Established in 2006, Liverpool GenerationR YPAG and Parent, Carer Research Forum set up to inform the design and delivery of paediatric health research.
GenerationR Liverpool gives young people, parents and carers a voice in research. From PhD studies, to clinical trials, we want to help make research better for all. Get in touch if you'd like to join one of our meetings! Jenny.ainsworth@liverpool.ac.uk #WhyWeDoResearch
A lesson for others to learn from @eular_org - demonstrate your commitment to true collaboration with patients by having patients involved at every level of your organisation - including at the board level. This is how we truly deliver change - for and with patients! #EULAR2024
In honor of @WORDDay_org 2024 🌍, the PReS cSLE Working Party, which I'm proud to chair, has officially joined social media! 🎉 Our team of experts from the clinical, research, and education committees, has come together to deliver a #WORDday2024 message 👇to spread awareness! 🤝
Sign up to watch our free #WORDDay2024 webinar and ask questions to our panel of amazing young people as they talk about their experiences of living with a rheumatic condition and share their struggles, strategies and successes.
Has your child been diagnosed with #arthritis or a musculoskeletal (MSK) condition leaving you with questions? Here's some tips and advice for parents and carers from Dr Declan Jordan, clinical psychologist at @AlderHey Children's NHS Foundation Trust 👇
versusarthritis.org/news/202…
RAiISE is officially 5 years old today! Over the last 5 years, we have had the opportunity to work with so many young people, families, charities, healthcare, and education professionals, and have loved every single second! Thank you to everyone who has supported us 🧡
Are you a young person with a chronic illness? We’d love to hear from you!
Share your experiences of education or work through our latest survey: docs.google.com/forms/d/e/1F…
It's #invisibledisabilityweek and we're excited to be launching a new survey looking at the experiences of young people with chronic 'invisible' illnesses.
Follow the link below to the survey - thank you!
docs.google.com/forms/d/e/1F…
Good to be here at The Excel and looking forward to a productive day talking about how and why we need to involve patients in the design of research 😊@CarrolEnitan@shroukmessahel @CRFalderhey @AHFTResearch @GenrYPAGs
🚀Join us in supporting Professor Michael Beresford's campaign for PReS President! His research strategy is geared towards improving outcomes for children. Together, we'll set the standard in paediatric rheumatology education and research! 📚
pres.eu/about-pres/elections…#PReS2023
🌟Exciting News!🌟Prof. Michael Beresford, Director of EATC4Children, is running for PReS President!🏥. His vision puts kids at the ❤️, aiming to enhance their care & outcomes. Check out his manifesto & video: pres.eu/about-pres/elections…#PReSElections2023#ChildrensHealth🚀👦👧🌈
The best of days with some amazing families talking about their lives and experiences of acute kidney disease. Very humbling and we were all in complete awe of our young people. Lots of art fun and cake too! @DrSteveMc @CRFalderhey @Pharmaforkids