Almost three years ago, I was diagnosed with Stage 4 liver cancer.
After ~50 rounds of chemotherapy, immunotherapy, radiation, and a life-saving liver transplant, I am cancer-free.
This is my story:
I was 12 years old when I first heard the words "Fibrolamellar carcinoma", a rare and aggressive liver cancer that primarily affects children, teenagers, and young adults.
It is said that FLC occurs in about 1 in 5 million people.
We caught it early, at Stage 1, and surgeons were able to remove the tumor.
For the next 10 years, I was monitored closely through bloodwork, CT scans, and MRIs, and I showed no evidence of disease.
Life went on the way you hope it does after a childhood cancer. I genuinely believed it was behind me.
Then, in November 2023, 18 years after my original diagnosis, sudden and severe abdominal pain sent me to the emergency room.
What we discovered changed my life and the lives of everyone around me forever.
The cancer had come back, and this time, aggressively. Stage 4.
Multiple tumors throughout my liver and lymph nodes, and potentially my pancreas.
Surgery was ruled out completely.
I moved through clinical trials while the disease continued to progress.
The conversations with my doctors were not optimistic.
"There's not much we can do."
"We're looking to extend your survivability."
These were the worst of moments. I was newly married, with life turned upside down and options narrowing. It really felt like there was no hope.
That's when my brother found FibroFighters - a patient advocacy and education foundation for those impacted by FLC.
From the moment my family connected with Tom Stockwell and Dr. Paul Kent, the organization's medical director and one of the world's leading experts on Fibrolamellar, everything started to change.
They gave us direction, a plan, and a sense of possibility we had lost.
In no uncertain terms, I am alive today because of them.
Over the next 18 months, I underwent nearly 50 rounds of chemotherapy, immunotherapy, and radiation.
Remarkably, the tumors began to shrink.
In October 2025, almost two years after the night I walked into that emergency room, I received news that was originally impossible: I was eligible for a liver transplant.
My sister-in-law, Luisa, stepped forward as my donor, an act of love and courage so profound that I am still, every single day, searching for words large enough to hold it.
In the same operation, surgeons performed a Liver Transplant and a Whipple procedure, a one-of-a-kind surgery.
I sit here today, seven months later, with no evidence of disease.
When you're discharged from the transplant floor of the hospital, you ring a bell. There's a plaque next to it. It says:
- I ring it once for myself, to commemorate my journey so far and to reflect on this moment.
- I ring it again for those who have supported me and been by my side.
- I ring it once more to honor my donor, who has given me a second chance.
- I ring it lastly to encourage all of those who are still waiting on the list.
This post is my attempt to honor the fourth ring, to help and encourage those still in need.
I'm raising money for FibroFighters, the foundation that saved my life.
They do extraordinary work for a disease that is still desperately misunderstood, misdiagnosed, and mistreated.
Your support helps them do the same for the patients and families going through what I went through two years ago.
secure.givelively.org/donate…
If you can give, please consider giving. If you can't, please share my story.
Either one helps someone still in their fight.
Most importantly, to all those impacted by Fibrolamellar, there is reason to be hopeful.
I am proof.
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#fibrolamellar #FLC