Established in 2006, Liverpool GenerationR YPAG and Parent, Carer Research Forum set up to inform the design and delivery of paediatric health research.

Joined March 2019
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Pinned Tweet
GenerationR Liverpool gives young people, parents and carers a voice in research. From PhD studies, to clinical trials, we want to help make research better for all. Get in touch if you'd like to join one of our meetings! Jenny.ainsworth@liverpool.ac.uk #WhyWeDoResearch
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@LiverpoolGenR retweeted
‘Behind every statistic is a heartbeat’ Moving patient stories from Peter, Rebecca and Trinity #eular2024
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@LiverpoolGenR retweeted
A fantastic start involving patients from the beginning 👏🏻👏🏻👏🏻
A lesson for others to learn from @eular_org - demonstrate your commitment to true collaboration with patients by having patients involved at every level of your organisation - including at the board level. This is how we truly deliver change - for and with patients! #EULAR2024
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@LiverpoolGenR retweeted
In honor of @WORDDay_org 2024 🌍, the PReS cSLE Working Party, which I'm proud to chair, has officially joined social media! 🎉 Our team of experts from the clinical, research, and education committees, has come together to deliver a #WORDday2024 message 👇to spread awareness! 🤝
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@LiverpoolGenR retweeted
A fantastic start to #WORDDay2024 at the top of the tower @RadioCity967 Thank you @cashforkids @RadioCityLeanne you made us so welcome 😍❤️
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@LiverpoolGenR retweeted
Thank you @VersusArthritis and @LUPUSUK and @raiiseuk joining us for #WORDDay2024 at @RadioCity967 and at @AlderHey It’s been an amazing day!!
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@LiverpoolGenR retweeted
The young people stole the show @RadioCity967 when we visited today😃New presenters in the making!
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@LiverpoolGenR retweeted
Mexican waves and ballon fun @AlderHey for #WORDDAY2024 with @EATC4Children @LUPUSUK @VersusArthritis 😃💗💙
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@LiverpoolGenR retweeted
Sign up to watch our free #WORDDay2024 webinar and ask questions to our panel of amazing young people as they talk about their experiences of living with a rheumatic condition and share their struggles, strategies and successes.
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@LiverpoolGenR retweeted
Has your child been diagnosed with #arthritis or a musculoskeletal (MSK) condition leaving you with questions? Here's some tips and advice for parents and carers from Dr Declan Jordan, clinical psychologist at @AlderHey Children's NHS Foundation Trust 👇 versusarthritis.org/news/202…

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@LiverpoolGenR retweeted
Happy birthday @raiiseuk what a journey ❤️
15 Nov 2023
RAiISE is officially 5 years old today! Over the last 5 years, we have had the opportunity to work with so many young people, families, charities, healthcare, and education professionals, and have loved every single second! Thank you to everyone who has supported us 🧡
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Always 😀and surround yourself with people who do the same like you ❤️
Replying to @jen_preston1
Keep flying that flag for children @jen_preston1 💪🏼
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@LiverpoolGenR retweeted
23 Oct 2023
Are you a young person with a chronic illness? We’d love to hear from you! Share your experiences of education or work through our latest survey: docs.google.com/forms/d/e/1F…
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@LiverpoolGenR retweeted
17 Oct 2023
It's #invisibledisabilityweek and we're excited to be launching a new survey looking at the experiences of young people with chronic 'invisible' illnesses. Follow the link below to the survey - thank you! docs.google.com/forms/d/e/1F…
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@LiverpoolGenR retweeted
Good to be here at The Excel and looking forward to a productive day talking about how and why we need to involve patients in the design of research 😊@CarrolEnitan @shroukmessahel @CRFalderhey @AHFTResearch @GenrYPAGs
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@LiverpoolGenR retweeted
🚀Join us in supporting Professor Michael Beresford's campaign for PReS President! His research strategy is geared towards improving outcomes for children. Together, we'll set the standard in paediatric rheumatology education and research! 📚 pres.eu/about-pres/elections… #PReS2023
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@LiverpoolGenR retweeted
🗣️Professor Michael Beresford is putting the voices of children at the heart of PReS. Let's make an impact together! Learn about his goals for a child-centered society👧🧒pres.eu/about-pres/elections… #EmpowerYouth #LeadershipInAction
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@LiverpoolGenR retweeted
📚 PReS under Professor Michael Beresford's leadership means excellence in clinical care, top-notch education, and cutting-edge research. We're raising the bar! Explore our three pillars of progress: pres.eu/about-pres/elections… #PReSEducation #ClinicalExcellence #Research
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@LiverpoolGenR retweeted
🌟Exciting News!🌟Professor Michael Beresford, Director of EATC4Children, is running for President of PReS! His vision includes strengthening our committees and supporting innovation. #MichaelBeresfordForPReS #PediatricRheumatology youtube.com/watch?v=RXzad2hj…
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@LiverpoolGenR retweeted
🌟Exciting News!🌟Prof. Michael Beresford, Director of EATC4Children, is running for PReS President!🏥. His vision puts kids at the ❤️, aiming to enhance their care & outcomes. Check out his manifesto & video: pres.eu/about-pres/elections… #PReSElections2023 #ChildrensHealth🚀👦👧🌈
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@LiverpoolGenR retweeted
The best of days with some amazing families talking about their lives and experiences of acute kidney disease. Very humbling and we were all in complete awe of our young people. Lots of art fun and cake too! @DrSteveMc @CRFalderhey @Pharmaforkids
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