IBPF improves the lives of those living with bipolar through programs, education and support. This account is not managed 24/7.

Joined October 2010
3,193 Photos and videos
To our United States audience, help researchers and clinicians pursue new potential treatments for serious psychiatric conditions. đź’š
Replying to @janellison
2/2 Please sign and share the petition: chng.it/xz78wPNzgj
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International Bipolar Foundation retweeted
1/2 baltimoresun.com/2024/07/09/… Today, the @baltimoresun published a letter co-authored by my husband, @DavidBaszucki, founder and CEO of @Roblox, and me, asking for a reversal of a puzzling decision by the State of Maryland to shut down promising food as medicine research for schizophrenia. "Considering the scarcity of federal funding for mental health research, privately funded studies like Kelly’s are a lifeline—not a line item. Among the dozen ketogenic diet trials for serious mental illness undertaken to date, Kelly’s work was uniquely valuable as the only study of ketogenic therapy for schizophrenia being offered to inpatients, who are often the most severely ill. As a rule, these patients cannot afford a dietitian, let alone a private metabolic psychiatrist. If Herrera Scott stands by her decision to prevent them from participating in this trial, it is unlikely they will ever have access to this potentially life-changing therapy again." Please sign the petition, above, by @ChrisPalmerMD asking Dr. Herrera Scott @MDHealthDept to reinstate this important trial led by veteran researcher Dr. Deanna Kelly @ProfDeannaK And please share this post widely so we can get the petition to 20,000 signatures. We're nearly there. Here is my original post with additional details, including a link to the Baltimore Sun's article breaking the story: twitter.com/janellison/statu….
Should government be able to shut down a privately funded clinical trial without cause? Urgent plea: If you care about people battling mental illness, please help us by signing this petition to keep a government official from shutting down a landmark privately funded inpatient trial of medical keto for schizophrenia in Maryland. Those of you who know our family's story know how personal this is for us. Our son might not be here today without medical keto therapy, and we desperately want others to have access to trials of this important treatment option. You can imagine how alarmed we are by this news as reported in @baltimoresun today: baltimoresun.com/2024/07/01/… In summary, Maryland’s Secretary of Health Laura Herrera Scott, MD, has halted a foundational ketogenic diet study among schizophrenia inpatients at the Spring Grove Hospital Center. The study is being conducted in conjunction with the Maryland Psychiatric Research Center at the University of Maryland. It is led by Professor Deanna Kelly, who has conducted more than 25 NIH and foundation-sponsored trials. Notably, this landmark trial is the only inpatient study of ketogenic therapy for serious mental illness in the United States. Halting this trial needlessly slows the progress of metabolic psychiatry research and begs the question of who has the authority to decide what science should be pursued and on what grounds. According to the Sun, the patient population at Spring Grove is “a vulnerable group of people, who often have a history of homelessness and untreated or treatment-resistant mental illnesses. Roughly 70% are Black. Many are from economically disadvantaged families or have fallen from higher socioeconomic levels due to illness or drug use.” We have to ask ourselves whether the Maryland Health Department should have the right to prevent these consenting patients from accessing new treatments through clinical research. Before the Secretary’s action, repeated attempts were made to discuss the study and its potential with Secretary Herrera Scott. Advocates, patients, caregivers, and legislators also appealed to the Secretary, asking her to reconsider the decision. The Maryland Psychiatric Society, representing 775 psychiatrists in the state of Maryland, formally requested that the research be allowed to continue: “The prospect of discontinuing essential research programs not only threatens the rights of patients but also undermines the efforts of dedicated healthcare professionals striving to provide the best possible care. The ramifications of such a decision extend far beyond the confines of these centers, impacting disadvantaged and disabled individuals across Maryland who rely on the benefits of esteemed and reliable research and clinical programs for access to innovative treatments and specialized care.” mdpsych.org/wp-content/uploa… After a 16-week review, the Health Department found no health and safety concerns and confirmed the keto trial decision was not based on human subject concerns. It was described as a “procedural” decision and appears without clear cause. I urge you to share this tweet widely and to sign the petition authored by @ChrisPalmerMD which calls on Secretary Herrera Scott to immediately reverse her decision: chng.it/xz78wPNzgj You can also contact the Secretary directly and ask her to immediately reverse her decision: Social media: Fundin Email: laura.herrerascott@maryland.gov Phone: (410) 767-4639, 1-877-463-3464 (toll-free, Maryland), tdd: 1-800-735-2258 (toll-free) Together, I hope we can persuade the secretary to overturn this decision and protect the rights of patients to access cutting-edge research.
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International Bipolar Foundation retweeted
PLEASE HELP! Sign this petition. The Maryland Health Secretary has halted an ongoing, privately-funded, inpatient study of a medical ketogenic diet for treating schizophrenia for no clear reason. People with schizophrenia deserve better treatments. chng.it/SbT7zHjNNz
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International Bipolar Foundation retweeted
3 Jul 2024
NOW OPEN: Join a new global #BIPOLAR project on Time-Restricted Eating & the Mediterranean Diet. 🥗 @calmprogram is conducting one of the largest studies on dietary interventions & bipolar disorder. Learn more and sign up today: calm.berkeley.edu/healthy-li…
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We enjoyed participating in a roundtable discussion with @weworkforhealth and @biocom to discuss the importance of California's biopharma leadership to patients and the state's economy. Thank you, @RepScottPeters, for your insight and support.
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Feeling anxiety about a potential episode? One way to ask for help from someone you trust is... "I'm feeling overwhelmed by the thought of having an episode, could we create a plan together for coping strategies or finding professional help?"
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If you're experiencing symptoms, consider seeking help from your support group or healthcare team. They're there to support you and provide valuable resources. Remember, it's okay to ask for help. You don't have to go through this alone.
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Do you have "red flags" that help you know when it is time to seek help? Thank you for sharing this with us, Ricardo!
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Living with bipolar disorder, remember that you are sufficient, your challenges are legitimate, and achieving a fulfilling life is possible.
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#TDAwarenessWeek aims to raise awareness of tardive dyskinesia (TD), a persistent movement disorder. But what happens after a person receives a TD diagnosis? Access resources for you or your loved one: bit.ly/48pzRSr @neurocrine #Screen4TD
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International Bipolar Foundation retweeted
Tardive dyskinesia (TD) is a persistent, involuntary movement disorder that is characterized by uncontrollable, abnormal and repetitive movements of the face, torso, limbs, and/or fingers or toes. Check out this video which depicts several of these movements. #TDAwarenessWeek.
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This #WorldBipolarDay, and everyday, we are #BipolarStrong. 💚🌎 Download and share our World Bipolar Day Toolkit to get involved with with our global campaign: ibpf.org/world-bipolar-day-t…
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EVERYONE is affected by mental health in some way, shape, or form. There will be good days and there will be bad days. Through it all, you will always matter. đź’š
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Seeking help for bipolar disorder is a sign of strength. It demonstrates: - The willingness to seek out uncomfortable situations and better yourself. - The courage to recognize that your mental health has impact beyond yourself. - The commitment it takes to embrace change.
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Showing kindness and understanding can make a significant difference in a person’s life. 💚
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CA is closer to reforming the prescription drug rebate system through @SenBradfordCA bill #SB873. Thank you to @asmtasha @BMaienschein @MarieWaldron75 @asmakilahweber & #CALeg Asm Health for protecting patients’ rights to affordable medications and putting #PatientsBeforeProfits!
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June is Men’s Mental Health Month. The strongest thing a man can do is seek help. The times of “get over it you’re a man” are long over. IBPF is here to support you, educate you, and provide you with resources. IBPF Men’s Corner: ibpf.org/learn/resources/men…
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To all family members and friends of those living with bipolar disorder, remember that each person's experience with bipolar disorder is unique. Open communication, empathy, and a willingness to learn and adapt are key elements in being a supportive family member or friend. đź’š
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Supporting employees with bipolar disorder: 1. Create a psychologically and socially healthy space 2. Focus on mental health 3. Promote open communication 4. Propose flexibility 5. Build teamwork 6. Encourage treatment đź’š
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