Working to improve the healthcare of children with medical complexity and their families, and provide support for the professionals looking after them
Joined October 2019
- Tweets 361
- Following 103
- Followers 351
- Likes 58
51 Photos and videos
Pinned Tweet
27 Mar 2024
At our #RCPCH24 workshop yesterday we gave attendees a copy of "Empathy in Practice: 10 Tiny Acts that Transform the Journeys of Parents of Children with Medical Complexity" - you can download your free copy from our website colabpartnership.org.uk/reso…
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The CoLab Partnership retweeted
16 Apr 2025
TNC & @Col_Partnership session Thurs 24 April: @TheAPCP Respiratory Risk Identification Matrix for CYP with Neurological Impairment
Gain an overview from @ApcpResp of the Matrix and how it can be used as part of usual care and embedded into NHS practice
bacdis.org.uk/events/apcp-ma…
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18 Nov 2024
Join us next Tuesday (26 Nov) for our Free CoLab Webinar focusing on Working with parents to improve services
For more info and to register: colabpartnership.org.uk/even…
8 Oct 2024
Free CoLab Webinar 26 Nov (1-2pm) - Working with parents to improve services
This session explores best practice guidance on working with parents of children with serious illnesses to change services for the better.
For more info and to register: colabpartnership.org.uk/even…
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The CoLab Partnership retweeted
30 Oct 2024
Great opportunity to work with @RHardingCSI and myself on an @NIHRresearch funded study on complexity of needs in children @RCPCHtweets @CSI_KCL @CYP_CSI #ppc @Col_Partnership kcl.ac.uk/jobs/097185-resear…
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8 Oct 2024
Free CoLab Webinar 26 Nov (1-2pm) - Working with parents to improve services
This session explores best practice guidance on working with parents of children with serious illnesses to change services for the better.
For more info and to register: colabpartnership.org.uk/even…
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The CoLab Partnership retweeted
30 Sep 2024
📣📣 UPCOMING EVENT - Palliative care for children and young people
Wednesday 6th November 2024, 13:00-16:30
Online and in-person @CSI_KCL
FREE to attend, register here: buytickets.at/facultyofnursi…
Fantastic programme 👇
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1 Oct 2024
Save the dates!
26 Nov - Working with parents to improve services: best practice guidance (webinar) - free
19 June 2025 - Managing medically complex children (online Study Day)
More info on both events and how to register will be available soon!
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The CoLab Partnership retweeted
10 Sep 2024
Exciting opportunity to work with @RHardingCSI and myself on an @NIHRresearch @RCPCHtweets grant. Please share @Col_Partnership @Tog4ShortLives @TheAPPMuk @CSI_KCL @CYP_CSI #childhealth kcl.ac.uk/jobs/095043-resear…
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Review
Managing menstruation for medically complex paediatric patients
Several options - weighing up benefit and risks
All about shared decision making
adc.bmj.com/content/early/20…
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3 Jun 2024
Join us tomorrow (Tues 4 June) for a study afternoon on Long-Term Ventilation (LTV) facilitated by the children's long-term ventilation service at the Royal Brompton Hospital.
Free for CoLab Enhanced members, small registration fee for non-members.
colabpartnership.org.uk/even…
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The CoLab Partnership retweeted
We’re pleased to share @newlifecharity’s new report, Fight For Our Future, which paints a bleak picture, revealing that only 2 in 5 families feel their child has all the equipment they need. We're urging our followers to read & share the report: newlife.support/fight-for-fu…
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The CoLab Partnership retweeted
12 Apr 2024
Please have your voice heard and comment on the NEW Framework for Palliative Care. It’s vital you have your say #PerinatalPalliativeCare #ManagingUncertainty #SupportingFamilies #SupportingPerinatalTeams @NeoPallCare @NNAUK1 @Blisscharity @Tog4ShortLives @TheAPPMuk
11 Apr 2024
@BAPM_Official have released the draft Framework for Perinatal Palliative Care for consultation, important reading and a chance to give feedback to the authors
bapm.org/resources/palliativ…
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5 Apr 2024
If you attended our workshop at the RCPCH conference last week we would really appreciate if you could take 2 minutes to provide us with your feedback - good or bad - which will help us plan future sessions! forms.office.com/e/4gbgvzhTb…
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The CoLab Partnership retweeted
To give you a few extra days over the Easter weekend, we have extended the deadline for abstract submission to 9am, Weds 3 April
Undergrad medical, AHP nursing students & foundation drs selected to present their poster receive free registration
For info bacdis.org.uk/pages/abstract…
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The CoLab Partnership retweeted
26 Mar 2024
Parent presentation powerfully teaches how to better-manage children with medical complexity. Well done @Col_Partnership #RCPCH24
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26 Mar 2024
Full house for CoLab #rcpch24 workshop on improving care for children with medical complexity
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26 Mar 2024
Join us in Hall 8A from 10.45 for our workshop on improving care for children with medical complexity! There will also be cake! #RCPCH24
25 Mar 2024
Join me tomorrow at #RCPCH24
@Col_Partnership workshop at 10.45:
Improving care for children with medical complexity: Co-producing solutions together.
I’ve made some cake…just incase you need coaxing in 😊
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The CoLab Partnership retweeted
14 Mar 2024
Please help us understand how to support breastfeeding infants and toddlers with palliative care needs. Thank you to Dr Laura Thomas for raising such an important subject for so many families. @Tog4ShortLives @Col_Partnership @FeedSleepBond @BACD_tweets @CommChildHealth
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12 Mar 2024
Colab has two online study afternoons coming up - register at: colabpartnership.org.uk/page…
9 May - Managing sleep difficulties in children with complexity - @DrMikeFarquhar
4 June - Long Term Ventilation - children's long-term ventilation service at the Royal Brompton Hospital
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8 Mar 2024
Attending the @RCPCHtweets conference? Come along to the CoLab workshop on Tues 26 March and hear about what matters to parents, share ideas about local and system change and help us refine the educational work that we are doing to better meet your needs. colabpartnership.org.uk/even…
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