We're helping improve access to tofersen for people living with SOD1-MND in Scotland. Too many are being prevented from accessing this treatment, and that must change. We’re partnering with @mndassoc to support people who are having to travel out their area to receive tofersen.

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The Spring sunshine is here. ☀️ For people living with motor neurone disease, getting out into the garden, enjoying the sunshine, and keeping up with hobbies can sometimes take a little extra support. That’s where our versatile Wellbeing Support Fund can make a real difference. It, for example, can help you continue the activities you love — like gardening — or help with the cost of support to maintain your outdoor space. Find out more: mndassoc.org/supportfunds

We're so sorry to hear this sad news - our sympathies are with Geoff's family and everyone @LeedsRhinos who has worked so closely with the Burrow family over so many years.

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My amazing son Jacob and his wonderful partner are running the half marathon in this year’s Rob Burrow Leeds Marathon to raise money for a charity very close to my heart: the Mel Evans MBE Foundation, which funds vital research to find a cure for MND click.contact.justgiving.com…

We're giving you the chance to win a VIP Experience for 2 at @FTLoveOfAnime! 1X photograph for 2 people, with every guest at the show 2X Weekend Diamond Entry to the event To enter... Follow @FTLoveOfAnime Like & RT this post Tag who you're going with! Comp closes 27/03

A message from Jayne, known to many of us. "Please ignore direct messages from @jaynes__world as her account has been compromised!"

This is one of the bullies that has been saying that I am faking my symptoms for financial gain and yet he is sharing “ selfies “ of his peg. It’s a stock photo from Google 😂 he has blocked me, but please be aware of his lies! 🤢 Geoff Binh

This morning, as both MP for Liverpool West Derby and Chair of the All-Party Parliamentary Group on MND, I sent a letter to the Walton Centre NHS Trust, requesting its provision of tofersen - a drug which would be life-changing for people with SOD1 MND (about 2% of the MND population). I am pleased so many of my fellow parliamentarians, both in Westminster and the Senedd, have co-signed this letter to the Walton Centre, to encourage its speciality Liverpool MND Care Centre to provide tofersen to any people in its catchment area who may need it. Tofersen is available free on the NHS. The drug is there - let’s make sure everyone can access it.

2/2 after posting this on their group this morning! 1 I’ve never had a podcast 2 I’ve never said my legs don’t work 3 I never asked either of you to join the group 4 the picture you used was two years ago 5 you have never “ called me out” 😂

Over two years ago, I was asked by James Smith to be a moderator on a support group for people with MND called “MND and beyond” I left the group in June 2024 after being bullied out by Simon Chippendale and Binh Binh (Geoff) but it seems like they are still obsessed with me 1/2

This is us, the MND Association. Renewed, united and driven every day to make change happen. Every day we support people affected by motor neurone disease, campaign for better care and fund ground-breaking research. Because with MND, every day matters.

Woman, 19, refused access to motor neurone drug hampshirechronicle.co.uk/new…

This is so needed, especially for this app😂😂😂😂😂😂😂😂😂😂😂

ON Christmas Eve 2020, young #Scottish mum Jennifer Bell lost her life to #MND. She was only 29. Following her devastating diagnosis, Jennifer spent her time making precious memories with her daughters and raising awareness of this hideous disease.... 😢 #MND #MoreNeedsDoing!

It means a lot to me to have won the money for @mndassoc in memory of dear Rob Burrow & everyone affected by that cruel disease. Thank you @FinishLineBBC & everyone who watched (Sorry if I've spoiled the result for any Finish Line fans!)

Everyone deserves a safe and suitable home, yet the DFG process takes far too long. On average, it takes around a year to fund vital home adaptations. Use our tool to email your councillor, asking them to automatically fast-track applications from people with illnesses like #MND. act.mndassociation.org/2025-…