Got slowly progressing MND. Luckier than most so have to make extra days count. I intend to! Making memories with family. Campaign, raise awareness & funds.
Joined May 2011
- Tweets 16,504
- Following 1,918
- Followers 2,193
- Likes 31,520
554 Photos and videos
Pinned Tweet
2 Nov 2025
The "clinically extremely vulnerable" with #MND & other serious conditions no longer qualify automatically for Covid booster. Totally illogical when we do qualify for flu vaccine! Pls sign petition petition.parliament.uk/petit… @cv_cev @IanByrneMP @AphraBrandreth @_Chris_Coghlan 1/2
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David Setters retweeted
Jun 5
Too many carers are being let down
by an NHS continuing healthcare
(CHC) process that is failing to fund
the right care for people with complex
health needs.
Join us in urging the UK government
to fix NHS CHC this #CarersWeek.
Sign our petition now: action.dementiauk.org/fix-nh…
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Jun 4
Huge thanks to @APPGonMND chair, @IanByrneMP for coming along to his beloved Anfield @LFC for the start of @DarbyRimmerMND #MOTD3 on Monday. Thanks for all you do to help @MNDPatients @united2endmnd in @UKParliament. @mndcampaigns @Reigatians @Redsmail
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David Setters retweeted
Jun 4
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David Setters retweeted
May 31
One more day till March of the Day III starts at @LFC. 950 take part at in our 350 mile walk around 50 football & rugby grounds over 6 days in support of @DarbyRimmerMND & @LDShospcharity. £71k pledged already.
Please donate if you can.
donate.giveasyoulive.com/fun…
#AttackMND
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May 30
united2endmnd.org/2026/05/29…
Unless this is tackled now, when the next treatment is taken to UK regulators, it will take 3 years before it is widely available. Given average survival post diagnosis is 3 years that says it all. @MHRAgovuk @NICEComms @APPGonMND @IanByrneMP 2/2 #MND
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May 30
Delayed approval of #tofersen for 2% of UK @MNDPatients who would benefit shows current @MHRAgovuk @NICEComms approval pathway is not fit for purpose for #MND & we clearly lag far behind North America and Europe.
Please read this from @united2endmnd united2endmnd.org/2026/05/29… 1/2
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David Setters retweeted
May 29
Today we raise an issue that speaks for itself. It has to be fixed otherwise the ‘hope’ for people diagnosed with MND/ALS in the UK if and when treatments are developed will be swept away in red tape.
united2endmnd.org/2026/05/29…
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May 19
Privileged to be taking part again with an amazing bunch of people in @DarbyRimmerMND March of the Day 3, @LFC to @Rob7Burrow MND Centre, Leeds..
Please donate here to help the fight against brutal #MND donate.giveasyoulive.com/fun….
May 18
Two weeks today, March of the Day III starts at @LFC and starts a 350 mile walk over 6 days around 50 grounds in support of @DarbyRimmerMND & @LDShospcharity. 850 taking part. Incl 17 former Reds.
Let’s show Darbs he will never walk alone. donate.giveasyoulive.com/fun…
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David Setters retweeted
Registration is open for the @ucl Queen Square 7th ALS/MND International Symposium, in partnership with the UK MND RI.
📅11 September
📍UCL, London and virtually
🎟️Free to register
Theme: Emerging themes in ALS/MND research and in the clinic.
ucl.ac.uk/brain-sciences/eve…
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David Setters retweeted
May 17
March of the Day III is 15 days away. Over £50k pledged already for @DarbyRimmerMND & @LDShospcharity.
- 850 people taking part
- 96 sporting celebs and ex pros
Two sports coming together to fund research into MND. All support hugely appreciated.
donate.giveasyoulive.com/fun…
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May 16
I've #justsponsored FIA -, who's fundraising for Futures for Kids on @JustGiving. Donate now justgiving.com/page/kiltchal…
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David Setters retweeted
May 13
My first post in ages on my blog on #als #mnd research, the challenges etc.
onein300.com/2026/05/13/that…
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David Setters retweeted
May 2
Where else would you go to have a chance of meeting these legends and walking with them in support of support of the most amazing group of people, the MND Community. Join March of the Day III ON June 1-6. Sign up here with your mates.
Closes tomorrow
redwoodevents.co.uk/register…
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David Setters retweeted
Traditional clinical trials are essential, but for people with #MND, years of waiting isn't an option.
@EXPERTS_ALS uses short-term biomarker studies to identify promising treatments faster. Take a look at the first wave of drugs entering the platform.
ukmndri.org/2026/04/22/blog-…
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David Setters retweeted
Apr 19
Former @Lionesses player @suesmith8 is aiming to join March of the Day III, our huge 6 day 350 mile walk around and 50 stadia for @DarbyRimmerMND & @LDShospcharity. Over 500 people including over 60 ex pros are taking part. So can you. Register here now.
redwoodevents.co.uk/register…
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David Setters retweeted
Apr 16
2 weeks left to sign up for March of the Day III, the massive 350 mile, 6 day walk around 50 footy / rugby league grounds. 60 ex pros across both sports joining with Dave Beresford, pal of Marcus Stewart, the latest. Join here to support the MND Community
redwoodevents.co.uk/register…
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David Setters retweeted
We are delighted to announce that Chartham Park Golf Club have nominated the #MND Association @MNDwestsussex as their nominated charity for 2026!
The 'Captains Drive In' was held on 22nd March, with 84 competitors launching the event in fine weather & the course in good condition
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David Setters retweeted
Apr 1
MND has no cure, yet.
Please join us and help us fund research.
@reid6peter @Realaldo474 @MCATEER4 @Robbie9Fowler @MicahRichards @JillScottJS8 @GNev2 @rioferdy5 @WayneRooney @Carra23 @themichaelowen @petercrouch @kennethdalglish @Phil_Thompson4
Apr 1
March of the Day III message from Mick McCarthy.
Come and join us on June 1-6 in support of @DarbyRimmerMND and @LDShospcharity and the MND Community as a whole. Over 50 former football and rugby league players taking part.
Register here
redwoodevents.co.uk/register…
#AttackMND
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David Setters retweeted
Apr 2
Join us now. Over 400 already signed up.
Walk with some legends.
Support the MND Community.
Register now.
It’s so important that we do all we can to support those scientists working stoically to find a cure for this horrible disease.
redwoodevents.co.uk/register…
60 days to go!… and we need YOU.
March Of The Day III is coming, get involved TODAY ❤️
🚶♂️ Join the walk
👕 Get your event t-shirt
🤝 Support two incredible charities
⏳ Registration closes April 26
👉 Sign up now: redwoodevents.co.uk/register…
@Redsmail
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David Setters retweeted
60 days to go!… and we need YOU.
March Of The Day III is coming, get involved TODAY ❤️
🚶♂️ Join the walk
👕 Get your event t-shirt
🤝 Support two incredible charities
⏳ Registration closes April 26
👉 Sign up now: redwoodevents.co.uk/register…
@Redsmail
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