Physician, passionate about people and person-centered care. Former Chief Medical and Patient Affairs Officer at UCB. Views expressed here are mine.
Joined March 2014
- Tweets 356
- Following 206
- Followers 403
- Likes 125
26 Photos and videos
5 Oct 2022
#PEOF2022 is where we actually work WITH each other to advance systematic involvement of patients in both development & care. Leaders from different stakeholders bundle brains and forces together, in a wonderful demonstration of purpose-driven equi(al)ty, diversity and inclusion.
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Lode Dewulf retweeted
28 Feb 2021
1 in 41 black males die from CRC, seeing a group of men raise a #strongarmselfie to say they are in the fight against #colorectalcancer is a picture worth sharing. Get screened! @NFLhallofFamers @jerrykelly13pga @leebrice @rogerclemens @FightCRC #CologuardClassic #Golf
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Lode Dewulf retweeted
25 Feb 2021
Patients are not hormone receptor positive. Their cancers are. Patients are not metastatic. Their cancers are. When we write like this—in conf abstracts, in manuscripts, in protocols—it is dehumanizing.
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Lode Dewulf retweeted
26 Feb 2021
🗓️Mark your calendars for the 4th edition of #PEOF 2021. Let's continue advancing #patientengagement with #leadership & #cocreation. Powered by ✅@eupatientsforum ✅@eupatients & ✅@PFMDwithPatient.
Click to find out more. patientengagementopenforum.o…
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25 Feb 2021
To all my esteemed Medial Affairs friends and (ex)colleagues: please contribute to the public consultation for the How-To Guide on Plain Language Summaries #PLS, a practical guide for multi-stakeholder co-creation. Review & contribute now. pemsuite.org/how-to-guides/
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7 Feb 2021
Now more than ever, the knowledge of when and how to engage with patients is key. Take @PFMDwithPatient 15-minute introductory training on #patientengagement (now available in 6 languages) and start your PE journey 🚀 ow.ly/qmTK30rvrm0
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18 Jan 2021
Very important topic, great intent, I support the message but no clear patient sources, input or co-authorship. How can we continue to see articles published about patients without patients?
hbr.org/2021/01/to-overcome-…
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Lode Dewulf retweeted
15 Apr 2020
Halting funding for the World Health Organization during a world health crisis is as dangerous as it sounds. Their work is slowing the spread of COVID-19 and if that work is stopped no other organization can replace them. The world needs @WHO now more than ever.
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Lode Dewulf retweeted
28 Jan 2020
Woman, mother, or working in #healthcare?
@MaternalRights & @IMIConcePTION need YOUR help! Help them generate better information about the safety of your #medicines by answering the survey.
➡️imi-conception.eu/respond/
#maternalhealth
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22 Jan 2020
Dawn P Richards: Don't call my experience a patient "story" - go.shr.lc/2NbG907 Great blog = great story? Less hung up on this particular word. Story telling remains a powerful tool to drive education, inspiration and innovation. The word SUBJECT really upsets me!
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Lode Dewulf retweeted
1 Dec 2019
"If you don’t systematically seek and use patient feedback, you are ignoring your most vital resource. And if you haven’t yet discovered the impact of peer support, open your eyes"
@alf_collins @DavidGilbert43 blogs.bmj.com/bmj/2019/11/15…
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Lode Dewulf retweeted
18 Nov 2019
Team @PFMDwithPatient is aggregating existing #patientengagement knowledge, identifying good practices & combining them before designing more accessible resources for the #patientinvolvement community.
Check out the #PatientEngagement Management Suite: bit.ly/2QwIXr5 ✅
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Lode Dewulf retweeted
19 Nov 2019
"With notable exceptions, we still pay far too little attention to patient feedback, patient experience, patient involvement and patient leadership" @alf_collins @DavidGilbert43 blogs.bmj.com/bmj/2019/11/15…
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12 Nov 2019
#EPFCongress19 Health literacy is certainly a real issue requiring improvement, but is it also the core solution or panacea, as a bit suggested? The underlying dogma is that understanding drives behavour. Evidence says it does not necessarily (smoking, lifestyle, environment).
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9 Nov 2019
One of the most frequent questions I get around the world is « Can you share some examples of good #PatientEngagement? ». Well, here is release 2.0 of the Book of Good Practices, for all of us to be inspired by. And remember: this is like wikipedia! Becau…lnkd.in/ezz3z4f
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16 Oct 2019
Proud of our new USA offices, to which we also bring our Core Values: Care, Share to Grow, Dare to Innovate and Commit to Succeed. At Servier we are all committed to work for and WITH patients, and anyone else, to deliver more therapeutic value that meets…lnkd.in/eJ_dq8g
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16 Oct 2019
Congratulations PFMD, on behalf of @Servier, proud and grateful member. We aim to continue working WITH you to create a culture of working WITH patients. #patientengagement
14 Oct 2019
"It takes a village to raise a child"
Today @PFMDwithPatient enters it's 5th year of making #patientengagement happen✅ We would like to thank all the enthusiasts for echoing our voice to involving #patients in shaping the future of #healthcare. Here's to another impactful year!
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19 Sep 2019
#PEOF2019 Bravo on double graduation today: Magda’s son & Europe’s Village on Patient Engagement.
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10 Sep 2019
Proud to be part with Servier of this global training project.
9 Sep 2019
The #Pharmaceutical industry is experiencing a cultural change from doing things FOR #patients to doing things WITH patients. Embrace the change the right way, start with the training now: patientfocusedmedicine.org/p…
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