Join me as I navigate through life with Amyotrophic Lateral Sclerosis. ALS sucks, but my life certainly doesn't! @ShockurashC is my wife. @Neuralink P21/VOICE2

Joined March 2025
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OK, I'm going to try and stream on both š• and Twitch! Model accuracy has been really good lately, so I'll set a date and we'll give this a try!
I'm finally feeling better. So it's time to start planning my first AM-almost-A! Let's start with the platform. Should I stream on š•, Twitch, both, or do you have another suggestion? šŸ¤”
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Hey everybody! Another Neuralink Cyborg has joined us on š•!
Diagnosed with MND in 2020, I lost movement and speech until fully paralysed In Dec 2025, I received a Neuralink brain‑computer implant—now I can communicate and even control my wheelchair with my thoughts. Early days, but a step back toward independence #MND #ALS #Neuralink #BCI
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Kenneth Shock retweeted
šŸš€ Episode 33 of Future Link Podcast just landed and it’s a deep dive you won’t want to miss! Ever wondered exactly how Starlink delivers crazy-fast internet from space? I break it all down — the phased array antennas in your terminal that track satellites electronically at lightning speed, the laser inter-satellite links zipping data between thousands of spacecraft like a high-speed mesh highway in orbit, and how the whole system actually works end-to-end! šŸ›°ļøāš”šŸ’” We cover real-world impact too: its lifesaving role in Ukraine, powering seamless connectivity on cruise ships across the oceans, bringing home-like Wi-Fi to airlines at 35,000 feet, rapid disaster response when everything else fails, and so much more. Plus I share my take as a Neuralink user on the incredible future opportunities ahead — direct-to-cell, Mars connectivity, and how these technologies unlock even more human potential! šŸŒāœØ Watch the full detailed episode right here on X šŸ‘€ YouTube link with the complete video in the first reply! What blew your mind the most — the laser links, the phased arrays, or the real-world stories? Drop your thoughts below, I read every comment! šŸ‘‡ @Starlink @SpaceX @elonmusk @Neuralink
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Kenneth Shock retweeted
I'm very disappointed that I never heard back from @IAmPoliticsGirl.
Replying to @EricLDaugh
@IAmPoliticsGirl, There are more than 20 of us "cyborgs" that have had our lives changed for the better by the #Neuralink BCI. I can speak clearly again, and many of us can interact with the world again through cursor control. Soon BLINDSIGHT trials will begin, restoring sight to the blind. I would enjoy reading your response. Sincerely, Cyborg21.
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Kenneth Shock retweeted
Replying to @EricLDaugh
@IAmPoliticsGirl, There are more than 20 of us "cyborgs" that have had our lives changed for the better by the #Neuralink BCI. I can speak clearly again, and many of us can interact with the world again through cursor control. Soon BLINDSIGHT trials will begin, restoring sight to the blind. I would enjoy reading your response. Sincerely, Cyborg21.
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What's your social media pet peeve? Mine is when otherwise seemingly intelligent people double down on really ignorant statements. You can show them that the sky is blue and they'll continue to insist that it is red and the devil/AI/a conspiracy is making people see blue.
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Kenneth Shock retweeted
Ken’s been practicing his new song he wrote as ALS Ambassador: ā€œSide by Side (We’re Walkin’ for a Cure)ā€ It’s got everything — heartfelt lyrics, questionable guitar chords, and a chorus that goes ā€œWe ain’t Opry stars… but we’re walkin’ real far!ā€ This is us rehearsing on the Grand Ole Opry stage (in our dreams). In real life we’ll be at the Edmonton ALS Side by Side Walk doing the actual walking part. Come join us, no singing skills required, just good vibes and strong legs! Who’s walking with Team Shock & Awe? alssocietyofalberta.akaraisi… #ALSSideBySide #Edmonton #WalkForALS #KenTheAmbassador
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Kenneth Shock retweeted
Great morning promoting the Alberta ALS Society Side by Side Edmonton walk! Ambassador @Cyborg21 got to use his voice live for the first time! Check out the coverage here: globalnews.ca/video/11876444… Let’s keep fighting this disease! šŸ’Ŗ #AlbertaALS #SideBySideWalk #Neuralink
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Kenneth Shock retweeted
Last few days have been absolutely beautiful out here… But someone (not naming names… @cyborg21 šŸ‘€) really needs to learn how to drive and talk at the same time šŸ˜‚
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I'm finally feeling better. So it's time to start planning my first AM-almost-A! Let's start with the platform. Should I stream on š•, Twitch, both, or do you have another suggestion? šŸ¤”
100% š•
0% Twitch
0% Both
0% Other (comment below)
5 votes • Final results
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1) I have big thumbs that don't work right anymore. 2) If you see any weird/out of context reposts on my account, refer to (1). #AllThumbs

ALT All Thumbs Klutz GIF

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Please let me add a huge THANK YOU to @fpg and everyone else who made this trip possible for CJ! You rock!
I'm in shock. Disbelief. I was just contacted by Miami staff to have a talk with the Neuralink site surgeon tomorrow. Because of @fpg, I will literally be able to say, "I'm coming" instead of "I understand why you need to remove me from the trial." WOW, thank you, Jesus.
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If you're looking for a good cause to support this spring/summer, my fellow cyborg needs to raise funds for his Air Ambulance ride to his next clinic visit.
Replying to @Cyborg21
I finally launched a fundraiser givesendgo.com/air-ambulance…
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Kenneth Shock retweeted
After a car accident left her paralyzed from the neck down, Audrey didn’t think she would be able to draw or paint again. 20 years later, she became the first female participant in our clinical trials. Now, she uses her brain-computer interface to create art with her mind.
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Kenneth Shock retweeted
Imagine being able to say: "I love you" for the first time in years. ā¤ļø After being diagnosed with ALS, @Cyborg21, knew he would eventually lose his voice. But at the beginning of this year, he became the 2nd participant in Neuralink's VOICE trial. Since then, he's worked alongside the Neuralink team to get a full voice back- and more importantly, not feel isolated by now communicating with his wife.
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.@IAmPoliticsGirl Question answered.
Replying to @EricLDaugh
Yes, Neuralink works. Ask me how I know, and I'll tell you. #Cyborg21 youtu.be/u8mmn9lOIyw?si=LXmX…
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I have no idea what could be done, but I'll put this out here and pray for you CJ. Maybe someone with connections or legal skills will read it? šŸ™
When I was accepted by Neuralink to come to Miami for their N1 implant, we had concerns. Because I am on a ventilator, I am not allowed to fly commercially. Ever since my accident, my only flight option has been an Air Ambulance. A one-way flight costs between $38,000-52,000, because it comes with two pilots who are both paramedics, a flight nurse, and a flight Respiratory Therapist who must constantly monitor and adjust my ventilator settings due to the thin air in-flight. They are all amazing people. Neuralink covers the costs of transportation and study-related expenses for their participants, but understandably, when I asked if they would cover this transportation, they said No. So, we began borrowing and saving for the cheapest option, $38K. We had recently purchased land for the future dream of building an accessible home for me, but we put the build on hold so we could manage this new expense. When we were halfway to our goal, we received a call from our City, notifying us that the water main in front of our new property had broken and they "are going the way of most cities now in Minnesota to make the repair the responsibility of the homeowner." I pay outrageous taxes, but the city can defer maintenance or outright cause damage, and I am to pay for the repair. The cost? $15,400. The deadline? Immediate. Because of course, who does not have $15K sitting around to cover the cost of city problems? In one day, we wiped out our entire savings for the Air Ambulance flight to Miami. We had no other options. I was either going to forfeit the Neuralink opportunity, or we were going to risk driving 1,800 miles each way for me to get the implant. We made the drive, against the recommendations of my care team at Mayo Clinic. On the way down, our van had a catastrophic failure that nearly landed me in the ER, and on the way home, as I posted previously on X, I stopped breathing and did land in the ER. Needless to say, once we miraculously made it home, my doctors were emphatic that we not repeat that trip. But I am supposed to return to Miami for my 3-month checkup next month. My only option was to use the money the State paid my wife as my PCA for 4 months to fund this trip. Except one small problem, the State failed to pay my wife for 4 straight months, because, "oops, your Case Manager messed up your funding." We reported the Manager to MN DHS, but they did nothing. Sorry guys, you're just out of $20/hour x 17 hrs/day x 4 months = $38K. Wow, that money might have come in handy. We took all of these hits and decided we are still going to get an Air Ambulance, so I took out a loan against my Tesla stock eligible for a Pledged Asset Line. Since I no longer have income but Social Security Disability, I cannot get a standard loan. I can only take out a percentage of the value of my stock, and pay it back with interest. We felt we finally made progress against the soulless, unaccountable, corrupt State of Minnesota, until we received notification from Pharmacy that my prescriptions were denied. We contacted the State: "Sorry, mistakes were made. You're not eligible for MA (Medicaid) because you're on SSDI and have to pay a spend down. What's that, you already paid the spend-down with proof, and we put into writing that you will have MA through September? We don't have the documentation, so we retroactively canceled your Medicaid without notice, including your Rx coverage, home health care, medical supplies, and the funds we promised to help you get an elevator. But if you pay $11,465 we will reinstate it for you. And then in September you will owe $22,930 to keep Medicaid. Please don't leave a message, we don't work on Fridays." Also, we were notified we owe taxes on the money that my wife did not get paid, and MN Revenue will send us to Collections if we don't pay. While the State of MN is bankrupting me, I woke up today to see that they are still handing out billions šŸ’° to those who are defrauding MA in our state. At this point, my options are to lose my critical respiratory Rx, medical supplies, PCAs, and home modifications, or lose my Air Ambulance flight and place in the Neuralink trial. So let me just take that $39,000 I need for my very life and hand it over to the politicians in the State of Fraud. Attached is one of the notices we received from MN confirming I had met my spend-down and will receive Medicaid through September. That must have been before the bills came due to pay the fraudsters. I'm not asking anyone to bother Peggie (after all, it's Friday and no public employees apparently work today), but please pray I can find a way to come up with $39K ASAP. x.com/foxnewspolitics/status…
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Kenneth Shock retweeted
We're building a surgical robot capable of reaching any brain region. The goal: a generalized neural interface to help solve any condition that originates in the brain.
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