Our most-viewed YouTube video last month is worth another look.
"What is ME/CFS?" breaks down the core symptoms of ME/CFS, including PEM, cognitive impairment, unrefreshing sleep, and orthostatic intolerance.
Watch now: bit.ly/4fNwHhG
Orthostatic intolerance is common in ME/CFS & Long COVID, yet many patients go undiagnosed for years.
Our latest blog explains:
• Tilt Table Tests
• Active Stand Tests
• NASA Lean Tests
…and why accessible testing matters.
Read more: bit.ly/49ZOOgw
ALT Arm with blood pressure cuff and stethoscope; banner: new blog post about orthostatic intolerance testing methods.
Reminder: Long COVID's disability & suffering will be the pandemic's most devastating long-term global legacy. Neither GBD supporters nor critics anticipated its scale or included it in their policy calculus -and “let er rip” strategies prioritizing widespread exposure clearly worsen the toll. Millions affected, with real costs in lives and productivity (on top of 20 million direct deaths globally, which we should never forget or minimize). nature.com/articles/s43856-0…
Thanks for being an ally for all of us who have been dismissed, gaslit, and treated as delusional in today’s healthcare settings. Please listen to us and give us the opportunity to represent ourselves and our children on committees instead of cherry-picking mildly affected individuals or parents of mildly affected children. Here is my article, if you would like to hear directly from the perspective of a parent of a severely affected child with Long COVID.
thesicktimes.org/2026/01/13/…
I agree with this. I would add that #BrainHealth is #MentalHealth and that addressing underlying chronic illness and its metabolic, autoimmune, immunologic and environmental components is the key to improving mental health. For many people, it's not psychotherapy or SSRIs! 🧠
The artificial divide we have drawn between mental and physical health is the largest mistake in medicine.
Maintaining this divide creates stigma and worse care for all.
On ME, ME/CFS, FM awareness day I affirm my commitment to progress. We must improve access to care, treatment options and research funding. Everyone must join the effort. Worldwide.
Just a few days left to share your “This is ME” story with us.
Video or written. Anonymous welcome. Deadline: April 30.
We’d be honored to hear from you. 💙
🔗 Submit here: bit.ly/3Q4Vy5T
ALT Light blue poster reading This is ME in large script and block letters, promoting ME/CFS awareness.
Join me in an hour for @BatemanHorne virtual Coffee with a Clinician.
I, @RyanBourdo DPT and Michelle Haddad, PhD are talking about #PEM.
Specifically, what's the best way to explain PEM to your medical team? How do they document it?
Register: batemanhornecenter.org/event…
🚨NEW: Donald Trump has attacked rock legend Bruce Springsteen in a new social media post, calling him "a total loser who spews hate."
RETWEET if you stand with @Springsteen against Trump!
WATCH: The White House took down this video, but we still have it.
Trump: We can't take care of daycare. We're a big country. We're fighting wars. It's not possible for us to take care of daycare, Medicaid, Medicare, all these things.
🚨NEW: Defense Secretary Pete Hegseth has fired Army Chief of Staff General Randy George. Serving for over 40 years, George received the Purple Heart.
RETWEET if you stand with General George against Trump!
Join me and @batemanhorne on Wednesday April 8 for a Coffee With a Clinician.
We’ll be talking about PEM: how to measure it, and how to talk to your doctor about it
Register for free:
givebutter.com/Coffeewithcli…
The wars that stain the present moment with blood are the fruit of the idolatry of power and money. Let us not grow accustomed to the clamor of weapons and images of war! #Peace is not merely a balance of power. It is the work of purified hearts, of those who see others as brothers and sisters to be protected, not enemies to be defeated. #ApostolicJourneyvatican.va/content/leo-xiv/e…
I continue to follow the situation in the Middle East with dismay. Like other regions of the world, it is torn apart by war and violence. We cannot remain silent in the face of the suffering of so many defenseless victims of these conflicts. What wounds them wounds all of humanity. The death and pain caused by these wars is a scandal for the entire human family and a cry that rises to God!
🚨NEW: Former FBI Director Robert Mueller has died at the age of 81. A Purple Heart recipient in Vietnam, he dedicated his life to standing up for democracy.
RETWEET to honor Mueller’s life of service ❤️
Science around #MECFS is moving faster than ever before. Across the world, serious efforts are accelerating to understand its biology, improve diagnosis, and open paths toward treatment. Please do not lose hope. Real progress is coming, and the future holds promise. #HopeForMECFS