. A bright pink footer reads: "International response raises concern about Congress framing of Long Covid."
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Iād really like to encourage anyone with #LongCovid or #MECFS to try support the @LCMEBillboards campaign.
Itās very impossible and affordable to have this billboard up (in vicinity of the NIHR) on a full time basis.
The artwork could update to reflect how many years
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7 Mar 2024
#LongCovid and #MECFS Billboard Campaign featured on ITV Wales This Week: Clinical Trials programme yesterday.
@LCMEBillboards are calling for urgent biomedical research and clinical trials for #LongCovid and #MECFS
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Aaron (Long Covid ME billboards) retweeted
7 Mar 2024
#LongCovid and #MECFS Billboard Campaign featured on ITV Wales This Week: Clinical Trials programme yesterday.
@LCMEBillboards are calling for urgent biomedical research and clinical trials for #LongCovid and #MECFS
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5 Apr 2024
We want to keep fighting for research and treatment for both #longcovid and #mecfs. If you would like to support what we do, please consider donating to our gofundme.
gofundme.com/f/billboards-foā¦
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very POSSIBLE not IMPOSSIBLE***
ffs i wish i could edit this post!!
Iād really like to encourage anyone with #LongCovid or #MECFS to try support the @LCMEBillboards campaign.
Itās very impossible and affordable to have this billboard up (in vicinity of the NIHR) on a full time basis.
The artwork could update to reflect how many years
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7 Oct 2024
Or you can order our leaflets or car window/bumper stickers here -
notrecovereduk.org/category/ā¦
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15 Mar 2025
Weāre all ready for our leaflet handouts tomorrow! If you want to come along and show support, meet other volunteers and hand out leaflets or wear any merch of your own please feel free!
Weāre representing @LongCovidKids with QR codes and testimonials attached to our leaflets as well as attaching @strawfieās amazing clean air petition to 100 of them too!! On top of that we have at least 700 regular leaflets being handed out! We will also have a 6 foot banner in place and hope to have some serious conversations with members of the public and try and get them to sign strawfies petition, join our mailing list, donate to the campaign and generally put the word out that #LongCovid is a very real and serious condition and that it could happen to anyone! The more allies we get on board the better!
Details of all locations in next Tweet!
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18 Mar 2025
Outside Downing Street @LCMEBillboards Digivan is calling on the UK government to commit to Ā£100m a year in research funding for #LongCovid. So, #WhereIsIt?
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26 Feb 2024
Hi everyone. The billboard in Cardiff for the Covid inquiry has gone up. This board was put up by an independent and not directly by us. If you would like to support him, here is his GFM. Thanks to @GarethEvans1977 for the great work.
#LongCovid #MECFS
gofundme.com/f/billboard-forā¦
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22 Dec 2023
#LongCovid patients slam the UK Medical Research Councilās lack of response to billboard campaign - and when they did respond to @LCMEBillboards it was a copy & paste job from their website #ChronicIllness #MEcfs. Read more below:
thecanary.co/uk/2023/12/22/lā¦
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We made the Leicester papers too
pressreader.com/uk/leicesterā¦
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Imagine the billboard saying
ā______ years and still waiting. When will NIHR do something?
ā_____ deaths this year alone. How many more will die before we get treatments?ā
(something like that, but keep the billboard there permanently)
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Just throwing it out there as its very frustrating not being able to take action on this myself now and I know Alex has single handledly carried the campaign for a long time now and is also severe.
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