Bringing education and inspiration to those living with rare and chronic diseases. 🩸
Joined June 2016
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1,808 Photos and videos
The FED UP Act is headed to Congress and could reshape how women and girls with bleeding disorders are supported. Hear why it matters on the latest episode of BloodStream.
bit.ly/thebloodstreampodcast
Sponsor: #Takeda
I’m Fine is presented by @SanofiUS
#raredisease #bleedingdisorders
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Not everybody has access to a rare lung disease expert. But AI pattern recognition can democratize medical expertise to underserved places all around the world.
Hear more on The Lung Lab: osicild.org/podcast/.
@OSICild
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Dr. Anthony Hunter explains the subtle difference between MPNs and other types of cancer and why blood counts don’t tell the full story of how a patient actually feels on the latest MPN Pod.
bit.ly/mpnpodpodcast
#raredisease #polythycemiavera #bloodcancer
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Dr. Helmut Prosch explains why AI will enable radiologists to go far beyond the limitations of the human eye when analyzing medical imaging and diagnosing rare diseases—only on The Lung Lab podcast.
osicild.org/podcast/
@OSICild
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In the latest episode of The Lung Lab podcast, Dr. Helmut Prosch explains why researchers in rare lung disease must never be satisfied if they hope to make real progress.
osicild.org/podcast/.
@OSICild
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In this episode of The MPN Pod, we sit down with Dr. Tony Hunter, an MPN specialist and associate professor at Emory University, for a comprehensive ET 101.
bit.ly/mpnpodpodcast
#raredisease #polythycemiavera
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“They told me to wait and deteriorate.” When “stable” care isn’t enough, self-advocacy becomes survival.
Listen now on Thal Pals.
pod.link/1639436269
🎧 Sponsored by @AgiosPharma
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In this episode of The Lung Lab podcast, host Elizabeth Estes sits down with Dr. Helmut Prosch to explore the transformative role of artificial intelligence in diagnosing rare and fibrosing lung diseases.
Listen Now: osicild.org.
@OSICild
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Petition to get “just a carrier” banned from our vocabulary. 🙋
Repeat “Women can have hemophilia” five times and get in The FLOW with us. 🌸
bloodstreammedia.com/flow
Sponsor: @novonordiskus
#womenshealth #bleedingdisorders
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After bringing on 5 new team members this year, the Believe crew is finally getting everyone in the same room for their first ever all hands retreat this June.
bit.ly/thebloodstreampodcast
Sponsor: #Takeda
#raredisease #bleedingdisorders
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“Wait and deteriorate.” That’s how Madina describes her early care with thalassemia. Now, she’s rewriting that story through advocacy, answers, and action.
New episode of Thal Pals out now.
Available now: pod.link/1639436269
@AgiosPharma
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This week on BloodStream, Maia shares what it was like being diagnosed young with von Willebrand disease type 2A, and why managing a bleeding disorder is never finished.
bit.ly/thebloodstreampodcast
Sponsor: #Takeda
#raredisease #bleedingdisorders #womenshealth
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You bring the dismissal and we bring the receipts. 🧾
Women with bleeding disorders often have to prove their condition in exams rooms before the possibility of testing is considered.
bloodstreammedia.com/flow
Sponsor: @novonordiskus
#womenshealth #bleedingdisorders
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This week on BloodStream, we hear about Maia’s journey, on track to become the first woman with a bleeding disorder to complete the Seven Summits.
bit.ly/thebloodstreampodcast
Presenting Sponsor: #Takeda
#raredisease #bleedingdisorders #womenshealth
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Maia Meier joins us on BloodStream to talk about Project Elevate Her and her mission to climb the highest peaks on every continent, raising awareness for women and girls with bleeding disorders.
bit.ly/thebloodstreampodcast
Sponsor: #Takeda
#womenshealth #bleedingdisorders
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The future of Interstitial Lung Disease care is connecting imaging, clinical reports, and structured data to unlock smarter technology and better patient outcomes.
Hear the full conversation on the latest episode of The @OSICild Lung Lab.
osicild.org/podcast/
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Women knew something was wrong long before the medical system listened to them.
Hear what they have to say and get in The FLOW with us. 🌸
bloodstreammedia.com/flow
Sponsor: @novonordiskus
#womenshealth #bleedingdisorders
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This week on The OSIC Lung Lab, the conversation explores how AI-powered “snapshot views” are helping researchers better visualize massive imaging datasets.
For more information on the Open Source Imaging Consortium (@OSICild), visit osicild.org/podcast/.
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Next on The OSIC Lung Lab, Sandra shares how the platform is helping researchers move beyond simply collecting data to building smarter AI.
For more information on the Open Source Imaging Consortium (@OSICild), visit osicild.org/podcast/.
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In rare lung disease, more data isn’t always better. Good data is all about impact.
In the latest episode of The Lung Lab podcast, Host Elizabeth Estes sits down with Sandra Stapleton, COO of Vida.
osicild.org/podcast/
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