Edinburgh Network for Crohn's & Colitis UK, bringing together and supporting those whose lives are affected by Crohn's or Colitis.
Joined March 2013
- Tweets 1,040
- Following 132
- Followers 632
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139 Photos and videos
Pinned Tweet
26 Apr 2022
We're currently recruiting a Lead Volunteer for our Edinburgh Network.
If you'd like to get involved in this or another role in our Network please complete the enquiry form to learn more: crohnsandcolitis.org.uk/volu…
#IBD #Crohns #Colitis #Edinburgh #EdinburghVolunteer
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Crohn’s & Colitis UK - Edinburgh retweeted
1 Oct 2024
Great study looking at the role of nutrition in ulcerative colitis. If you have ulcerative colitis and live in Scotland please email the team in Glasgow 👇🏽@CrohnsColitisUK @CrohnsColitisR @CrohnsColitisED @CrohnsColitisV @CCYANetwork
11 Sep 2024
🚨Participants wanted!
✅Do you or does anyone you know have Ulcerative Colitis?
✅Interested in taking part in nutrition research? 🔬
✅Currently living in Scotland? 🏴
Send us an email at smdn-uctreat@glasgow.ac.uk to learn more!
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Crohn’s & Colitis UK - Edinburgh retweeted
27 Sep 2024
Does your friend, partner or family member live with Crohn’s or Colitis? If they do, please join us at our Friends and Family virtual social event on 1st October at 6.30pm. It will be a chance to chat and potentially learn from others.
Register Today: crohnsandcolitis.org.uk/virt…
ALT Image description: The text reads: 'Virtual social event, It Takes Guts, 1st October 2024 6:30pm -8pm' above is a graphic of a cartoon style computer, on the screen are people having a 'teams' style meeting
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Crohn’s & Colitis UK - Edinburgh retweeted
11 Sep 2024
Invisible illness doesn't mean non-existent illness..
#Crohns #Colitis #InflammatoryBowelDisease #IBD #IBDMythBusting #HiddenIllness #hiddendisability
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12 Sep 2024
A study at the University of Glasgow @BINGO_Group is looking at the impact of a particular diet on the gut microbiome of adults with colitis who have no active disease and are on stable medication.
Find out more: crohnsandcolitis.org.uk/get-…
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Crohn’s & Colitis UK - Edinburgh retweeted
25 Jun 2024
Are you an adult living with IBD?
Do you have experience of virtual appointments and e-health tools as part of your IBD care?
Researchers at Bournemouth University are looking for people to complete a short questionnaire.
Find our more details here 👇
crohnsandcolitis.org.uk/get-…
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Crohn’s & Colitis UK - Edinburgh retweeted
16 May 2024
A study at the University of Glasgow @BINGO_Group is looking at the impact of a particular diet on the gut microbiome of adults with colitis who have no active disease and are on stable medication.
Find out more 👇
crohnsandcolitis.org.uk/get-…..
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Crohn’s & Colitis UK - Edinburgh retweeted
3 Jun 2024
Today marks the first day of #VolunteersWeek and we want to extend a heartfelt thank you to the incredible volunteers here at Crohn's & Colitis UK. Every day, they generously give their time, skills, and compassion to support those affected by IBD - crohnsandcolitis.org.uk/news…
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Crohn’s & Colitis UK - Edinburgh retweeted
19 May 2024
It’s 19th May which can only mean one thing #WorldIBDDay 🌍 has arrived! You’ve been showing up in your thousands in support of our #IIBDbmythbustingwe hope you'll continue to share and dispel the common myths around IBD
crohnsandcolitis.org.uk/get-…
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Crohn’s & Colitis UK - Edinburgh retweeted
7 May 2024
The countdown to #WorldIBDDay is on! There's only 12 days to go 🌍 Every year, on 19 May we mark World IBD Day. It’s a chance to put Inflammatory Bowel Disease on the map and get people thinking about what life with Crohn’s or Colitis is really like - crohnsandcolitis.org.uk/get-…
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Crohn’s & Colitis UK - Edinburgh retweeted
8 May 2024
Join us on 19th May, World IBD Day, for a virtual social event! Giving you the chance to chat, share experiences and potentially learn from others affected by Crohn’s or Colitis.
Register for your place today, click on the link below:
crohnsandcolitis.org.uk/vse
#worldibdday
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Crohn’s & Colitis UK - Edinburgh retweeted
12 Apr 2024
Does your friend, partner or family member live with Crohn’s or Colitis? If they do, please join us at our Friends and Family virtual social event on 16th April at 6.30pm. It will be a chance to chat and potentially learn from others.
Register Today: crohnsandcolitis.org.uk/virt…
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Crohn’s & Colitis UK - Edinburgh retweeted
28 Mar 2024
Join us on 4th April for our virtual social event! Giving you the chance to chat, share experiences and potentially learn from others affected by Crohn's or Colitis.
Find out more: crohnsandcolitis.org.uk/virt…
#Crohns #Colitis #IBD
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Crohn’s & Colitis UK - Edinburgh retweeted
19 Mar 2024
Only 50% of newly diagnosed patients said they had been given enough information to understand treatment options. Together with healthcare professionals and people living with Crohn’s or Colitis, we have created our new #MedicineTool 👉crohnsandcolitis.org.uk/info…
#Crohns #Colitis
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Crohn’s & Colitis UK - Edinburgh retweeted
We're delighted to be part of Edinburgh Science Festival @EdSciFest. Produced by the talented Hugo Hemmati @UofGlasgow media student, our documentary is a portrayal of our #IBD patients' lives & own young researchers in @EdinburghUni 10/4/24 6pm 🎟️👇
edinburghscience.co.uk/event…
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Crohn’s & Colitis UK - Edinburgh retweeted
Supported by @CSO_Scotland Hugo has captured the experiences & challenges of our lives across ages, the bridge between patients & science; from the 🧪🦠lab @EdinUni_CIR to the hospital 🩺@WghLothian #crohns #colitis @NHSResearchScot Pls share/come! @echcharity @EdinUniMedicine
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Crohn’s & Colitis UK - Edinburgh retweeted
Our event will be hosted by the wonderful Susan Morrison @suziemo at the beautiful Playfair Library. There will be a reception where the audience can meet ALL our researchers patients! #Edinburgh #Scicomm @CrohnsColitisUK @CrohnsColitisR @GutsCharityUK @CMF_UK @CrohnsColitisC3
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Crohn’s & Colitis UK - Edinburgh retweeted
10 Mar 2024
Friends in #Edinburgh #Glasgow & wider! Come to our film showing 📅 10th April, 6pm with pre-show 🧀🫒🍷 at the beautiful Old College Quad @EdinburghUni. Meet our @Edin_IBDScience team. Not just #IBD #Crohns #uc but creative arts, #film and #science @EdinUni_CIR @CrohnsColitisED
Our event will be hosted by the wonderful Susan Morrison @suziemo at the beautiful Playfair Library. There will be a reception where the audience can meet ALL our researchers patients! #Edinburgh #Scicomm @CrohnsColitisUK @CrohnsColitisR @GutsCharityUK @CMF_UK @CrohnsColitisC3
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Crohn’s & Colitis UK - Edinburgh retweeted
12 Jan 2024
Frustrating to see this @educationgovuk. School attendance matters, but so does supporting children with chronic conditions. Not every tummy ache is mild. It could be something serious like Crohn's or Colitis. Many kids want to be in school, learning with their friends but can't.
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Crohn’s & Colitis UK - Edinburgh retweeted
16 Jan 2024
Does your friend, partner or family member live with Crohn’s or Colitis? If they do, please join us at our Friends and Family virtual social event on 25th January at 6.30pm. It will be a chance to chat and potentially learn from others.
Register Today: ow.ly/2mM950Qr0lw
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Crohn’s & Colitis UK - Edinburgh retweeted
24 Oct 2023
Looking forward to starting the study in Edinburgh! @IMSineadMac @debz_kerr @AaronBancil @CrohnsColitisUK @CrohnsColitisED @CrohnsColitisR
23 Oct 2023
We are doing exciting research on #FoodAdditives in #Crohns and need your help
Is this you?
☑️Crohn's currently in a flare (active disease)
☑️Managed in UK NHS
☑️No recent change in meds
☑️Interested in an 8-week diet study
If so please email for further info: ADDapt@kcl.ac.uk
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