Living with MS and RA. Patient Advocate/Activist. Writer. Musician. BikeMS Cyclist. RA and MS Community Leader and Moderator.
Joined January 2009
- Tweets 5,966
- Following 2,002
- Followers 4,350
- Likes 1,112
206 Photos and videos
This year marks the 10th anniversary of the Humana Game Changer program—a way for us to spotlight National Senior Games athletes who break senior stereotypes, exemplify healthy aging and provide encouragement and inspiration for all to live a healthy and active lifestyle.
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12 Oct 2022
I received my 50th infusion of #Rituxan, the monoclonal antibody therapy that depletes b-cells. 13 years on RTX so far. It is working quite well to keep my RA and MS in check. #takethatms #multiplesclerosis #rheumatoidarthritis #infusionsrock
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12 Oct 2022
I still have symptoms and struggle with overwhelming fatigue. But I am doing really well and plan to continue sitting in the infusion chair 4 times each year for many years to time. #fatiguesucks #butyoudontlooksick #chroniclife #winning
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12 Oct 2022
I still have symptoms and struggle with overwhelming fatigue. But I am doing really well and plan to continue sitting in the infusion chair 4 times each year for many years to come. #fatiguesucks #butyoudontlooksick #chroniclife #winning
2 Aug 2022
I meant every word when I wrote it, and still do!
2 Aug 2022
Pain is pain! When we are in the middle of it, we don’t really care so much what is causing it, we just want it to be gone. multiplesclerosis.net/?p=446… #ms #MultipleSclerosis
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21 Jul 2022
I'm a fan of black beans and a fan of sweet potatoes. What do you think about putting them together? We may try this once temps drop again.
@lkay54 @CathyChes @DanJenDig @TheGirlWithMS @sboston_pr @AaronBosterMD @MustStopMS @pettigrew66 @TheSeatedView @chroniceileen
Chef Nino’s Sweet Potato and Black Bean Chili is packed full of antioxidants, plant-based protein and diabetes superfoods. Bonus: Learn how to safely cut a sweet potato as Chef Nino heats up the kitchen at our NOLA #NeighborhoodCenter 💚 → huma.na/3IMeLBu
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Chef Nino says, “Get to cooking!” Bursting with flavor, Southwest Organic Chicken Fajita Sauté is on the menu at our NOLA #NeighborhoodCenter as Chef Nino encourages getting healthier one ingredient at a time. 🥗 → huma.na/3yW9Af1
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Lisa Emrich retweeted
9 Jul 2022
B cell repopulation dynamics and drug pharmacokinetics impact SARS-CoV-2 vaccine efficacy in anti-CD20-treated multiple sclerosis patients - PubMed pubmed.ncbi.nlm.nih.gov/3580…
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Lisa Emrich retweeted
13 Jun 2022
MS diagnosis Journey podcast now has 13 episodes to hear. Please check it out at buzzsprout.com/1822095
Hear from these people - @stevedomino @LisaEmrich @pettigrew66 Anita Williams @dizzythedonkey Sue Casey, Shari Short, @TheMSWire 1/2
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Lisa Emrich retweeted
2 Jun 2022
The 3-m backward walk test: reliability and validity in ambulant people with multiple sclerosis - PubMed pubmed.ncbi.nlm.nih.gov/3563…
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Lisa Emrich retweeted
26 Apr 2022
#WeHaveMS community - have you caught the MS DIAGNOSIS JOURNEY podcast ? If not, start here with the introduction and listen to the stories from @stevedomino @LisaEmrich Anita Williams, @dizzythedonkey and @pettigrew66 In total there will be 30 podcasts so be sure to subscribe
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7 Mar 2022
.@RepDonBeyer @MarkWarner @TimKaine can we count on you to support the MS Research Program at the Department of Defense in FY 2023? ntlms.org/3CjIUVD #MSActivist #MSResearch
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7 Mar 2022
.@RepDonBeyer @MarkWarner @TimKaine will you work with us to help make insurance and prescription drug prices more affordable and accessible? The median annual price for an MS disease modifying therapy: $94,000! ntlms.org/3hDLI6t #MSActivist
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Lisa Emrich retweeted
13 Aug 2021
Population of immunocompromised people who could be a candidate for a COVID-19 booster shot per the CDC. This would presumably apply to many people with MS taking DMTs such as b-cell depleters (ocrevus, rituximab, kesimpta), Lemtrada, S1P receptor modulators (gilenya, mayzent)
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Lisa Emrich retweeted
14 Aug 2021
The effect of SARS-CoV-2 on the nervous system: a review of neurological impacts caused by human coronaviruses - PubMed pubmed.ncbi.nlm.nih.gov/3438…
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6 Jun 2021
I'm honored to be nominated for Best in Show: Community in the 10th annual #WEGOHealthAwards . Thank you! If you'd like, you can add your own nomination here: wegohealth.com/Lisa_Emrich/a…
#MSAdvocate #RAAdvocate #ChronicIllness #MultipleSclerosis #RheumatoidArthritis
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Lisa Emrich retweeted
4 May 2021
People with MS make hard choices every day to be able to afford their MS meds. Time for Congress to act to make meds more affordable and the process simple and transparent.
4 May 2021
Thank you @LisaBRochester @EnergyCommerce for highlighting what patients like #MSActivist Therese have had to give up in order to afford their medications. The @mssociety surveyed people living with MS and this is what we found:
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12 Apr 2021
FUNDRAISING WEEK!! I'm riding in the 2021 BikeMS Chesapeake Challenge—My 6th #BikeMS event!! #IRideWithMS to support MS research. Please make a donation or join my team! bit.ly/LisaBikeMS2021
— Donations support @mssociety. Thank you!!
ALT Cycling jersey with words "I Ride with MS"
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9 Apr 2021
Neuroplasticity rocks and music therapy is about more than singing!! How Gabby Giffords is using music to rewire her brain youtu.be/5br4CpdK0nw via @YouTube
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Lisa Emrich retweeted
8 Mar 2021
Join us for our 30th annual Public Policy Conference. Learn about key issues & raise awareness about the needs of people affected by MS, educate public officials & drive change on federal policies & programs that benefit people with MS and their families. ntlms.org/PPC2021
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