@fct_pt-funded project @i3S_Uporto and @UnivAveiro. Led by @alvarofmendes and Milena Paneque. decide.i3s.up.pt/.

Joined July 2023
3 Photos and videos
We’re excited to present tomorrow at @EHPSociety! Join @MariaHenri6927 as she presents "Charting the Decision-Making Process in Family Disclosure of Genetic Risk: A Multi-Method Prospective Study." Swing by! #DECIDE_i3S #EHPS2024 #i3S @UnivAveiro @EuroHuntington
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20 Nov 2023
Last week, @MariaHenri6927 and @sofiafontdias attended the Basic and Advanced Course in Genetic Counselling (Bertinoro). It was an enriching opportunity and provided new insights, knowledge, and connections. Many thanks to the wonderful organization, faculty and colleagues!
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25 Oct 2023
Also, Milena Paneque will be presenting the poster "Deliberating genetic risks: protocol of a prospective, multi-method study on patient decision-making and disclosure from genetic counselling to the family" - chat with her to know more about DECIDE! #WCGC23 #GCchat
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25 Oct 2023
Today at #WCGC23 @sofiafontdias will be giving a pitch presentation of the poster "Communicating genetic information in families with late-onset neurological diseases: A scoping review" - don't miss it! #GCchat
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25 Oct 2023
Today at #WCGC23 @MariaHenri6927 will be giving a pitch presentation of the poster "What process studies in genetic counselling can teach us about the communication of genetic information to family members: a scoping review" - stop by! #GCchat
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25 Oct 2023
🙌🏻
Replying to @DanyaVears
@DanyaVears kicking off the World Congress in Genetic Counselling with a reflection on her impressive career conducting research through a genetic counselling lens #WCGC23 @wellcomegenome #GeneChat
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#i3S joined the efforts to raise awareness of an extremely rare disease: Phelan-Mcdermid Syndrome. Green💚remains the color of hope, so yesterday we flooded the facade with green light. Learn➕pmsf.org/ #rarediseases #phelanmcdermid #phelanmcdermid_Portugal
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16 Oct 2023
We are all set to join the #WCGC23 next week with three poster presentations lined up! Great chance to chat about communicating genetic information within families with the global #GeneticCounselling community.
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16 Oct 2023
We are all set to join the #WCGC next week with three poster presentations lined up! Great chance to chat about communicating genetic information within families with the global #GeneticCounselling community.
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DECIDE_i3S retweeted
EHA and the Moving Forward team have asked 🙋‍♂️ Christian Ballester, a Spanish Physiotherapist, Neurologist and HD family member, to share his personal experience about the impact that the discovery of the HD gene had on him, his family and his work. youtu.be/EU5fdgYHc-M

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19 Sep 2023
Brilliant initiative, with the great @annekeluc and @DrLisaBallard. So much to think about for our project!
New podcast alert!!! The Ethics Round - pulling back the curtain on the challenges of conducting ethical research in modern healthcare settings. Read more about the project and listen here: researchpodcasts.co.uk/the-e…
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19 Sep 2023
We are very much looking forward to this keynote!
Very excited to have this opportunity to reflect on how my genetic counselling training influences my research #WCGC2023 @BERG_MCRI @UniMelbMDHS
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