Joined November 2016
617 Photos and videos
Last days to complete the Global Patient Survey on #Lymphoma and #CLL. Data provides critical evidence on patient experiences and needs, helping to improve care and inform healthcare decision-making. Link: bit.ly/LymphomaCoalitionGPS2… #Lymphoma #CLL #lymsm @LymphomaEx @knowyournodes

2
2
162
Últimos días para responder la Encuesta Global de #Pacientes con #Linfoma y #LLC. Los datos son la evidencia de la experiencia y necesidades de los pacientes y permiten mejorar e influir en la toma de decisiones sanitarias. Link: bit.ly/LymphomaCoalitionGPS2… #linfoma #LLC #lymphoma

3
1
353
Join us to discuss a provocative question: Does autoimmune diseases stem cell based care need "undisciplined" medicine? Room 113 at @TheEBMT @MSIntFederation, with Dr. Bahram, Dr. Burt, Noelle Tassy, and Abdelafah Ibrahim.
1
72
Exploring some myths around bone marrow transplantation for patients living with multiple sclerosis, by Noelle Tassy. Just some of the factor contributing to barriers and disparities in access. @MSIntFederation @TheEBMT
1
4
279
Discussing the role of bone marrow transplantation in multiple sclerosis with Dr. Richard Burt. Powerful concept comparing #HSCT with available drugs. @TheEBMT Patient Family and Donors Day
1
5
221
Even a little dose of exercise can make a big difference. Start at your own rhythm. Small steps count, and the benefits can be enormous. #Exercise #HealthyHabits @TheEBMT
1
3
164
The effects of exercise on physical function following a bone marrow transplantation. #Exercise must be integrated as part of the standard of care. It helps to improve quality of life and #patients wellbeing. @TheEBMT
1
45
Changing habits to adopt a positive model of self care after #HSCT. It is not enough to measure #survival. We need better #survivorship. @TheEBMT @TheEBMT_Nurses
1
37
The cutting-edge developments in 2026 and the directions we're heard to prevent and tackle cardiovascular events in #HSCT, and conclusions @TheEBMT
1
2
267
Come to @TheEBMT #Patient Family and Donors Day at the Novotel Campo de Las Naciones in Madrid. We will screen the documentary short film Quimera: 10 Stories of Bone Marrow Donation. rb.gy/6n5bvc
1
4
125
I am pleased to Chair @TheEBMT Patients Family and Donors Day in Madrid. @Thanks @AnthonyNolan @DKMS_uk and @fcarreras for your wonderful support. Come to listen great stories from #patients, @TheEBMT_Nurses, physicians, donors, registries, great people and patient advocates...
6
103
Natacha Bolaños retweeted
Es el Rey Felipe VI una figura útil en la España actual? 🔄 SÍ ♥️ NO
521
495
11,092
246,298
Prof Andres Ferreri, @SanRaffaeleMI @FIL_ETS discussing the difficulties and solutions for Primary central nervous system #lymphoma (PCNSL) at #ESMO2024 @knowyournodes #lymsm
3
6
530
Had the pleasure of spending time with Jana Pelouchova at #ESMO2024. Her unwavering integrity and commitment to honest, impactful #patientadvocacy truly inspire. Conversations like these remind us of the real impact we can make in the #cancer community. #ESMO2024
3
285
It was a true pleasure catching up with @JMMartinMoreno during the #ESMO2024 dinner. His passion for public health and dedication to improving #CancerCare are always inspiring. Conversations with him are not only insightful but also a reminder of the heart behind the work we do.
1
1
9
1,052
"Thank you to the @EHA_Hematology for your invaluable partnership with #patientadvocacy groups and your commitment to improving clinical practice standards in #lymphoma. Together, we’re making strides towards better care and outcomes. #WLAD2024 @EHAPatient
On #WorldLymphomaAwarenessDay, we focus on the importance of honest conversations between patients and caregivers or family around emotional concerns and how access to specialist resources. Read more about best practices with a debate and CLL patient clinical simulation in our course: ehaedu.org/Patient_communica… #WLAD2024 #lymphoma #CLL @knowyournodes Curious about our patient involvement? The Lymphoma Coalition is also a member of our @EHAPatient committee.
1
1
10
467
Natacha Bolaños retweeted
15 Sep 2024
📅 Today marks the 20th #WorldLymphomaAwarenessDay. 📣 Lymphoma Coalition's -24 campaign highlights the emotional impact of living with #lymphoma and the need for #HonestTalk. 🗨️ Discover more in the article by Kathryn Perry ⬇️ ebmt.org/ebmt/news/world-lym… #WLAD2024 @knowyournodes
1
6
11
948
Today is World Lymphoma Awareness Day #WLAD2024 Grateful to all healthcare professionals encouraging patients with #lymphoma to have Honest Talks, express their feelings, and report symptoms impacting their experience. @DrRaulCordoba @EliLymphoma @FIL_ETS @LymphomaEx @hnhcp
7
10
892
Today is a perfect day to come back to social media. Living with #lymphoma and CLL can be hard and affects how people are feeling. Medical teams can help patients to get the support they need. On #WLAD2024 promote Honest Talk among patients, caregivers and medical teams
2
6
269
Natacha Bolaños retweeted
::: El ejercicio como “medicamento” :::! Efectos moleculares ( ) del #ejercicio LINK: physiology.org/doi/10.1152/p…
1
105
272
21,372