Joined February 2023
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How many more lives will it take before healthcare systems & governments act?
Every day without prevention, treatment, care, & #LongCovid education costs people their health, livelihoods, and futures.
Silence is not a strategy.
Inaction is costing lives globally.
#LongCovidKills
🖤🐘 Another life lost to Long Covid and medical negligence.
Rest in peace, Paola.
Long Covid death shall not be silent.
#LongCovidKills
=> The fight continues. There is so much to do, the COVID crisis is just beginning. But don't lose hope. And don’t lose your anger either.
ALT Black éléphant walking in the dark. In white : « long Covid Kills »
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International Long Covid Awareness retweeted
If schools want to improve academic performance and mental health outcomes, perhaps trying to prevent the students and staff from getting covid over and over again could help with that.
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I find it so bizarre that people think it’s more important to be shielded from the thought of bad things than to be given the tools to deal with them.
The pandemic response has been all about shielding people from anxiety rather than protecting them from a harmful virus.
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“I wear a mask because I know too much about the damage COVID and Long COVID do to our immune system and organs. Not wearing a mask would be intentionally inflicting harm on myself and others.”— Patrick Cote @PatTheSocialist, cohost, @PunchUpPod.
Interview
instagram.com/p/DZbPZNQETi3/…
ALT At work, Patrick is wearing a plaid KN95 respirator, a Harbor Freight truck cap, made a peace sign for a selfie.
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“Underneath my cosplay I always wear a mask and this time was no exception!”—Ruth dressed up as Ewok Jedi to attend the Forest Moon Festival, interviewed by @MsJulieSLam
instagram.com/p/DZRDzk-R6zb/
facebook.com/share/p/1Qd964F…
ALT At the Forest Moon Festival in Humboldt, CA, Ruth (@r2inatutu) dressed up as Ewok Jedi, wore a 3M N95 under the cosplay. She took off the Jedi’s head for a selfie.
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“Long COVID ripped my life apart, leaving me with confusion, frustration, and pain. Masking and pacing are the most helpful tools in my tool belt.”— Tank Prusha, a trans photographer/filmmaker, an Omicron Long Hauler, interviewed by @MsJulieSLam.
instagram.com/p/DZUuCJoRMgf/
ALT Tank Prusha (@lab_rat_tank), a trans photographer/filmmaker, wearing a 3M Aura N95 respirator, a cap, a T-shirt with graphic, cross-strapped with camera equipment, and holding a handy camcorder with his right hand.
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Jun 6
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Jun 6
If you have Long Covid or Covid Vaccine Injury and need surgery or a surgical procedure involving anesthesia, please share this with your care team!
Bookmark for future access.
X deprioritizes posts that link outside the platform, and I want as many people as possible to see this, so the link will be in the comments.
@dryostradamus
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that's me !!!!!!!! 🥹
Jun 5
After experiencing long COVID, Madeline Blair is building a global poetry community rooted in disability justice. cbsloc.al/43cAvBJ
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International Long Covid Awareness retweeted
URGENT ACTION!!! 🚨
DEADLINE June 11th:
FDA is requesting public comments regarding repurposed drug research. Long Covid is desperately in need of research like this. LCAP wrote A National Treatment and Research Agenda for Long Covid to advocate for developing and repurposing drugs for LC. You can personalize your comment, but we give permission to use our book as the attachment. You can download our book for free as a pdf and attach it to your submission. Many antivirals and immune modulating drugs are listed with citations. We originally submitted these to NIH RECOVER, but FDA is a different department, giving access and priority to drugs for trials. They need to hear from the LC community! This may be our only chance during this administration.
Links to FDA comment site and LCAP's book in next post...
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Long COVID: Is Your Pancreas at Risk?
New data shows the "Long COVID Pancreas" is a serious reality for many.
A few COVID survivors have shared their hope for more research on this.
instagram.com/p/DZLgWtjx-on/
facebook.com/share/p/17YZNHJ…
Please read and share. THX
#LongCOVID #Diabetes
ALT Visual, a picture of the pancreas in the center of a body. Long COVID: Is Your Pancreas at Risk? New data shows the "Long COVID Pancreas" is a serious reality for many.
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Ignorant scientists just dropped a 'post-pandemic diabetes' paper that pretends COVID-19 vanished in 2023.
Title screams “COVID-19’s Lasting Impact” yet the entire analysis dodges the elephant:
→ SARS-CoV-2 is causing new-onset diabetes in millions,
→ Science papers: 1.37% incidence in infected patients, 40% higher risk persisting 3–12 months, beta-cell destruction, chronic inflammation,
Global Burden of Disease (GBD) numbers didn’t magically accelerate, because of the “pandemic,”
SarsCoV2 is still driving them,
Calling it “post-pandemic era” while ignoring the active viral trigger isn’t science, this is wilful blindness,
This is how you gaslight a global metabolic catastrophe!😡
Wake up!!
#COVIDDiabetes #ScienceFail
mdpi.com/2673-3986/7/3/77
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The concept of Long Covid covers a broad range of biological abnormalities not because it's "vague", as some erroneously claim. It does so because SARS-CoV-2 infection can affect the whole body from "head to toe". Multi-system pathology is an hallmark of the disease
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Jun 1
This is an absolutely garbage article attempting to relaunder a bunch of pseudoscience. The fact that WIRED would publish something as ignorant as this is really disturbing.
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May 26
Know anyone who participated in this trial?
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There are MILLIONS of people who could be saying and doing constructive things about the Covid pandemic, to reduce harms, but it's all left to a bunch of mostly disabled people on Twitter.
There are days where that imbalance really pisses me off.
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Long Covid is not "baffling" at all. There are thousands of publications which show multi-system pathology across all body systems, including extensive evidence of organ damage. The scientific and clinical evidence is undeniable and should be reported about accurately
Six years since the height of the pandemic, the scientific community remains baffled by long Covid. But there might finally be a way forward for long Covid treatment—if only you were allowed to talk about it.
wired.com/story/the-painful-…
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💙 Healthcare worker with #LongCovid and working (or planning a return to work)?
Join our evening peer support group on Thurs 4 June, 7pm.
This month: sharing experiences of reasonable adjustments at work.
🔗 Join here:
teams.microsoft.com/meet/363…
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"Many patients with long COVID are already receiving care but are not being recognized as having the condition. These patients are not absent from clinical care; they are absent from the diagnostic code that would identify them as long COVID patients"
cidrap.umn.edu/covid-19/long…
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I had cardiopulmonary collapse from acute asymptomatic in spring of 2020.
2022 I was just starting to feel okay and acute asymptomatic/collapse happened again.
2024 only partially recovered when acute symptomatic tested positive and gave me diabetes & hypertension.
Cumulative.
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“After a truly “mild” COVID infection in 2022, we had cardio-pulmonary symptoms persist for 6 months…” Brian and Britt @bduff9 #MaskUp especially at the “Big 3”. They were interviewed by @MsJulieSLam at a @PosDevNYC event.
instagram.com/p/DZBqQGjRPq5/
facebook.com/share/p/18scDCF…
💗😷
ALT Both Britt and Brian are wearing black BNX N95 respirators installed with sip valves. They posed for Julie Lam who writes for MaskTogetherAmerica at the @PositiveDevianceNYC Vinyl Music party where everyone is required to wear a respirator while having a fun time.
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