Patient advocate living with #Crohns. Collaboration with patients is the future of medicine. #IBDparenthoodproject @trellushealth @dartmouthMHCDS ‘20
Joined September 2016
- Tweets 3,592
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Pinned Tweet
30 Sep 2021
It's important to honor just how difficult it can be each time remission ends (or should I say, pauses?). #Crohns will be with me for life. And while I do persevere, I also feel sadness, frustration, and pain - and that's OK. #IBD #chronicillness chronically-jess.com/single-…
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ChronicallyJess retweeted
16 Dec 2023
#AIBD2023 Pregnancy in #IBD
@ChronicallyJess
💎B clear: healthy🤰🏼on Rx = healthy 👶🏻
🤰🏻needs to know she’s doing the right thing for👶🏻 AND fight misinformation & “advice” from “internet & well-meaning in-laws”
💎Enroll🤰in #PIANO: it’s empowering for🤰🏽to be part of ⏩ science
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15 Dec 2023
“Our job is to give patients more hope and reduce their fear.”
Thank you for doing that, and so much more, over our many years together. Im so very lucky and I know it. Congratulations on your INCREDIBLY well deserved Sherman Prize, Corey! #aibd2023
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15 Dec 2023
You did an amazing job with this article, and inspired me in the process! 💜
15 Dec 2023
Last year at @VindicoMedEd #IBDFellowsSummit @ChronicallyJess inspired this @AmCollegeGastro Magazine article on “Teaching with the Patient Voice”
Grateful to have so many patient voices helping #GIFellows learn & grow during training & at conferences!😊
issuu.com/amcollegegastro/do…
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15 Dec 2023
Patients don’t fail treatments. Let’s commit to stop phrasing it as if they do. It matters!
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ChronicallyJess retweeted
14 Dec 2023
#IBD patients: hang on to this slide! #EmilyBlock sharing resources for how to get access to medications 💊💉
#AIBD2023 @IBDConference
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ChronicallyJess retweeted
14 Dec 2023
One of the most important things I learned @IBDConference was on panel w/@ChronicallyJess “when pt comes in w/certain beliefs/therapies, they’re coming from a place of hope, hope that therapy “x” cures them & they don’t need y&z” . Understanding that changes the whole interaction
14 Dec 2023
Three AMAZING women right there. The #ibd world is so lucky to have you!!
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14 Dec 2023
LOVING convos about fatigue at #aibd2023, but want more about how pts measure fatigue, and how they currently compensate in their life to manage fatigue, because if patients rate their fatigue as improved, but are still opting out of activities, fatigue is not actually improved
14 Dec 2023
#AIBD2023 @IBDConference
#Fatigue in #IBD @HorstIBDDoc
Most common Causes
✅Active 🔥
✅Chronic disease state
✅Psychosocial factors
✅Poor Sleep
✅Anemia
✅Meds
How to approach fatigue Differential & treatments👇🏽including life style changes
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14 Dec 2023
After being diagnosed with Lyme disease this summer, following development into severe neurological symptoms before I was heard by doctors and properly tested/treated, I’m finally stepping outside of my safe, home-based space to travel to #aibd2023! Feeling thankful to be here ✈️
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7 Mar 2023
What an amazing opportunity for #ibdmoms to create additional research for future parents with #crohns #ulcerativecolitis
Are you a @PIANOIBD patient and have a study idea? What data have we been collecting from you that would be an interesting question? Let us know on the FAQ page. just click "propose a study ?" @MLongMD @UmaMahadevanIBD @ChronicallyJess @IBDMoms pianostudy.org/faq.php
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ChronicallyJess retweeted
📣 The latest #AboutIBDPodcast covers a tool called CDPATH, which is available now for some people w/ #Crohns. It could help in deciding, for instance, about medications. @DrCoreySiegel and @ChronicallyJess give the details on Ep 128! Listen or read here: bit.ly/AIBD128
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ChronicallyJess retweeted
8 Dec 2022
Incredible meeting @ChronicallyJess & @UmaMahadevanIBD IRL! And @SCKimCHP @IBD_Afzali seeing you again! The work you all do for women & children w/ #IBD is groundbreaking. I am humbled to know you 💜🙏🏽
#AIBD2022 @MRegueiroMD @IBDConference
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ChronicallyJess retweeted
“We getting pulled up tonight” 🎶
When GI docs pull up at #AIBD2022 with patients…@IBDConference
@MRegueiroMD @MLongMD @NMH_SHanauerMD @SCKimCHP @JeremyAdlerMD
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ChronicallyJess retweeted
6 Dec 2022
Amazing discussion with @UmaMahadevanIBD & patient advocate @ChronicallyJess on #pregnancy & #IBD!
💎 Have conversations early & discuss safety of therapies
💎 Share data with patient & loved ones discuss openly as the emotional process is enormous
#AIBD2022 @IBDConference
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ChronicallyJess retweeted
6 Dec 2022
Thank you to @ChronicallyJess and @ownyourcrohns for sharing your courage, candor and wisdom. We are better with you on the podium! #AIBD2022
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6 Dec 2022
Congrats to @UmaMahadevanIBD on her #shermanprize, as her work is particularly impactful for women with #ibd who are pregnant or wanting to become pregnant. She has helped bring the data to #ibdmoms who want to make safe, informed decisions on how to become moms. 💜🤰🏻💜
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6 Dec 2022
LOVING #aibd2022, but I’m dreaming of a day when conferences do away with all the wasteful handouts. We know that the environment impacts chronic illness… here’s one way to help reduce waste - we’ve all gone digital at this point, anyway.
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ChronicallyJess retweeted
6 Dec 2022
IBD Summit:Highly educational meeting for fellows interested in #IBD! Basic &🔥 topics by leaders who revolutionized management & treatment!Thx to @DrCoreySiegel @IBDMD @NMH_SHanauerMD @VindicoMedEd @EdwardLoftus2 @ibddocmaria @MLongMD @ChronicallyJess @MRegueiroMD #MarlaDubinsky
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ChronicallyJess retweeted
5 Dec 2022
Diet as therapy for IBD. Patient perspective @ChronicallyJess: Pts can internalize blame related to diet- important to reassure patients IT IS NOT THEIR FAULT. #aibd2022 @IBDConference
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ChronicallyJess retweeted
5 Dec 2022
@oridamas @GIdietitian @ChronicallyJess #JimLewisMD #IkuoHiranoMD. Promising data on Diet as therapy: Low fat diet, SCD. Mediterranean diet - common denominator may be HIGH FIBER. ? Effects on symptoms vs inflammation @IBDConference #aibd2022
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ChronicallyJess retweeted
5 Dec 2022
As an #IBD patient, really exciting to see positioning of newer therapies being discussed. Personalization is coming, fellow patient community! 🙌🏽
Thank you to @IBD_Afzali @MLongMD @DrCoreySiegel for explaining strategies to use newer tx VEDO, UST & RISA.
#AIBD2022
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