Joined June 2014
- Tweets 11
- Following 58
- Followers 70
- Likes 0
Photos and videos
A5 @NIHClinicalCntr is the largest hospital devoted to clinical research and a major resource for rare disease patients worldwide. #NIHChat
2
19
10
Alstrom Syndrome Int retweeted
16 Feb 2015
16
348
155
Alstrom Syndrome Int retweeted
30 Jan 2015
Genetic Alliance CEO @sharonfterry attends @BarackObama #PrecisionMedicine Initiative announcement. Watch it live: whitehouse.gov/live
5
4
Alstrom Syndrome Int retweeted
Involve the patient: #raredisease registries accelerate treatment & address knowledge gap about patients' daily lives bit.ly/1ICTMLG
16
5
Alstrom Syndrome Int retweeted
8 Jan 2015
50 days until #RareDiseaseDay 2015! Be heard, tell your story. bit.ly/RAREStory #HandprintsAcrossAmerica
2
23
6
19 Dec 2014
The results are in! YOU DID IT!!!! You helped Alstrom Angels win $10,000! conta.cc/1sPINes Congratulations @AlstromAngels
24 Nov 2014
Amazon donates to Alstrom Syndrome International when you shop @AmazonSmile. smile.amazon.com/ch/01-05151… #YouShopAmazonGives
Alstrom Syndrome Int retweeted
20 Nov 2014
100 days until Rare Disease Day - the website for #RareDisease Day 2015 launched today! Add your events now! thndr.it/14mDkAq
1
36
6
Alstrom Syndrome Int retweeted
6 Nov 2014
Are we part of your morning routine yet?? Get coffee...VOTE AGAIN! #constantcontact conta.cc/1x8WPWz
1
Alstrom Syndrome Int retweeted
6 Aug 2014
CENAs disease advocacy partners: @AlstromInternat @AXYSinfo @jsrdf @pxe @NGF_Gaucher @HFIconnect @IBCResearch @DCOutreachInc @MLDfoundation
4
1