Raising funds for #EpidermolysisBullosa research and clinical trials. Please support us by joining our fundraising initiatives 🦋 Together we can #cureEB
Joined July 2012
- Tweets 9,099
- Following 752
- Followers 2,352
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3,515 Photos and videos
Jan 21
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Jan 17
Prof John McGrath talks about the challenges in finding treatments and a #cure for #EB.
Watch the full video on our Youtube channel: youtu.be/_JtRtRkL_sA
#CureEB #ResearchtheCure #EpidermolysisBullosa
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Jan 8
Fancy taking on a challenge for Cure EB this year? We've got lots of places available at events around the country - see cure-eb.org/challenges - or if you already have a place and would like to fundraise for us, please get in touch!
#CureEB #FabulousFundraisers #Donate
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Jan 8
In the video, two of last year's London marathon runners talk about why they chose to run for Cure EB.
100% of funds raised go to our research projects so we can continue to #researchthecure for #EB
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Jan 3
Make 2026 the year you raise free funds for Cure EB from your online shopping! Plus, we'll get a bonus donation when you sign up before the end of February: giveasyoulive.com/join/cure-…
#CureEB #ResearchtheCure #EB #Research #Donate
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Jan 1
Happy New Year, from everyone at Cure EB
Thank you for all your support!
In 2026, we remain dedicated to finding effective treatments and a cure for #EpidermolysisBullosa. We'd love you to join us on our journey! cure-eb.org 💙🦋
#CureEB #ResearchtheCure
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29 Dec 2025
Cure EB is proud to be a fully research-focused charity. This year we've funded new projects and shared existing work at conferences and events.
In 2026, we will continue to work towards our vision of effective treatments and a cure for EB!
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29 Dec 2025
Take a look at the research we fund at cure-eb.org/currentresearch
#Cure EB #ResearchtheCure #EpidermolysisBullosa #EB
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22 Dec 2025
Missed the last post? Worry not! You can still share some festive cheer by sending e-cards and donating the cost of cards and stamps to Cure EB! dontsendmeacard.com/ecards/c…
#CureEB #ResearchtheCure #EB #DontSendMeACard #Donate
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19 Dec 2025
"I couldn’t wait to be 13. I thought that I would finally get some freedom & independence to do things by myself... One of the most frustrating things about EB is that I’m always with an adult. I love being with my parents, but sometimes I want it to just be me & my friends."
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19 Dec 2025
You can read more of Poppy's story on our website: cure-eb.org/poppy
This is why we #ResearchtheCure. For a life free from pain, and a life where children like Poppy can do the things that most of us take for granted.
#CureEB #FacesofEB #EBStories
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15 Dec 2025
Medical research to find a cure for EB is the only focus of our energies and of your donations. We are so grateful to our wonderful supporters. 💙
If you would love to be part of finding a cure for EB, then here are a few ways you can support us.
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15 Dec 2025
Or visit our website for more ideas: cure-eb.org/support-us
#CureEB #ResearchtheCure #EpidermolysisBullosa 🦋
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12 Dec 2025
Send Christmas e-cards this year & you can support Cure EB in the process! By making a donation through @dontsendmeacard you can choose your design and send up to 100 e-cards, either in a batch or personalised: dontsendmeacard.com/ecards/c…
#CureEB #ResearchtheCure #Charity #Donate
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10 Dec 2025
A reminder that our final Research the Cure webinar of the year is this Thursday.
Join Prof Jakub Tolar as he discusses his research into immune and cell therapy for RDEB-associated squamous cell carcinoma.
🦋Thursday 11th December, 2pm
🦋Register here: cure-eb.org/event/researchth…
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9 Dec 2025
Thank you all who helped us reach our match funding target in the @BigGive #ChristmasChallenge!
We were able to raise an amazing £97,325, including Gift Aid, for our gene-editing research. Together, we can cure EB!
#CureEB #ResearchtheCure #EpidermolysisBullosa
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8 Dec 2025
One Donation 💙 Double the Difference 💙💙 Last chance to have your donation doubled as part of @BigGive's #ChristmasChallenge
Donate via donate.biggive.org/campaign/… by midday Tuesday 9th December.
Together, we can cure EB!
#CureEB #ResearchtheCure #EB #EpidermolysisBullosa
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7 Dec 2025
Don't forget our Research the Cure webinar with Jakub Tolar is this Thursday
🦋 11th December, 2pm GMT
🦋 Online
🦋 Free to attend and open to all but your must register: cure-eb.org/event/researchth…
#CureEB #ResearchtheCure #EB #Research
ALT Photo of Prof Jakub Tolar overlaid with text: Research the Cure Immune & Cell Therapy for RDEB SCC Research Webinar Thursday 11th December, 2pm GMT
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6 Dec 2025
Double the #donation means double the #research spend.
Until midday 9th December, you can have your donation matched when you donate to us via donate.biggive.org/campaign/…
Help us to make a difference for people with #EB by donating as part of @BigGive's #ChristmasChallenge
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