This account is no longer active, please continue to follow our work on Instagram and Bluesky! @medicsforrare
Joined February 2014
- Tweets 4,816
- Following 2,278
- Followers 5,219
- Likes 5,960
2,179 Photos and videos
Pinned Tweet
27 May 2025
Please continue to follow our work on Bluesky and Instagram 💙
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27 Mar 2025
Today Helen is over at the @RCPCHtweets conference! If you see her make sure you say hello! #RCPCH2025
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MedicsforRareDisease retweeted
5 Mar 2025
Be #Ataxia aware at #Swansea #RareDisease Study Day - Saturday 8th March
Unlock the mysteries of rare diseases
booking link:
eventbrite.co.uk/e/swansea-r…
@SwanseaUni / @MedicsForRare #SwanseaRDStudyDay
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MedicsforRareDisease retweeted
28 Feb 2025
Read the England Rare Diseases Action Plan 2025 gov.uk/government/publicatio…
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MedicsforRareDisease retweeted
28 Feb 2025
Dr Daybell is also an ambassador for @MedicsForRare, a charity helping to drive rare disease awareness. Its campaign #ShowYourStripes on @rarediseaseday today encourages medics to wear stripey socks in support.
Read the full interview here: [5/5]
thedoctor.bma.org.uk/article…
#RareDiseaseDay2025
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28 Feb 2025
Check out our Ambassador and Paralympian legend in this piece by @Seren_Boyd @ParalympicsGB #ShowYourStripes #RareDiseaseDay
28 Feb 2025
Table tennis star @KimDaybell was at the peak of his career and preparing for his third @ParalympicsGB games...
But he shelved his sporting dreams to work full-time as a doctor in Covid and retired from his sport soon after.
Has it all been worth it? @Seren_Boyd asks [1/5]
thedoctor.bma.org.uk/article…
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28 Feb 2025
Dr Emma Huskinson is featured in the @Telegraph today about the Red Flags of Rare Disease study. While innovation in diagnostics and treatment march on healthcare professional training has been left behind. HCPs need to know when and how to suspect undiagnosed rare conditions
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28 Feb 2025
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28 Feb 2025
We have a vision of equitable healthcare for all. Our mission is to shape a medical profession that can provide timely diagnosis and excellent care to people living with rare conditions. Today is the day to raise awareness #RareDiseaseDay #ShowYourStripes
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28 Feb 2025
Our CEO, Dr Lucy McKay, had the pleasure of meeting Mr Peter Dowd MP yesterday and handed him some of our socks. Peter is the new Chair of the Rare, Genetic and Undiagnosed conditions APPG. We look forward to working with you! #ShowYourStripes #RareDiseaseDay
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28 Feb 2025
We couldn't be happier...that Ashley Dalton received her socks & chose to wear them to the @GeneticAll_UK Parliamentary Reception yesterday to mark #RareDiseaseDay. Her passionate speech was energising & we look forward to working together #ShowYourStripes Thank you Ashley!
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28 Feb 2025
Thank you to @marketingmerch for being so helpful and supportive in the creating of our beautiful campaign socks. This was a big 'step' for us and we're so glad we took it with you #ShowYourStripes
28 Feb 2025
🧦💜 This Rare Disease Day, we’re thrilled to see @MedicsForRare using their branded socks to get involved and #ShowYourStripes! 🎗️✨ Join the movement to raise awareness for rare diseases—every stripe tells a story. 💙💜💚
#RareDiseaseDay #ShowYourStripes #BrandedMerchandise
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MedicsforRareDisease retweeted
27 Feb 2025
Final countdown 🦓🧦...
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MedicsforRareDisease retweeted
11 Feb 2025
At
#Ataxia #RareDisease patient #charity we
support
#ShowYourStripes for
@MedicsForRare
#RareDiseaseDay (28th February)
Find out more at
m4rd.org/rarediseaseday2025/
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9 Feb 2025
#Whitechapel is where it all began for this charity. The founder Trustees studied medicine at The Royal London Hospital - now the Tower Hamlets Town Hall. "It is a beautiful place to study & work, with such a unique & rich history of cultural diversity" - Dr Lucy McKay, CEO
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MedicsforRareDisease retweeted
28 Jan 2025
#FindYourPower at Swansea #RareDisease Study Day - Saturday 8th March
Ready to unlock the mysteries of rare diseases?
Eventbrite / booking link:
eventbrite.co.uk/e/swansea-r…
@SwanseaUni / @MedicsForRare
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MedicsforRareDisease retweeted
10 Jan 2025
Medics for Rare Disease may be a small charity, but it is making a huge impact! Medics4RareDiseases is evolving. They are excited to announce a refresh of their strategy, a relaunch of their branding and even a new name! Read here: rarerevolutionmagazine.com/m… @MedicsForRare
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9 Jan 2025
Medics4RareDiseases is evolving. We are excited to announce a refresh of our strategy, a relaunch of our branding and a new name! We spent much of the last year working alongside our partners, @emotive__agency to ensure we are harnessing that growth! Take a look!
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10 Dec 2024
Sorry to see the Parliamentary debate become focused on genetic research, AI and university networks. Rather than carrying on the original focus of acknowledging patient experience, the need for good standards of basic level of care and HCP training @HouseofCommons #RareDisease
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10 Dec 2024
Thank you to @JimShannonMP for highlighting the challenges faced by the millions of people in the UK living with rare condition - many of which are preventable or able to be alleviated with HCP awareness #ThinkRare #RareDisease
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