@ImmUnityCanada profile picture
ImmUnity Canada @ImmUnityCanada
Joined October 2014
  • Tweets 1,519
  • Following 227
  • Followers 591
Photos and videos
This year, the CDA Newborn Screening Advisory Panel, which includes ImmUnity Canada ED Whitney Goulstone, released recommendations for the future of this life-saving diagnostic tool in Canada. Read: cda-amc.ca/.../HC0079_NBS_Di… Watch: youtu.be/IQofqonmwVY?feature…
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We're bringing together the world's experts on immunology for presentation & discussion on topics like gene therapy, the gut microbiome, AI in medicine, & more! (in-person & virtual tickets available) Learn more and get your tickets: immunitycanada.org/conferenc…
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Meet Zeynep, a young PI patient & younger brother Efe, as they share how diagnosis & treatment has allowed Zeynep to continue doing the things she loves! Transcript: immunitycanada.org/2025/04/2… Read Power Power Superpower, written by Zeynep's mom, Funda: amazon.ca/Power-Superpower-F…
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Throughout World PI Week, we'll be highlighting patient stories from across Canada. Today, we're hearing from Wendy about her journey to diagnosis, and her life with PI. You can read her story on our website: immunitycanada.org/?p=212496… #WPIW #WorldPIWeek #immunodeficiency
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Meet Josiah! Recently diagnosed with polysaccharide antibody deficiency, he's helping his community in Hamilton, Ontario See the Unseen through awareness and fundraising for PI and plasma donation. #wpiw #WorldPIWeek #ThinkZebras #SeeTheUnseen
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A transcript is available here: immunitycanada.org/2025/04/2… . . . #wpiw #WorldPIWeek #WorldPrimaryImmunodeficiencyWeek #primaryimmunodeficiency #primaryimmunedeficiency #ThinkZebras #ThinkRare #RareDisorder #SeeTheUnseen

Josiah’s Story - World PI Week

For the last 17 years of my life, or my entire life, I have been sick all the time and I didn’t know why.

immunitycanada.org
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Happy @WorldPIWeek ! Throughout the week, we'll be highlighting a number of patient stories from across Canada. Up first is Maureen! You can read her story on our website: immunitycanada.org/2025/04/2… or watch her share at our BC Education Day: youtube.com/watch?v=qZKXDL5c…
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ImmUnity Canada retweeted
City of Brampton
@CityBrampton
22 Apr 2025
Brampton City Council proclaims April 22 to April 29 as World Primary Immunodeficiency Week. We recognize delegates from @ImmUnityCanada and their efforts in raising awareness, amplifying the voices of those affected and driving meaningful action to improve diagnosis and care.
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Register to attend this free group: us06web.zoom.us/meeting/regi…
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Researchers are seeking participants with CGD due to an NFC1 mutation. For more info, please reach out to your immunologist or contact Dr. Elie Haddad directly: elie.haddad@umontreal.ca #cgd #ChronicGranulomatousDisease #researchparticipation #studypatricipation #genetherapy
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This group is for immunodeficiency patients & caregivers (19 ) to share experiences and gain support from the safety of their own homes. Register: us06web.zoom.us/meeting/regi… #immunodeficiency #immunedeficiency #primaryimmunodeficiency #ThinkZebras #patientgroup #patientsupport 4w
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Please consider helping us create a future where all Canadians with immunodeficiency disorders have access to the resources they need to thrive. Donate Today: canadahelps.org/en/charities…
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We are incredibly saddened by the passing of Jose Drabwell, Past-President & Board Member of IPOPI Jose was a long-serving member of the PI community, uniting patients & professionals globally through her advocacy Our thoughts & condolences go out to Jose's family and friends
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Register below (free, 19 ). Atlantic: us06web.zoom.us/meeting/regi… Prairies: us06web.zoom.us/meeting/regi… Ontario: us06web.zoom.us/meeting/regi… #immunodeficiency #immunedeficiency #primaryimmunodeficiency #ThinkZebras #patientgroup #patientsupport
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What does that mean for you? Donations made between Jan 1st & Feb 28th, 2025 can be eligible for tax support for either 2024 or 2025. Want to take advantage of the extension while supporting Canadians living with immunodeficiency? Donate today: canadahelps.org/en/charities…
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Researchers at the University of Toronto want to hear from you! Interviews will explore experiences of caregiving, challenges with caring for a patient with a rare disease, & perspectives on treatment options & access. Interested? Send an email to yunting.chu@mail.utoronto.ca
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We're back with the first CommUnity Connect groups of 2025! 19 , registration required. Groups are free & you can pop in & out as you wish. BC: us06web.zoom.us/meeting/regi… Families: us06web.zoom.us/meeting/regi… #immunodeficiency #ThinkZebras #patientgroup #patientsupport
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Don't miss out on your gift in 2024! There is still time to give and get your tax receipt for 2024. Make a difference in the lives of patients and families affected by primary immunodeficiency and associated disorders in Canada: canadahelps.org/en/charities…
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We wish everyone a safe, healthy, and happy holiday and a prosperous New Year! Please note that our offices will be closed December 23rd, 2024 - January 6th, 2025. We look forward to connecting with you again in January!
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