I asked pwLC in the Fb group run by @long_covid to describe #LongCovid in single words
There was an outpouring of the most heartbreaking cries of pain and distress.
If you're minimising Long Covid, this is what you're trying to ignore, life-changing, scary, exhausting suffering
@JoPlattLeigh (Labour MP and Chair of the ME and Long Covid APPGs) spoke to @BigIssue about living with Long Covid and the urgent need for a fairer benefits system.
Read more here:
bigissue.com/opinion/living-…
1/3 ❌PIP cuts will be devastating for people with #LongCovid and #ME
Our new briefing shows these reforms will push people further from work, deepen poverty & worsen health.
We’re calling on MPs to oppose the cuts-help us flood their inboxes.
Link to briefing & how to act⬇️
ALT Blue background with white writing: PIP cuts will be devastating for people with Long Covid & ME. Read the briefing & take action. 4 logos: Long Covid Support, Action for ME, MELN, #ThereForME
At last, the @rcgp is doing some education about Hyperemesis Gravidarum. I look forward to never again hearing about a woman forced to end her wanted pregnancy because her GP refuses to prescribe antiemetics due to misguided fears and ignorance of the risks of untreated HG
We are pleased to announce appointment of Nigel Rothband as Chair of Trustees of Long Covid Support.
Nigel brings with him a wealth of expertise along with personal experience of the devastating impact of #LongCovid.
Welcome Nigel!
Read more on our website - link below⬇️
ALT Blue background with a photograph on the left of Long Covid Support’s new Chair of Trustees, Nigel Rothband. In the top right is the Long Covid Support logo. Text reads Welcome NIGEL ROTHBAND Chair of Trustees. There is a quote from Nigel which says Long Covid has deeply affected my family. My wife has been living with its devastating impact for the past five years.
I'm honoured to take on the role of Chair at Long Covid Support, and I'm committed to helping amplify the voices of the thousands affected, and to ensuring they receive the recognition, care and resources they so urgently need. Across the bottom it says Long Covid Support is a registered charity in England and Wales 1198938.
📣 1/2. Clinic Watch UK!!
Are you UK based & have you recently been notified of changes to your local #LongCovid Clinic?
If so, we want to hear about it!
🧑💻 Head to our clinics webpage & complete a simple survey - link below ⬇️
#LongCovidClinics
ALT Light background with black text saying IS YOUR LOCAL LONG COVID CLINIC CLOSING? We want to hear about it! There is also a white and orange coloured megaphone with a Long Covid Support logo on it, lying on a table.
Huge thanks to our Founding Trustee @Know_HG for presenting at the @Clinicalpcs conference on our #LongCovid clinics report produced with @LongCovidKids. Vital to ensure the many who need effective Long Covid services are heard!!
Link to our report below⬇️
#ClosingClinics
📺 1/2 Thanks to @DrDavidGK & BBC Midlands Today for covering our #LongCovid clinics report (written with @LongCovidKids) & our Trustee @Know_HG for speaking:
“These people could work - but they need medical help, they don’t need a life coach”
Report link ⬇️
#ClosingClinics
ALT Grey background with teal writing. 'Disabled, discharged and disappearing from view. A snapshot review of Long Covid services across the UK' Long Covid Support and Long Covid Kids logo. There are photos of people on the left of the image.
Segment on BBC Midlands Today covering the new report from Long Covid Support (@long_covid)
Clip 1: The NHS has closed over half of its services for #LongCOVID. The BBC found the DoH and NHS England have no idea how many clinics are still running.
French researchers analyzed blood samples from 100 Long COVID patients, 60 recovered COVID cases, and 60 uninfected controls.
They identified immune and metabolic biomarkers that diagnosed Long COVID with 99% accuracy.
croiconference.org/abstract/…
What's that, Mr Great tit? #LongCovid affects more than 400 million people worldwide? Why aren't more people tweeting about it?
(We might see quite a lot of Mr Great Tit today, they're a bit of a regular).
#LongCovidAwarenessDay2025#HorinzontalSpoonbill
H/t @pheob289
CHESHIRE & MERSEYSIDE
If you live in this area and have #LongCovid, there is a questionnaire on their website regarding services. Please complete if you can. Deadline is Sunday 16th.
cheshireandmerseyside.nhs.uk…
🚨.@AshleyDalton_MP tells @JoPlattLeigh that their stocktake of NHS #LongCovid services is complete but...
“THERE ARE NO PLANS TO PUBLISH FINDINGS”!!!
Perhaps Ashley would like to look at our own stocktake - Link below⬇️
⭐️And our full #LongCovidClinics report is out soon!⭐️
ALT Image with the words Breaking News at the top, with a gold and red circle and a spotlight. Below that is a blue background with a white rectangle on it that contains black text saying Ashley Dalton Says NO to Publishing Results of Long Covid Clinic Stocktake. In the bottom left corner is the Long Covid Support logo and in the bottom right is our website address www.longcovid.org. Across the very bottom in white it reads Long Covid Support is a registered charity in England and Wales 1198938.
ALT Copy of answer given by Ashley Dalton MP to Jo Platt MP. There is a small photo of Ashley Dalton in the top left corner. Text reads: Ashley Dalton
The Parliamentary Under-Secretary for Health and Social Care. NHS England's long COVID and myalgic encephalomyelitis, also known as chronic fatigue syndrome, stocktake aimed to collate information about service commissioning, activity, and delivery, to provide a national overview of the services commissioned by integrated care boards as part of their core activity. The stocktake was completed for an internal NHS England committee and, therefore, there are no plans to publish the findings. However, those findings did confirm the widely recognised challenges of significant variation in care delivery across England, and a lack of comprehensive activity data.
📣 1/3. Final reminder!!
Join us for the Long Covid Support Community Strategy Launch!
🗓️ Saturday 15th March 2025, 2-4pm GMT
📍 Lyric Theatre, Hammersmith AND 💻 Online
Further details and link below to register ⬇️
#LongCovid#LongCovidAwarenessDay
ALT Green background with nine large white circles on it. In the bottom left corner is a black Long Covid Support logo. In the bottom right in white text it says Coming Together.
ALT White background with two large green half circles at the left and right edges, meeting in the centre. In the bottom left corner is a black Long Covid Support logo. In the bottom right in green text it says Reflecting on Our Progress.
ALT Green background with two triangles each formed from six white circles on it. In the bottom left corner is a black Long Covid Support logo. In the bottom right in white text it says Shaping What’s Next.
This is the definitive paper on masks. Will IPC guidance change now?
The role of masks and respirators in preventing respiratory infections in healthcare and community settings | The BMJ bmj.com/content/388/bmj-2023…
Earlier this week, I attended the All-Party Parliamentary Group on Long Covid, where Long Covid Support presented a report; among the numerous recommendations, it called on the government to provide additional funding to research the effects of Long Covid,
2/ Above Trend Increase in Disability
Since 2019, the number of disabled individuals has surged beyond the expected trend by nearly 2 million. This isn't just a statistical anomaly—it's a huge indicator of a deeper, underlying health crisis.
⬇️ Don’t forget 5-year #LongCovidAwareness pins now available!
A collaboration between Long Covid Support & @LongCovidKids, the pins spotlight the 5 years of fighting for recognition, appropriate healthcare and research, and supporting each other.
Link below! ⬇️
#LongCovid
ALT Image showing a pin badge with five teal rings, with a bold '5' around it and text reading LONG COVID AWARENESS.
Surrounding the pin on grey background there is white text reading - Show you care, wear and share #LongCovidAwareness
📣New #LongCovidAwareness Pins - Available Now!
5 years fighting for recognition, support & care.
5 years of resilience, advocacy & standing together.
In collaboration with @LongCovidKids:
5️⃣ Limited Edition 5-Year Commemorative Pin
🎗️#LongCovid Awareness Ribbon Pin
Link ⬇️
ALT Image showing a pin badge with five teal rings, with a bold '5' around it and text reading LONG COVID AWARENESS.
Surrounding the pin on grey background there is white text reading - Show you care, wear and share #LongCovidAwareness
ALT Image showing a teal ribbon pin badge with white text reading LONG COVID AWARENESS.
Surrounding the pin on grey background there is white text reading - Show you care, wear and share #LongCovidAwareness