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Alissa Zingman MD MPH - ZebraMD @DocZing

PRISM Spine and Joint, prismsj.com, Research EDSRF.org, Hypermobility Care, Wife/Mom/CEO/Dancer. Tweets are not medical advice.

Joined August 2015
  • Tweets 3,223
  • Following 1,168
  • Followers 4,157
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Alissa Zingman MD MPH - ZebraMD@DocZing
25 Mar 2022
Full story in print today! So grateful to ⁦@people⁩ and to my pit crew/mentors/squad ⁦@asktheallergist⁩ ⁦@RuhoyMD⁩ ⁦@BluesteinLinda⁩ and Drs Francomano and Henderson. I feel very fortunate. #EDS #MCAS #POTS #InvisibleIllness people.com/health/doctor-cre…

Doctor Who Devised a Treatment for Her Rare, Painful Disease Started Clinic to Help Others

Dr. Alissa Zingman battled Ehlers-Danlos Syndrome for years before finding an effective treatment for herself and opening a clinic to help others

people.com
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#Nurses: Trying to get in touch with @NIAIDNews (a doc) emails bouncing. Presumably, operations...affected. On website directory giant list, no clue who to reach out to - decided to just look for #RN regardless of sub-specialty. Bc an RN will figure it out. THAT is nurses. 💕
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BLACK WOMEN COUNT. Are we seriously@going back to POC counting as a fraction of a person??? Is the fraction 0/3??? This is so far beyond the limits of decency. businessinsider.com/gop-sena…

Maternal death rate isn't as bad if you don't count Black women, GOP senator says

Louisiana's Bill Cassidy said the state's maternal death rate isn't so high if you "correct our population for race," Politico reported.

businessinsider.com
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Accountability matters. If this patient suffered a complication due to her surgery being interrupted, being sent home that same day, etc., the doctor has all of the liability. The insurance company has none. This can change. What are we waiting for??? x.com/BillAckman/status/1887…

Bill Ackman
@BillAckman
6 Feb 2025
Yesterday, I made a critical post about @EPotterMD and her experience with United Healthcare. I took it down when my office heard from the Clare Locke firm which represents UNH which called and stated that the doctor’s claims were not true. We have used Clare Locke and think highly of the firm. Later, the general counsel of UNH contacted our CLO and stated that Dr. Potter’s claims about being contacted during surgery and UNH denying coverage for a patient overnight post surgical stay in the hospital were false. We have asked both the Clare Locke firm and UNH for support for their claims and I have done the same with Dr. Potter. When I get to the bottom of this issue, I will report back. UNH complained to the @SECGov about my post. To be clear, we have no position of any kind, long, short or otherwise in UNH. I do, however, care about cases when insurers act inappropriately in denying coverage which is why I took interest in this issue.
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Human suffering is infinite Blame, Anger, Fear, Hatred: infinite Compassion can also be infinite Mourn each loss. Pray for each terrified/injured/hungry/sick/kidnapped/orphaned child Compassion for one need not diminish compassion for another Love & peace are not betrayals 🕊️
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CP, OCD, Cancer - imagine a cardiologist's office "not taking pts w these dx". Unthinkable. #EDS : "outside scope" used by every specialty. Abdominal pain: GI "doesn't see EDS pts". Orthostatic Intolerance: Cards says same. #MedTwitter See @TheEDSociety @Dysautonomia for CME
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It isn't a rare case - it is a common one. In our practice, we work hard to mitigate every possible risk factor that might prevent need for fusion of an unstable head-neck junction or upper spine. And sometimes we reach the end of that road. Sometimes we meet the patient late...
Beth Swanson@write4chocolate
8 Dec 2024
Replying to @write4chocolate
Thank you for all the support and care. Here’s her story once more, just in case. Sure hope the #HealthInsurance #CEOs ar #cigna #BCBS #UHC and others are reading. #CCI #POTS And again, @RepKimSchrier @PattyMurray @SenatorCantwell Wanna make a law?? huffpost.com/entry/brain-sur…
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4/ Not being able to see specialists who can really take the time to sort through the most complex cases and work collaboratively with patients on plans; Not being able to make your own choices for your own healthcare for a debilitating and life-threatening condition...
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5/5 This is fixable 1. Insurance companies are essentially organized crime - pay for protection, price escalates, protection decreases, repeat. Lose a battle, may wind up dead. #REGULATE @SenateDems 2. Physician education about #EDS, #CCI #AAI #POTS #MCAS,etc. Pretty Simple
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Reunited w friend from college who toured prismsj.com today! Me: when you found out I had EDS, did it make so much sense? Him: no, actually. I was shocked! Me: Don't you remember me having to be carried up and down stairs a lot? Him: that wasn't bc you were drunk?

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These break my 💔 but dogs can teach us so much. A person can go through this type of transition in so many ways, too. And they might look exactly the same to us before and after. Bc we can't really see someone just by looking.
Niall Harbison
@NiallHarbison
22 Aug 2024
Replying to @NiallHarbison
10 weeks apart. That was her daily life and the end of the road for Faith. Now she looks like a million dollars, has a lovely safe home to go to and her healthy is back. You just love to see it ❤️ (7/7)
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The world shows up for us sometimes. Had watched the video of this long jump and hug 2-3x already, without any background knowledge. And it felt so special. To now find out he is a double amputee Paralympian is so heart warming it almost feels selfish to be able to watch them.
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2/ NOT Labcorp's policy and asked to speak w her supervisor. She gave me a phone number I can call tomorrow and said they will throw out the blood they collected (5 tubes out of 9). I have #POTS and have made multiple visits to @labcorp without getting full labs due to...
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3/ poor ventilation, lack of temperature control, and the company discarding from their computer system any orders that were "picked" previously even if they were not actually drawn. I asked her repeatedly if she could please send the labs she drew and she asked us to leave...
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Alissa Zingman MD MPH - ZebraMD retweeted
Buitengebieden
@buitengebieden
23 Jul 2024
When the hand came out of the log I lost it.. 😂
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⁦@TheEDSociety⁩ #GLC in less than two weeks away! Please share widely. I've just learned we have a few spaces remaining in our FULL DAY PROGRAM: SUNDAY 7/21 & Peds 7/20! Register @ EDS Society website (need to create profile) Learn about Physiolign @ physiolign.com
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Remembering Leigh tonight. She should be here with us, as a practicing Orthopaedic Surgeon and inspiration to us all. Sadly, she is only the latter. Leigh Sundem Memorial Scholarship | Center for Addiction Recovery | Georgia Southern University georgiasouthern.edu/jphcoph/…

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My life will forever be divided into before and after my friend @drrachelrubin informed me about clitoral hood adhesions. Like Rachel, the vagina (colloquial usage) never ceases to amaze. Sadly, I've got my hands full w pelvic bones, ligaments, muscles, fascia!
Rachel S. Rubin, MD@drrachelrubin
22 May 2024
13 years ago I graduated medical school and more importantly I got my first iPhone 📱 And today I’m #1 trending on @BuzzFeed talking about clitoral adhesions. While it’s not the New England journal of medicine….im helping a lot of people! buzzfeed.com/meganeliscomb/c…
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I haven't been posting much - putting all my energy into prism, education, foundation, and actually putting together a local care team. Saw my new #POTS cards in Nov. called 2 wks ago for f/u. No longer seeing POTS pts. Heard today lots of pts got the notice. Pls read my rxn.
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