Joined September 2009
- Tweets 878
- Following 224
- Followers 279
- Likes 423
656 Photos and videos
Feb 3
🎉 75 years of hope, progress, and community.
From 1951 to today — 75 years of advancing care, research, and hope for Familial Dysautonomia. Thank you for being part of the journey. 💙
#FD75 #FamilialDysautonomia #RareDisease #HopeThroughResearch
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13 Sep 2025
✨ You’re Invited! ✨
Join the Goldberger family for an exclusive evening of #shopping, style & philanthropy at @aliceandolivia Madison Avenue 🌸
🛍️ 15% of your purchase will benefit @FamDys supporting longer & better lives for those living with this rare neurological disorder.
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23 Jul 2025
The 28th Annual FD Golf Classic is coming up SOON. Secure Your Spot Today! 🏌️♂️🏌️♂️🏌️♂️
bit.ly/FDgolf
#familialdysautonomia #community #raredisease #golflife #golfswing
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18 Jul 2025
FD Golf Classic is ONE month Away!!!
Register, Sponsor or Donate Today
bit.ly/FDgolf
#golf #golflife #golf4FD #jewish #familialdysautonomia #raredisease #community
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2 Apr 2025
It’s time for the Familial Dysautonomia’s 28th Annual Golf Classic, at Glen Oaks Country Club on August 18
To Register, Sponsor or Donate visit bit.ly/FDgolf
#golflife #golfcourse #silentauction #raffle #familialdysautonomia #jewish #raredisease #newyorkcity
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14 Mar 2025
We earned a 2025 Candid Platinum Seal of Transparency!
Keep up with our work in the community: tinyurl.com/fdCandid
#nonprofitprofile #familialdysautonomia #raredisease #jewish
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7 Mar 2025
FD Day will be held on Sunday, June 8
Hear from #physicians, #scientists & others collaborating to ensure longer & better lives for ppl with FD. Learn about the latest #research initiatives underway, new advances in FD medical care & more!
#familialdysautonomia #raredisease
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6 Mar 2025
We are delighted to announce that TEAMFD will participate in the 2025 #TD Five Boro #Bike Tour
Members of TeamFD are expected to:
- Fundraise a minimum of $1000 (but the sky’s the limit!)
- Have fun!!
bit.ly/FDbike
#bikelovers #nyc #sport #familialdysautonomia
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28 Feb 2025
Join the FD Family in Showing Your Stripes for Rare Disease Day TODAY!
Help raise awareness for FD by rocking your stripes too!
#FDisRare #ShowYourStripes #RareDiseaseDay #FamilialDysautonomia
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28 Feb 2025
Celebrate Rare Disease Day by Showing Your Stripes Today!
The #Zebra is the symbol for rare diseases, so wear your striped shirt, socks, suit, pjs, etc. to help raise awareness for FD!
#FDisRare #ShowYourStripes #RareDiseaseDay #FamilialDysautonomia
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7 Feb 2025
For this year's Rare Disease Day on Feb. 28th, let's proudly display our stripes to raise awareness for #familialdysautonomia
Send us your photo so we can share it on our SM platforms to promote awareness for FD bit.ly/FDisRare
#Stripes4FD #FDisRare #ShowYourStripes
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FD Foundation retweeted
4 Nov 2024
ICYMI: A number of Jewish runners supported a variety of causes at @nycmarathon. Rabbi Joshua Franklin raised funds for @FamDys, among many other runners who fundraised and supported other Jewish organizations and causes.
jta.org/2024/11/01/ny/at-the…
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19 Sep 2024
#didyouknow?
To learn more or donate visit famdys.org
#familialdysautonomia #raredisease #health #fdfoundation
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12 Sep 2024
.@famdys and @NYU Dysautonomia Center are hosting FD Day on Sunday, Sept 15.
Tune in to discover the latest research initiatives underway, new advances in FD medical care and more!
Register at famdys.org/fdday24
#fdday24 #familialdysautonomia #raredisease #jewish
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9 Sep 2024
Stay in the Loop on FD research, foundation events & community news.
Don't miss out on the chance to stay informed and entertained with our latest news.
#Newsletter #FDResearch #StayConnected #FDCommunity #fdfoundation
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6 Sep 2024
An easy way to double your contribution is through employee giving programs.
See if your employer will match your donation and double your contribution to support individuals with #FamilialDysautonomia.💙
familialdysautonomia.org/dou…
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3 Sep 2024
The FD Foundation event is almost here! Have you:
Registered?
Sent your "I'M/WE'RE WATCHING FROM" video?
Submitted your artwork?
If not, visit famdys.org/fdday24 or click our bio link to get it done. See you Sunday, September 15, 2024, from 11 AM to 2 PM EDT!
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29 Aug 2024
Send in your “I'm/We’re Watching From” video by Sept. 3!!!
We invite families and other members of our community to send in a video message to be shown during the FD Day program telling us from where YOU will be watching FD Day.
Submit video here: shorturl.at/KVaLg
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20 Aug 2024
The Foundation seeks sponsorship support. To explore sponsorship options or make a donation, you can visit the FD website famdys.org/fdday24
#sponsor #familialdysautonomia #raredisease #jewish #support #tuesdaymotivations
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17 Aug 2024
TeamFD will run 26.2 miles through all five boroughs of New York City to raise funds and awareness for the #FamilialDysautonomia (FD) community.
Support TeamFD Today!
p2p.onecause.com/fd24maratho…
#familialdysautonomia #runforlife #run #nycmarathon #tcsnycmarathon #marathon
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