Difficult woman. Nurse academic, passionate about research into children's healthcare. Also in the other place: @bevcopnell.bsky.social

Joined February 2016
11 Photos and videos
Bev Copnell 🍉 retweeted
Long Covid Cases Hidden By Widespread Preference For Literally Any Other Diagnosis
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Bev Copnell 🍉 retweeted
Nobody wants a city on Mars. Nobody wants AI in every app. Nobody wants a robot butler. Nobody wants data centers everywhere. Nobody wants flying cars or humanoid robots. We want clean water, we want bees to survive, and we want a habitable planet.
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Bev Copnell 🍉 retweeted
Most People Do Not Have Long Covid, Just A Mysterious Illness Since Covid, Says Study
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Bev Copnell 🍉 retweeted
Instead of discussing how Elon Musk is now the world's first trillionaire, we should talk about how he killed hundreds of thousands of people through his dismantling of food and medical aid to poor countries currentaffairs.org/news/how-…
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Bev Copnell 🍉 retweeted
“My doctor said Covid is mild, and masking is not necessary”. Well your doctor is wrong on both counts and you should not base your health, and life on their personal bias. If they are saying Covid is mild, they are ignoring over 500,000 peer reviewed publications that shows Covid is not mild, and is highly dangerous, and they are pushing their own biased, and dangerously incorrect opinion. They are wrong.
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Bev Copnell 🍉 retweeted
“We must stop the Genocide in Gaza. There are no excuses anymore”. Slovenia’s address to the UN before banning Isreal’s Benjamin Netanyahu from their country.

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Bev Copnell 🍉 retweeted
Replying to @netanyahu
Regardless of how many times you keep repeating it, calling it a "Jewish state" does not make it one. We will continue reminding the world, that neither you nor your government speak for the Jewish people globally. You represent Zionist movement, not Judaism. Your founders and leaders openly rejected G-d and His Torah,
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Bev Copnell 🍉 retweeted
Israel’s Dep Foreign Minister bemoans the fact that some Israeli children had to spend the night in shelters. Wilfully oblivious to the 2 years of suffering of Palestinian children- highest number of child amputees,only tents to shelter in. Spare us the hypocrisy.#abc730
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Bev Copnell 🍉 retweeted
Prof Jeffrey Sachs, American economist and public policy analyst. Columbia University: "AUKUS is designed to bill the Australian taxpayers and enrich the US military industrial complex. You have been had Australia, sorry to tell you. And your politicians should own up it."
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Bev Copnell 🍉 retweeted
In any democracy, security forces killing a baby would normally be a traumatic event for society. It would lead to condemnation, self-reflection, policy-change. Not in Apartheid Israel. Where the policy that led to the killing is the point. And the death does not matter.
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Bev Copnell 🍉 retweeted
⚠️After seeing the response from patients, clinicians and scientists, I think this needs to be said clearly: Re-promoting an article that has caused so much harm to the Long COVID community is not brave journalism. It is irresponsible. This article did not simply “open a difficult conversation.” It amplified a deeply damaging frame: that maybe patients are rejecting the uncomfortable truth that CBT, exercise and “mind-body” approaches are the way forward. But when you present a complex post-infectious disease through that lens, without properly separating psychological support from biological treatment, you are not helping patients. You are making their lives harder. These narratives do not stay inside an article. They reach families. They reach employers. They reach disability assessors. They reach doctors who already know very little about Long COVID. They reach people who are looking for an excuse to say: “maybe it is just anxiety,” “maybe you are afraid of exercise,” “maybe you are keeping yourself sick.” That has consequences. Social consequences. Medical consequences. Workplace consequences. Psychological consequences. Patients with Long COVID are already fighting disbelief, lack of biomarkers in routine care, lack of approved treatments, disability, isolation and medical neglect. Using their suffering to generate clicks while repackaging old psychosomatic narratives in modern “mind-body” language is not courageous. It is cruel. The problem is not talking about the nervous system. The problem is turning nervous system involvement into a story about beliefs, fear, trauma or patients refusing to accept recovery. The problem is using recovery anecdotes as if they establish causality. The problem is ignoring those who worsened with exercise. The problem is presenting PEM caution as dogma. The problem is being much more generous with “brain retraining” narratives than with the biomedical evidence already showing immune, vascular, autonomic, metabolic and muscular abnormalities in Long COVID. If a journalist wants to write about Long COVID, they have a responsibility to understand the history of harm done to post-infectious patients. Because this is not new. ME/CFS patients have lived this for decades. “Unexplained” became “psychological.” “Normal routine tests” became “nothing is wrong.” “Supportive care” became “cure.” “Exercise” became “rehabilitation,” even when patients were crashing. And now the same mistake is being repeated with Long COVID. Patients are not angry because they reject science. They are angry because they recognize the pattern. They have seen what happens when medicine turns biology it cannot yet measure into psychology. So no, this is not “a way forward.” A way forward would be stratification, biomarkers, mechanistic trials, antivirals, immunology, dysautonomia research, PEM-safe protocols, autoantibody studies, vascular biology, tissue persistence, metabolism and serious clinical phenotyping. A way forward would be listening to all patients, including those harmed by exercise and psychologizing narratives. A way forward would be scientific humility: admitting what we still do not know without turning unexplained biology into psychology. Not click-driven repetition of the same ideas that have already harmed post-infectious patients for decades.
Jun 6
There might finally be a way forward for long Covid treatment—if only you were allowed to talk about it. wired.com/story/the-painful-…
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Bev Copnell 🍉 retweeted
“Netanyahu is the Hitler of the 21st century, and failing to stop him condemns us all.” Spain’s Ione Belarra
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Bev Copnell 🍉 retweeted
Replying to @hannahspierMD
1/Hannah, we have now almost 500,000 peer reviewed published research into long covid now. “Fatigue”, “post exertional malaise (PEM)” “Brain Fog” “difficulty concentrating” are not psychiatric symptoms. They have a pathological basis and clear demonstrable abnormalities 1/
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Bev Copnell 🍉 retweeted
There's only 2 countries in the world with illegal unchecked Nuclear Weapons. North Korea and Israel. One of these countries has attacked 9 countries in the last 2 years and is committing a genocide. It isn't North Korea.
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Bev Copnell 🍉 retweeted
We're going to have to repeat a lot that many Jewish people don't support Israel's genocide. Criticism of the Israeli Government and their war crimes has nothing to do with who is or isn't Jewish. To conflate them like this is both harmful and antisemitic.
Does he want them to wear yellow armbands too?
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Bev Copnell 🍉 retweeted
Researchers Find New Long Covid Cure Using Light From Gas
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Bev Copnell 🍉 retweeted
Of Course We Care About People With Long Covid, But There Are None Of Them, And It’s All In Their Heads, And Resources Are Best Focused Elsewhere
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Bev Copnell 🍉 retweeted
This is the article to amplify this week. “Long COVID confirmed a difficult reality: modern healthcare systems are optimized for diseases that can be rapidly diagnosed, categorized, and treated — not illnesses that require uncertainty tolerance, longitudinal care, and deep listening.” Long COVID Changed Everything open.substack.com/pub/britta…
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Bev Copnell 🍉 retweeted
Long Covid Reframed As Fight-Or-Flight Loop By People In Ignore-And-Deny Loop
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Bev Copnell 🍉 retweeted
Man Develops Controversial Theory After Not Liking Existing Explanation
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