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Joined September 2023
40 Photos and videos
I’d really like to encourage anyone with #LongCovid or #MECFS to try support the @LCMEBillboards campaign. It’s very impossible and affordable to have this billboard up (in vicinity of the NIHR) on a full time basis. The artwork could update to reflect how many years
Medical Research Council responds to long-Covid criticism dlvr.it/T0fs8t
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Does anyone know why HSE guidance on CO2 monitors says they aren't suitable in workplaces with air cleaning units? It's talking about using them to measure ventilation (not proxy transmission risk) so don't understand @ukhadds @SaferAirProject @SmartAirFilters @CleanAir4KidsUK
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Is the WHO Aria tool still available? I can't access it at the usual address partnersplatform.who.int/too… @1goodtern @brownecfm @skeuomorphology

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fiphfo retweeted
I’m disabled and sick. I have epilepsy, severe ME and POTS, and an autoimmune disease. In 9 days, I will be at risk of eviction. I will have no where to go. Please, even a share could help PayPal: hannahcampjohnson Ven: hannahliz1129 CA: itsmeliz1129 gofund.me/0f48bb7b0

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Would appreciate shares and support for my friend Mari who is enduring severe ME alongside DV and continues to deteriorate. We’ve launched a GFM so she can safely escape but we need help sharing it 💜 Gofundme.com/marigfm #MEAwareness #SevereME #MECFS
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A friend's just spent 3 weeks in the ICU with covid, and got out last week. No relevant vulnerabilities & not old. Not eligible for a booster. They're lucky to have got out. I tell you this because the public seem to think this doesn't happen anymore. 10/11
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"Once we experience the benefits of clean indoor air – imagine getting through winter without needing to take time off work or school – we’ll never want to go back." What a great article by @AmandaKvalsvig Link in tweet below...
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19 Nov 2025
Question for the #MECFS community: what/who are the best resources for advocacy for someone with #severeME in an urgent situation? E. G. For helping advocate with social care & other services? TIA 🙏🏻
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Interested in contributing your expertise on health inequalities, sustainability, climate change, social care or housing? RCPE is seeking a new Lay Advisor to join our high-level group of non-medically qualified individuals who advise and guide the work of the College and its aims as set out in its strategy. Find out more and apply: rcpe.ac.uk/college/vacancies…
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17 Oct 2025
Does anyone have any advice for friend who's potentially being denied an NHS job (has already been offered) because he wears a mask to protect wider family& friends? IC policy says he can't 😫@hazardscampaign @1goodtern @SafeDavid3 @cv_cev @barryjmjones @YouAreLobbyLud 🙏
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19 Oct 2025
thanks everyone for your valuable info, i have passed it all on 🙏
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Guys this is my GofundMe, I am in the deepest trouble. 28 yo bedridden and non verbal. If you could help means a lot. Thank you! Much love!❤️ gofund.me/a8d042ec9
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The NHS must take measures to STOP Dill deteriorating - Sign the Petition! chng.it/G2VydS5fcz via @UKChange
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One of the 700 diseases linked to air pollution. @wesstreeting cleaning up the air at source has to be part of the big prevention programme otherwise it will be impossible to tackle the huge burden of ill health which is costing the tax payer £500 million a week @RachelReevesMP
31 Jul 2025
Long-term exposure to PM1 and thyroid diseases in China doi.org/10.1530/ETJ-25-0106
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1/2. The next APPG on #LongCovid meeting is taking place on 15th July 2025 at 4:15pm. Contact your MP now and ask them to attend! More info. on the APPG can be found on their webpage - link below ⬇️
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25 Jun 2025
The Royal College of Physicians has published a report and policy briefing on air pollution: rcp.ac.uk/policy-and-campaig… @CleanAir4KidsUK @hazardscampaign @cv_cev @EllaRobertaFdn @SafeAirSchoolUK @_CatintheHat

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