To improve the lives of all people affected by ME/CFS and Fibromyalgia through advancing awareness, care, treatment and research.
Joined February 2018
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509 Photos and videos
Please join us for a Community Conversation about Pacing
"Managing Your Energy Envelope"
Sunday, June 28, 2026
4:00 pm ET on Zoom
massmecfs.org/events/sunday-…
#massmecfs #chronicfatigue #chronicfatiguesyndome #fibromyalgia #MECFS #longcovid #iacci #chronicillnesspacing
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Imagine you were so sick that you felt like you had the flu and you couldn't get out of bed...Every. Day.
We don’t have to imagine, it’s our reality. It’s called Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, and it affects millions worldwide.
MassMECFS.org
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Massachusetts ME/CFS & FM Association retweeted
May 9
The whole of Germany is lying down for people who have ME/CFS.
This is called the Liegenddemo and has been happening for the last several years.
It’s been going from strength to strength.
May 9
I think the rest of the world can learn a tremendous amount from what is happening in Germany around ME/CFS advocacy right now. There are demonstrations taking place in something like 40 (?) cities today alone.
My German friends, you should be extremely proud of yourselves.
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Massachusetts ME/CFS & FM Association retweeted
May 11
🌟 Celebrating Stefan Chin of @SciShow & Jaime Seltzer of #MEAction, as finalists in the #emergeaustralia #mecfs Awards for Journalism Excellence for the video Exercise Actually Makes Chronic Fatigue Syndrome Worse.
🔗 Watch: zurl.co/Rzsg7
Thank you Stefan and Jamie!
ALT Promotional graphic inviting people to join a Media Award Finalists announcement. It features two portrait photos in stylised computer windows: Stefan Chin smiling in glasses and a light checked shirt, and Jamie Seltzer wearing glasses, a cream blazer and red top. Their names appear together in a green label below. The background is bright blue with dotted accents, with a megaphone icon at bottom left and the Emerge Australia logo at bottom right.
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April showers bring May flowers, and a fresh newsletter!
News, events, and more.
Check it out!
massmecfs.org/resources/news…
#massmecfs #MECFS #MyalgicEncephalomyelitis #chronicfatigue #fibromyalgia #longcovid #iacci
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Planning Consultant Announcement
The Mass ME/CFS FM Assoc (MassME) seeks a planning consultant. After more than 40 yrs of service we stand at a crossroads. The consultant will help assess our path for evolution & sustainability
Full details here: massmecfs.org/get-involved/r…
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We heard you and we are here for you! We are now including all Northeast states in our online Meet Up group. It is free to attend, please join us!
form.jotform.com/26034646899…
#massmecfs #chronicfatigue #fibromyalgia #chronicillness #longcovid #invisibleillness #pots
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Sunday Conversations - Recording available now!
youtube.com/watch?v=iDGDWfhM…
#massmecfs #chronicfatigue #fibromyalgia #MECFS #chronicillness #longcovid
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This Sunday!
We are so happy to have Dr. Aimee Nefcy share her experience as a physician and a patient!
Please join Sunday Conversations, 3/15 @ 4pm ET.
massmecfs.org/events/sunday-…
#massmecfs #MECFS #chronicfatiguesyndome #fibromyalgia #iacci #longcovid
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March is Long COVID Awareness Month
March 15th: Long COVID Awareness Day
March 15th-21st: Long COVID Awareness Week
Check out the Long Hauler Advocacy Project 4 details
longhauler-advocacy.org/lcam…
#massmecfs #longcovid #longcovidawareness #chronicfatigue #chronicillness #MECFS #iacci
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Click here for the latest news and more!
massmecfs.org/resources/news…
#massmecfs #chronicfatigue #MyalgicEncephalomyelitis #longcovid #fibromyalgia #MECFS
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Massachusetts ME/CFS & FM Association retweeted
📢 New webinar! Dr. Liisa Selin, Dr. Ayano Kohlgruber, & Dr. Roshan Kumar will discuss "The Discovery of Target Antigens for Dysfunctional T Cells in #MECFS and #LongCOVID."
WHEN: Tuesday, April 28 @ 3:00 pm PT / 6:00 pm ET.
Register here:
ow.ly/tiNH50YmLTT
ALT Solve M.E. webinar announcement for April 28 on discovering target antigens for dysfunctional T cells in ME/CFS and Long COVID with four expert speakers.
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Grateful for this support from @PlzSolveCFS. This Catalyst Award will help us identify pathogens & autoantigens driving ME/CFS and translate these findings into biomarkers and treatments for patients.
-Liisa Selin MD, PhD, Anna Gil PhD, Roshan Kumar PhD, Ayano Kohlgruber PhD
🚨 New Catalyst Awards! Solve funds groundbreaking studies by @C_Scheibenbogen, Dr. Liisa Selin, Dr. Roshan Kumar, & Dr. Ayano Kohlgruber to advance urgently needed treatment & diagnostic research for #MECFS & #LongCovid.
Read more here:
ow.ly/8fCH50Yl4yQ
ALT Collage highlighting Solve ME/CFS Catalyst Awards honorees with portraits and their research topics on ME/CFS and Long Covid.
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We are excited to hear from Dr. Aimee Nefcy as she shares her story of being a physician & a patient! Please join us for our next Sunday Conversations, 3/15 @ 4pm ET
massmecfs.org/events/sunday-…
#massmecfs #MECFS #MyalgicEncephalomyelitis #chronicfatigue #longcovid #fibromyalgia
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Massachusetts ME/CFS & FM Association retweeted
TY for your reply! We published findings from phase 1 of our low dose rapamycin trial in the Journal of Translational Medicine here: link.springer.com/article/10…
Feb 24
The Simmaron team has a clinical trial of weekly low-dose Rapamycin.
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Good News! Recent legislation authorized an extension of many of the Medicare telehealth flexibilities through December 31, 2027.
Details here: telehealth.hhs.gov/providers…
#massmecfs #medicare #telehealth #medicaretelehealth #chronicillnessawareness
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Catch up on the latest, the Feb newsletter is out:
massmecfs.org/resources/news…
Better yet, subscribe!
massmecfs.org/resources/news…
#massmecfs #MyalgicEncephalomyelitis #MECFS #fibromyalgia #chronicillness #iacci #longcovid #chronicfatigue
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Massachusetts ME/CFS & FM Association retweeted
Looking fine ≠ feeling fine
For many people with ME/CFS and Long COVID, exertion can trigger Post-Exertional Malaise (PEM), a delayed, biological crash after even small activities.
When effort makes you worse, “pushing through” isn’t motivation. It’s misinformation.
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Massachusetts ME/CFS & FM Association retweeted
Jan 11
"We lack such treatment (for ME) not because #ME is some “weird” “mysterious” illness that can’t be understood Its because our political medical & scientific institutions have chosen to make ME the lowest-funded illness relative to disease burden by a mile
massmecfs.org/members/member…
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Massachusetts ME/CFS & FM Association retweeted
12 Dec 2025
In pre-2020 ME cases, analysis of over 7000 proteins demonstrates that exertion disrupts T and B cell signaling, IL-17 pathways, and mitochondrial metabolism in comparison to healthy sedentary controls. Protein signatures correlate with symptom severity.
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