Joined October 2020
- Tweets 22
- Following 50
- Followers 41
- Likes 74
Photos and videos
24 May 2022
First poster presented at #ABN2022 last week sharing our study outline and group demographics. More to follow as analysis continues. Huge thanks to all participants for your time given to the study so far!
19 May 2022
Well done @ChuckiBlu presenting the @MS_Proactive project @abnconf Thanks to all our collaborators @suepavitt @DrWBRO @ETallantyre @gpeps @Suze17
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1 Nov 2021
Final month of recruitment! If you are facing #work difficulties and attend #MultipleSclerosis services at Leeds or NHNN Queen Square, please consider taking part in our #research study. More info: bepartofresearch.nihr.ac.uk/…
@Helenlouiseford @DrWBRO @LTHTNEURO @shiftms @mssocietyuk
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MS-PROACTIVE retweeted
25 Jun 2021
We need you! By joining the UK MS Pregnancy Register and answering a series of questionnaires, you can help us understand what it is like to be pregnant with MS. The findings from this study could influence how pregnant woman with MS are treated in the UK ukmsregister.org/pregnancy
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5 Sep 2021
Good luck to everyone running today! Raising funds for #brainresearch
@LTHTNEURO @Helenlouiseford @LDShospcharity
4 Sep 2021
leedshospitalscharity.enthus… Getting ready for @runforall with @LTHTNEURO @harrierrandall @LISAFAR99674858 @PharmSumrah @Maravin7 Raising funds for #brainresearch
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10 Jun 2021
Fantastic to open at UCLH this week for the study!
@Research_Neuro
10 Jun 2021
Great to recruit the first two participants today for the @MS_Proactive study at @QSMSCENTRE @UCLIoN @Helenlouiseford @mssocietyuk
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MS-PROACTIVE retweeted
18 May 2021
PLEASE SHARE ⚠️
Our A&E departments at St James’s Hospital and Leeds General Infirmary are extremely busy.
If you are unsure of the help you need, please telephone 111 for advice or find details of local walk in centres and pharmacies here: leedsccg.nhs.uk/health/servi…
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Accepting MS isn’t the same as surrendering to it ✨
This amazing article written by @DanJenDig explores how acceptance of MS is a work in progress. It doesn't have to happen overnight 🌓
Read the full article here 👉 buff.ly/37mzj24
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MS-PROACTIVE retweeted
14 Dec 2020
Working with Multiple Sclerosis (MS) During Covid-19.
Do you have MS and were working before Covid-19?
We have created a survey to explore your experiences:
nottingham.onlinesurveys.ac.…
See advert below for further information or contact me at blanca.dediosperez@nottingham.ac.uk
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MS-PROACTIVE retweeted
8 Dec 2020
COVID:19 vaccines and MS: What we know so far... mssociety.org.uk/care-and-su… via @mssocietyuk
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MS-PROACTIVE retweeted
29 Oct 2020
"It's #BlackHistoryMonth and I find myself reflecting on my own personal journey as a person of colour with MS ... Words like isolating, under represented and ignored comes to mind."
Roxanne shares what being black and living with MS means to her: mssoc.uk/3jF9qh6
ALT Image shows Roxanne sat on a bicycle and taking a selfie
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When's the right time to disclose #multiplesclerosis at work? How do you tell your boss you have MS? Should you even have to?🤔
As part of #InvisibleDisabilitiesWeek we're sharing 'Circle of Truth' which explores disclosure of MS at work.
Watch here ➡️ buff.ly/3kgSf6O
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MS-PROACTIVE retweeted
22 Oct 2020
This week is #InvisibleDisabilitiesWeek.
MS can have many symptoms - not everyone will experience all of them, and some symptoms can be hidden. Let's raise awareness - please RT!
Here's an overview of the signs and symptoms of MS: mssoc.uk/2FPnjvn #UnseenMS
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MS-PROACTIVE retweeted
18 Oct 2020
Invisible disabilities and illnesses are not black and white, there is a lot of grey matter in between that goes unnoticed. Let your story speak the rest.
#InvisibleDisabilitiesWeek #IAmInvisibleNoMore #invisibledisabilities
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MS-PROACTIVE retweeted
15 Oct 2020
Siponimod has been approved on the NHS in England and Wales, as the first-ever oral treatment for people living with active secondary progressive MS.
This is a huge step forward in the treatment of secondary progressive MS!
Read more: mssoc.uk/35eOubV
ALT Pill
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14 Oct 2020
Happy #AHPday!
AHPs including occupational therapists and physiotherapists play an important role in helping people with MS to stay in work, so we thank you!
#MSandwork #OccupationalTherapy #Physiotherapy #AHPsDay2020
14 Oct 2020
Today we're celebrating #AHPday!
AHP Day is a national event to celebrate and increase awareness of Allied Health Professionals within healthcare.
We've been asking our AHPs to tell us their five reasons why they are proud to be an Allied Health Professional - what are yours?
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MS-PROACTIVE retweeted
4 Oct 2020
The Empirical Status of Acceptance and Commitment Therapy...
"This paper reviews the meta-analytic evidence on ACT. The 20 included meta-analyses reported 100 controlled effect sizes across n = 12,477 participants." sciencedirect.com/science/ar…
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MS-PROACTIVE retweeted
7 Oct 2020
Will you be joining us for our Annual Stop MS Lecture this evening? 🔬
You’ll be hearing from leading MS researchers about the latest developments in #MSResearch – and it’s a chance to ask your MS research questions!
Watch online from 6:30PM: mssoc.uk/3nqM8yM #StopMS
ALT Brain scan
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As countries across the world move into a second lockdown, many MSers may be struggling with isolation, anxiety & depression 😔
PPE for the Mind🧠 is a course to help you build your mental resilience 💪
Check it out ➡️ buff.ly/3iwLfBb #WorldMentalHealthDay
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7 Oct 2020
Trial management group includes @Helenlouiseford (CI), @DrWBRO (PI), @KennethPakenham @laura_thompson8 @gpeps @suehpavitt @Suze17 @ChuckiBlu and Dr Mike Horton at @LeedsADRM
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7 Oct 2020
What to put for a #FirstTweet ? Perhaps an introduction!
#MSPROACTIVE is a research study based at @LeedsHospitals and funded by @mssocietyuk which aims to adapt and pilot an online version of an ACT training programme to help people with MS who want to stay in work.
#WorkandMS
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