Founded 2014 & Inspired by Nicci Gerrard's father, John. For the right of people with dementia to be supported by their family carers julia@johnscampaign.org.uk
Joined December 2014
- Tweets 21,973
- Following 11,440
- Followers 11,351
- Likes 21,688
609 Photos and videos
John's Campaign retweeted
Jun 9
Registering as a #carer with your GP may give you access to additional support for your physical and mental health, and help you find local support groups or respite services.
Find out more: dementiauk.org/information-a…
#CarersWeek
ALT Infographic explaining the benefits of registering with your GP: flexibility when booking doctor's appointments, support with mental health, free annual health checks, and prescriptions delivered to your home. The graphic includes icons of a heart, a clock, a location pin, and a stethoscope, all in a pink and blue colour scheme.
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Too true in England as well. Future generations will look back in horror - as we used to look back to the Victorian hospitals before Florence Nightingale. It's shameful
Regrettably, this is not an isolated incident within our emergency departments. the conditions are profoundly inhumane. Despite senior leadership within the HSE and government being fully aware of these systemic issues, vulnerable patients are still required to navigate this environment for medical assistance. The situation has deteriorated to the point where some individuals feel too ill to even risk attending an A&E.
@CarrollJennifer @roinnslainte
#Lunchtimelive #EDs #emergencyDept #Inhumane #HSE
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John's Campaign retweeted
Jun 3
Ahead of #CarersWeek next week, we'd love to hear from you. What's one thing that's made a big difference to you as a carer?
Share your answer in the comments to help inspire and support other carers. 👇
ALT Speech bubble with the text: What’s one thing that's made a big difference to you as a carer?
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Carers UK Chief Executive, @Helen_M_Walker, responds to the Second Reading of the Health Bill, calling for further clarity on whether the Single Patient Record will be made available in its entirety to unpaid carers.
Read the full response here: bit.pulse.ly/rbvfnvm97n
ALT Red background with a white text quote from Helen Walker, Chief Executive of Carers UK. It discusses the inclusion of unpaid carers in the Health Bill and the potential impact of the Single Patient Record. The Carers UK logo appears at the bottom left.
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Why does Johns Campaign matter? Thanks @SparkleLgbt and @RWT_NHS for spelling it out youtu.be/7jQ6G4xy858?si=pFqU…
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John's Campaign retweeted
If you’re interested in ‘Supporting People Living with Dementia in Extra Care Housing’ have a look at our web page to find booklets, films and an infographic adsdementiablog.wordpress.co…
ALT image showing a photo of the booklets, the infographic, and a still from one of the films, together with a QR code to take you to the web page
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John's Campaign retweeted
May 31
This is for family carers of people living with Dementia. It’s free to join.
Details below
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John's Campaign retweeted
May 30
We are proud to be supporting #BBCCaringMatters, a week long spotlight on unpaid carers across the UK. 💙
Admiral Nurse @viclyons joins others to share advice for #carers.
To speak to an Admiral Nurse like Vic for advice and support, call our Helpline on 0800 888 6678 or email helpline@dementiauk.org.
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John's Campaign retweeted
May 28
❤️ Cannot understand why it’s not already law! With all the DNR’s being foisted on people it’s more important than ever!!! @Diverse
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John's Campaign retweeted
We know the issue about it has been debated in Parliament but it seems that is as far as it's got. Care Rights says "We are campaigning for everyone to have the right to a Care Supporter when using health or care services". Seems incredible it isn't the case already. #diversealz
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Julia @JohnCampaign is incredible in the work they have done within hospitals & continues to push for the care partnership as well. But as she always says, the legal right to a #caresupporter must include ALL settings and people, the power must be with the person receiving care
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Something that most, if not all #unpaidcarers will know about #burnout - sadly they cannot just step back and take a leave of absence .......
May 22
🚨 NEW: Green MP Carla Denyer says she is taking a leave of absence due to suffering from burnout
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May 22
'Dementia Action week always inspires me to do more' writes John's Campaign ambassador Julie Allen. This year she & her colleagues @ESTNHS have been exploring barriers around meal times D I E T @https://johnscampaign.org.uk/post/dementia-action-week via @JohnCampaign
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John's Campaign retweeted
May 18
Day 1 #dementiaactionweek at #broomfieldhospital @alzheimerssoc @NHSuk #dementiacare @JohnCampaign @MSEHospitals @MSEPatientExp
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John's Campaign retweeted
May 13
On our #podcast, #MyLifeWithDementia, Elene and #AdmiralNurse Safia discuss why cultural awareness is so important to provide compassionate, person-centred #dementia diagnosis and care. 💙
Listen to the full episode now: podfollow.com/my-life-with-d…
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John's Campaign retweeted
May 7
The government’s 10 Year Health Plan sets out its vision to tackle #health inequalities, stating: ‘social justice runs through this plan.’ But what does it mean for #LGBTQ people? 1 in 8 LGBT people report unequal treatment from health care staff...🏳️🌈🏳️⚧️
kingsfund.org.uk/insight-and…
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A depressing read and yet another reminder of the variation between NHS trusts and the powerlessness of patients when system admin fails them
May 3
‘I just want to feel like me again’: the women still waiting for breast reconstruction years after lockdown | Women's health | The Guardian theguardian.com/society/2026…
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John's Campaign retweeted
May 1
This week we hosted a powerful roundtable bringing together people affected by #dementia, the Casey Commission on Adult Social Care and #AdmiralNurses.
We discussed NHS continuing healthcare and how system failures can have a profound impact on families affected by dementia.
Change can’t wait - get involved by joining our Campaign Network: dementiauk.org/get-involved/…
ALT Screenshot of a Microsoft Teams meeting with 13 people in it.
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Martha's Rule is available in every acute hospital in England.
It gives patients and their families the right to request a rapid review with a specialist team if they are worried about their or a loved one’s condition getting worse while in hospital.
➡️ england.nhs.uk/patient-safet…
ALT Photograph of two people holding hands. The text reads: 'You know yourself or your loved one better than anyone. Worried a health condition is getting worse? Talk to us.' The Martha's Rule: Detecting deterioration logo and the NHS logo are present.
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