she/her | life on pause due to severe ME & co (since 2019)♿️ land back! 🇵🇸🇨🇩🇸🇩🏳️⚧️
Joined December 2022
- Tweets 4,247
- Following 1,464
- Followers 2,618
- Likes 37,940
136 Photos and videos
👻ghost of submersibles ablaze🌊 retweeted
2 Dec 2025
Anyone anywhere can sign. Let’s try get this across the line. If we can get it done in Nz, maybe other countries will follow our lead
Myself and others with severe illness like me/CFS & LC put everything we have into this. All we ask is you sign and share
our.actionstation.org.nz/pet…
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30 Nov 2025
Over 2000 in a couple days… I am blown away. Thank you for all of the support. Please continue to donate and share!
27 Nov 2025
Please donate and share to my gofundme so that I can afford a good lawyer!
gofund.me/276ccec65
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27 Nov 2025
I can’t believe I’ve received almost 500 dollars in only a few hours! There aren’t words for how grateful I am for each and every one of you. Please continue to share/donate 🫂💗
27 Nov 2025
Please donate and share to my gofundme so that I can afford a good lawyer!
gofund.me/276ccec65
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27 Nov 2025
Please donate and share to my gofundme so that I can afford a good lawyer!
gofund.me/276ccec65
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27 Nov 2025
I don’t know how I will survive in jail with severe ME. I am facing up to 5 years. I’m extremely scared and can’t think about anything else. Last time I had a very expensive lawyer. This time I can’t afford it. I just wanted to share with everyone, if i randomly fall off the map
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27 Nov 2025
I’m probably in jail. I know how stupid I am, no one needs to tell me. I don’t remember a lot of it. I was naked and screaming apparently. The psychosis was caused by gabapentin withdrawal, but the hospital tox screen showed that I had a lot in my system as that day I was tryi-
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18 Nov 2025
Megan has been in the hospital since Nov. 8. Will respond next week if she gets out.
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5 Nov 2025
How would you feel if a family member said they were going to come wake you up at a certain time, when you have severe ME and you just spent a week in the hospital where you hardly slept or ate? I’m not going to talk to my brother anymore after this. He did something similar at-
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5 Nov 2025
the ER. I asked for him to take me home and he kept forcing me to stay there for hours. I insisted I needed to go back to my bed because I was severely overstimulated/beyond exhausted, but he forced me to wait. We were there for several hours. I don’t feel safe around him anymore
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5 Nov 2025
He also acts dismissive about my ME, but it’s so subtle I never could tell for sure what he thought. Now I’m convinced he doesn’t take my ME seriously at all. “This stuff doesn’t work on me” what?? I guess he thinks I’m being manipulative? Does he think I manipulate my aunt?
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4 Nov 2025
The hospital took my lip rings out 😫😭
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4 Nov 2025
I know they saved my life and all but at what cost 😭😭😭
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👻ghost of submersibles ablaze🌊 retweeted
3 Nov 2025
Does anyone have any stories to add to this? Sharing again as stories of people who’ve gone from extremely severe after years to a milder state gives me hope, especially when I only get progressively worse. Even moving to extremely severe A would be a welcome improvement. #MECFS
10 Apr 2024
Has anyone with #MECFS managed to move from the “extremely severe categories” to the left hand side very severe-mild after being stuck extremely severe for 2 years ?? Having one of those days. Please, no negativity or suggestions. I just want to know the answer to this. Thanks 🙏
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4 Nov 2025
What if you can’t do any of your hobbies due to your illness? Sit the fuck down, Autumn.
1 Nov 2025
If you have a mental illness or a disability and you display that on your bio go and delete that right now. Replace it with something like a hobby or a profession or something fun you like to do. If you center your identity around your illness your psyche will do insane things to try to sustain the illness. Become somebody defined by what you enjoy and love, not by what causes you pain.
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👻ghost of submersibles ablaze🌊 retweeted
3 Nov 2025
Hey everyone
We need to get a fellow disabled friend out of shadowban purgatory.
Being seen can save lives. Please share comment engage with their posts
Follow ur not already! Let’s go fam
31 Oct 2025
Literally what is the point of posting on here anymore if nobody sees it?
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3 Nov 2025
I’ve been doing rly strange things in my sleep recently (haven’t been sleeping well with CPAP) yesterday I woke up while typing something in my med diary. I remember feeling v confused about typing “Whitney” @DafoeWhitney hope you’re doing okay! Was thinking of you apparently 😅
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2 Nov 2025
I’m not as badly crashed as I thought I would be. All my lymph nodes swelled like they normally do in PEM but then nothing happened? How wild would it be if the gabapentin withdrawal cured my ME lmao. Probably cooked the virus while it was burning my nerves from the inside out.
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2 Nov 2025
i just ate 2 ice cream cones. i wonder what kind of wild antics i’ll get into next
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2 Nov 2025
And it makes it infinitely harder/impossible to get medical treatment for these things. I’ve already decided if I get cancer I’m just gonna let it take me bc I can’t get regular cancer screenings/getting regular treatments for it would be unbearable
2 Nov 2025
Not only does ME bring with it immense suffering but also makes it WAY more likely for everything to go wrong in your body (infections, ingrown nails requiring surgery, canker/cold sores) -- the treatment of which causes PEM and crashes you further. Fucking cycle from hell.
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