I use my account primarily for Jack's Angels for Awareness, Support, and Research for DIPG, one of the worst pediatric cancers, underfunded for research.
Listen Live bit.ly/CCTR10-26-23 to hear, "An Invitation To Write" with Susan Lataille, author of the "Shining a Light on Grief" anthology of incredibly powerful, real stories of personal healing and transformation, with Wendy Fachon, participating author :)
Neglected Diseases: Warrior Moms For Kids with DIPG/Childhood Brain Cancer Share The Truth on Story Walking Radio Hour einpresswire.com/article/739… via @ein_news
Thank you US lead Senators Marco Rubio(R-FL), Jack Reed (D-RI); cosponsors Mike Braun (R-IN), Bob Casey (D-PA), Cindy Hyde-Smith (R-MS), and Deb Fischer (R-NE)!! bit.ly/dipg-2024 Now lets get HRES416 the floortime it deserves #moonshot4kids
ALT D I P G A W A R E N E S S R E S O L U T I O N E X P O S E D
D A R E in 2024…
INSIST that our House of Representatives reexamine a 1990s House rule in light of the urgent medical needs of our children. The rule against ‘commemorative’ days was a rule against wasting time on the House floor for matters which do not serve the immediate needs of our citizens. For 8 years, this unknown-to-most and unspoken rule has ensured that, despite the efforts of bereaved parents and families of the afflicted, and 3200 more deaths from DIPG alone, the facts about childhood cancer would remain obscured. The needs of the people remain obscured amid the demands of political power and corporate greed; many of our laws are now loopholed to allow for this siphoning of power. We must begin to actively reject this trend if we wish to see our nation’s ideals to be honored and followed, if we ever expect to have sovereignty as citizens. It is up to US. Our choices matter. You matter. #Moonshot4Kids
Senator Feinstein, you will always be our Archangel of Hope... thank you for being a trailblazer for what is "meet and right"; for representing US first, people first, supporting honorable human values first. California is suffering a terrible loss. RIP
Today on Childhood Cancer Talk Radio, on Toginet dot com at 4pm ET, advocate and star podcaster Matthew Zachary joins us to share his story and the work that he does today as a leader of the Young Adult Cancer Movement.
ALT His podcast, "No More Patients with Matthew Zachary" and his organization "Stupid Cancer" continue to serve the public on the cutting edge of innovation in advocacy.
Paul Miller, advocate for children with cancer, tells it like it is LIVE and Unscripted, CC Talk Radio bit.ly/CCTR7-13-23 advocacy vs. activism...what will it be. #childhoodcancer#advocacy
Wonderful day at @DukeU Brain Tumor Center yesterday establishing collaborations with their talented brain cancer researchers & clinicians. Now off to the #InternationalDIPGSymposium to present & see all the excellent research the #DMGCollaborative has funded including @RUNDIPG💪
Yesterday the House introduced the DIPG Awareness Resolution by "The Team!" @DebDingell@RepDaveJoyce@RepMcCaul - just got word that the Senate Resolution has just been sent to be hotlined! Fingers crossed! @SenJackReed@SenMarcoRubio are again leading..THANKyou118thCongress!