I go on adventures BECAUSE I have Crohn's Disease. | Blogger | Adventurer | Patient Advocate | #SayYesMore Ambassador @yestribe
Joined September 2013
- Tweets 3,676
- Following 953
- Followers 1,399
- Likes 7,516
360 Photos and videos
Pinned Tweet
28 Apr 2019
After what Crohn's Disease has put me through in the last two years I could have easily decided to not turn up and have a 'did not start' next to my name today. Instead I have a time of 6hrs 39mins, as I got it done and finished the #LondonMarathon! đȘđ
virginmoneygiving.com/tomhouâŠ
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TheChronicAdventurer retweeted
28 Nov 2025
Crohnâs & Colitis Awareness Week is nearly here
This year weâre highlighting what it feels like to live with these conditions the symptoms, the invisible struggles and the unseen strength. Join the conversation 1â7 December crohnsandcolitis.org.uk/awarâŠ
#HowCrohnsFeels #HowColitisFeels
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TheChronicAdventurer retweeted
25 Nov 2025
Our new strategic ambition and new look were shaped by our community. Together weâve created a bold, united vision for faster diagnosis, better care and a future free from Crohnâs and Colitis. This is change driven by you, for you.
crohnsandcolitis.org.uk/our-âŠ
#Crohns #Colitis
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TheChronicAdventurer retweeted
25 Nov 2025
1 in 120 people in the UK live with Crohnâs or Colitis - lifelong, unpredictable and often misunderstood.
Weâre here to change that through research, support and bold campaigns. Crohnâs? Colitis? Weâll face it together.
crohnsandcolitis.org.uk/our-âŠ
#Crohns #Colitis
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TheChronicAdventurer retweeted
8 Oct 2025
Do you have #Crohns or #Colitis? Are you living with a #stoma or might be getting one? Do you wish to chat to others who may be going through similar experiences? You're not alone. Join us on 13th October at 6.30pm.
Register Today:Â ow.ly/Z7gZ50X8yUb
#IBD
ALT Image description: A cartoon style computer screen is displayed showing a virtual teams event. Speech bubbles read: "I want to share my stoma experience with others" "I wish to meet others who have a stoma" "I wish to hear tips for living with a stoma" The text below reads: "Sound familiar? Register today for our Living with a Stoma - Virtual Social Event 13 October 6:30pm - 8pm"
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TheChronicAdventurer retweeted
27 Jul 2025
It's home, again.
ALT European Champions!
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TheChronicAdventurer retweeted
21 Jul 2025
Iâd like to announce Iâm back on this app but since I donât pay for premium, it will be seen by 4 people. Anyway to those 4 people, I captured something amazing this month đ»
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TheChronicAdventurer retweeted
28 May 2025
Places are available at our upcoming âLiving with a Stomaâ virtual social event on Monday 2nd June at 6.30pm.
crohnsandcolitis.org.uk/virtâŠ
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TheChronicAdventurer retweeted
12 May 2025
World IBD Day is one week away! đđ
On 19th May, we stand together for the 500,000 people in the UK living with Crohnâs or Colitis.
This year, weâre talking about courage. Share what courage means to you!
For resources and ideas visit: crohnsandcolitis.org.uk/get-âŠ
#WorldIBDDay
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TheChronicAdventurer retweeted
5 Apr 2025
Still time to have your say. Please take some time this weekend to complete this survey and help decide on the priorities for research in perianal disease management and support
@StMarksHospital
@LindAlliance
@CrohnsColitisUK
@saia_ibd
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Eating disorders can affect anyone at any time - and it might not be who you expect.
This Eating Disorders Awareness Week, we want you to know you are not alone. Greater public awareness is needed. #EatingDisordersAwarenessWeek #EDAW2025 #AnyoneAnytime
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TheChronicAdventurer retweeted
22 Feb 2025
Excited to announce results of our #ADDapt trial
After 6 years and the help of 154 people with #CrohnsDisease we prove that restricting #emulsifiers improves disease
Award winning presentation from @AaronBancil at #ECCO25
Excited for next steps to help people with Crohns
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TheChronicAdventurer retweeted
18 Feb 2025
Amy Dowden has been honoured with an MBE for her work as an advocate and ambassador for Crohnâs & Colitis UK.
Read more:
dailymail.co.uk/tvshowbiz/arâŠ
#Crohns #Colitis #CrohnsAndColitisuUk #InflammatoryBowelDisease #ibd #MBE
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TheChronicAdventurer retweeted
20 Dec 2024
If any politicians care to read this then, please listen, I am a former Man Utd player and have a teammate Lou Macari, doing great work with the homeless, He will not ask but I am, give him something for his services, He is a top man who cares.
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TheChronicAdventurer retweeted
3 Dec 2024
Itâs Crohnâs & Colitis Awareness Week.
It takes guts to talk about Crohnâs and Colitis, but we can do it and break the stigma. Sending love to everybody affected by these conditions.
#CrohnsAndColitisAwarenessWeek
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TheChronicAdventurer retweeted
2 Dec 2024
People are struggling without support for far too long.
Will you join Femi in being one of the faces behind the facts? Help us highlight where improvement is needed by sharing your experiences.
Visit: crohnsandcolitis.org.uk/our-âŠ
#crohnsandcolitisawarenessweek #FaceTheFacts
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TheChronicAdventurer retweeted
1 Dec 2024
Itâs time to #FaceTheFacts and accept that change is urgently needed to fuel improvement for the half a million people living with Crohnâs or Colitis in the UK.
Visit: crohnsandcolitis.org.uk/our-âŠ
#crohnsandcolitisawarenessweek
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TheChronicAdventurer retweeted
1 Dec 2024
It's #CrohnsandColitisAwarenessWeek itâs time to #FaceTheFacts
We hear too many stories of late intervention, delayed diagnosis & emergency A&E visits. Help us drive change to ensure better quality of care and life for people with IBD.
Visit: ow.ly/2c5a50Ui59N
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TheChronicAdventurer retweeted
19 Nov 2024
Itâs #WorldToiletDay. We hear every day from people living with Crohnâs and Colitis about the challenges they face accessing toilets and how it impacts their day to day lives. We are continuing to advocate for better toilet provision across the UK: ow.ly/kzpu50U9Oyu
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TheChronicAdventurer retweeted
3 Nov 2024
Please help if you can.
lbc.co.uk/news/sarah-cunningâŠ
@LBC
2 Nov 2024
My sister Sarah Cunningham has been missing since 0230am in Camden. Last seen leaving apartment building on Jamestown Road. She was wearing a black outfit. If you have any information please let me or the police know. she has been officially reported as missing.
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