To raise awareness, build community, improve care and find a cure for PSP, CBD and MSA.

Joined April 2009
1,227 Photos and videos
Neuro2026: The PSP & CBD International Research Symposium takes place Nov 5–6, 2026 in London, UK, bringing together researchers & clinicians focused on PSP, CBD & related tauopathies for two days of neuroscience, collaboration and idea exchange. 🔗 give.curepsp.org/Neuro2026
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The Hilton London Bankside is the host hotel for #Neuro2026, with all symposium activities in one central location. Enjoy easy access to sessions, dining & cultural landmarks while connecting with PSP & CBD researchers from around the world. 🔗 give.curepsp.org/Neuro2026
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Abstract submissions are now open for #Neuro2026. Researchers, clinicians and professionals are invited to submit their work advancing PSP and CBD research across basic, translational and clinical science. Deadline: June 30, 2026 🔗 give.curepsp.org/Neuro2026
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Registration for the Tau Global Conference (May 14–15, 2026) is open — but don't wait. Virtual attendance is also free for ISTAART members. Register now: alz.org/tau #TauGlobalConference #TauResearch #PSP #CBD #MSA #BecauseHopeMatters
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We proudly recognize Samaritan Biologics for their generous support of our Spring Community Weekend. Their partnership plays a vital role in creating a meaningful experience for our community. Register to attend: give.curepsp.org/event/2026-… #CurePSPSCW26 #NeurodegenerativeDisease
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We extend our sincere gratitude to @LundbeckUS for their generous support of our Spring Community Weekend. Their partnership helps make this event possible for our community. Register to attend: give.curepsp.org/event/2026-… #Lundbeck #CurePSPSCW26
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Your local leaders can help raise awareness for PSP, CBD and MSA — they just need to be asked. CurePSP's guide shows you exactly how to make it happen.📋 psp.org/moa-resolutions-proc… #CurePSP #Advocacy #RareDisease
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Ready to make a difference? 👟 Join us for the Run For Hope 5K & 1-Mile Walk at the 2026 #CurePSP Spring Community Weekend in LA! 📅 May 2, 2026 🔗 give.curepsp.org/SCW2026 #RunForHope #BecauseHopeMatters #RareDisease
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🌍 The 2026 @CurePSP Spring Community Weekend is coming! Join us for a weekend of education, connection and community—including the Run For Hope 5K Trail Run & 1 Mile Walk. Hotel block available for attendees; book early! 🔗 Details & registration: give.curepsp.org/SCW2026
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Registration is open for Neuro2026: The PSP & CBD International Research Symposium. Join global experts in London on Nov 5–6, 2026 to advance the future of PSP and CBD research. Register now: give.curepsp.org/Neuro2026 @PSPAssociation #CurePSP #PSPA #Neuro2026 #PSP #CBD
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Funds raised through the Southwest Florida PSP Support Group Walk fuel programs that bring care, connection & progress to families with PSP, CBD & MSA. Every step & dollar supports caregivers, education & research. Join us: give.curepsp.org/MarcoIsland…
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Introducing the Louder than Words: CurePSP Voice Program, assisting people with PSP, CBD and MSA preserve their voice and stay connected through free voice banking AI technology. Learn more: psp.org/voice-program #CurePSP #VoiceBanking #AssistiveTechnology
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⏰ Abstract deadline: Feb. 18, 11:59 PM EST—just 1 week left! Share your tau research with global experts. ISTAART members: Feb. 23 Submit: alz.org/tau #TauResearch #Tau2026
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Introducing the CurePSP Prepare to Care Workbook 📝 A practical, easy-to-use resource designed to help individuals and families living with PSP, CBD or MSA organize essential information, prepare for appointments and support coordinated care. 🔗 psp.org/resource-library
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⏰ Last reminder! Applications for the #CurePSP Student Fellowship Program close January 31, 2026. Ensure your research proposal is polished and submitted by 5pm ET. Contribute to advancing knowledge in #PSP and #CBD. 🔗 psp.org/iwanttolearn/student… #Research #CurePSPFellowship
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Join us for a weekend of connection, learning and community at the 2nd Annual #CurePSP Spring Community Weekend, May 1–2, 2026 in Los Angeles. ☀️ 🔗 Learn more & Register: give.curepsp.org/SCW2026
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✈️ Travel Assistance is available! #CurePSP offers grants up to $1,500 to help care partners & individuals living with PSP, CBD or MSA with travel expenses. ⏰Deadline Jan 25, 2026 📨 Notifications: Feb 16, 2026 Apply here: give.curepsp.org/SCW2026

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Telehealth is essential for people living with PSP, CBD & MSA—especially for access to neurologists and specialty care. Without Congressional action, key Medicare telehealth flexibilities expire Jan 30. 🚨 Take action: mstr.app/da8dd5da-740a-4f56-… #CurePSPAdvocacy #Telehealth
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Congress must pass the CONNECT for Health Act (S.1261/H.R.4206) and the Telehealth Modernization Act (H.R.5081) to prevent future disruptions to telehealth access for our community. #HealthPolicy #CurePSP
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18 Dec 2025
🔬 Applications are open for the CurePSP Student Fellowship Program! Students and trainees can advance #PSP & #CBD research and make a lasting impact. 🗓 Deadline: Jan 31, 2026, 5 PM ET 🔗 psp.org/iwanttolearn/student… #CurePSP #Research #CurePSPFellowship #Neuro
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