Sharing my Journey of Primary Progressive Multiple Sclerosis...With a smile and a message of Hope!! We got this together!!

Joined March 2019
56 Photos and videos
Pinned Tweet
The MightyStrongMS Campaign was created for local patients. In the Inyo and Mono Counties of California. It is here to offer support and resources while on your journey. There’s nothing greater than knowing you’re not alone in this!! We are #MightyStrongMS together!!! #MSadvocate
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Love it and so excited!!🧡🧡🧡💪💪⚾️⚾️🏈🏈🏀🏀
7 Dec 2020
We are SO excited to announce our brand new MS4MS.org website will go live at the end of THIS WEEK! 💥🎉🧡
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Any big plans for you MSers this weekend? #ShiftMS/Melinda
MightyStrongMS retweeted
Make your voice heard!
Congress has until Dec 11 to fund key MS policy priorities like #MSResearch and family caregiver programs. Make your voice heard and contract your members of Congress today: p2a.co/NJEA0YJ #MSActivist @mssociety
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I hope all went well!! I just had my infusion day yesterday! #ocrevus has been a great tool for kicking MS in the behind for me. It’s helped me regain my sight almost fully back. And I am going Strong! 🧡🧡💪💪💪
My first #Ocrevus treatment for #MultipleSclerosis. 💉My name is Sadeen; I’m a pianist🎹 chef👩🏻‍🍳 PhD student📚 and I have lifelong friend called #MS that gives me special white sparkles in my brain and spinal cord. Thank you @MSTrust for looking after me.💖💖✨✨🌟🌟🧠🧠🎗🎗🧡🧡
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Hey all!! I’m hosting the ShiftMS weekend takeover!! Just getting off of work here on the west coast. And getting logged on to be able to get things Rock’in. How’s everyone doing tonight??
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Infusion Day!! Reminding MS nothing is going to stop this Warrior from kicking it down!! 👊👊 keep Rock’in and Staying MightyStrongMS 🧡🧡💪💪💪 #WeAreStrongerTogether #spreadingOrange #CureMS instagram.com/p/CIW9w4sDlfc/…

MightyStrongMS has fun Rock’in cheering on Virtual BikeMS 2020 today!! Let’s go!! Thank You Riders!! Miss seeing you all in Person!! 🧡🧡🧡💪💪🚴‍♂️🚴‍♂️ @teamferalcatz #WeAreStrongerTogether #spreadingOrange instagram.com/p/CF8FUU5DS-b/…
MightyStrongMS was out at the Encore Drive-In Kane Brown Concert!! Rock’in to some great tunes and showing MS nothing can stop life being enjoyed!!👊👊 🧡🧡🧡💪💪💪⚾️⚾️#spreadingOrange @encoredriveinnights @ms_4_ms instagram.com/p/CFpNGQgD4Go/…

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MightyStrongMS retweeted
"Living with #MultipleSclerosis is a pain. But it does not define me. Gotta lay down for a while? Talking a little funny today? Using the wheelchair today? Still the same me. It's still me inside this broken body. MS will never break the real me." ~ Ted #ThisIsMS #MSWontStopUs
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MightyStrongMS retweeted
"'You don’t look sick' is something that many people living with MS hear. Many of our symptoms are not visible for others to see and not every person experiences the same symptoms. It’s important to know that not every person with a disability looks the same." ~ Lina #ThisIsMS
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Oh Yes!!! 🧡🧡🧡🧡⚾️⚾️⚾️⚾️⚾️#spreadingOrange
14 Jul 2020
10 days until #OpeningDay! Will you be #spreadingORANGE with us?!
MightyStrongMS retweeted
Recognize the advocates and influencers showing up day after day to lead their communities and fight for their fellow patients by nominating them for the #WEGOHealthAwards. Who can you thank for sharing their health story? Nominate them now: bit.ly/3h4BA58
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Was excited and grateful to be able to share this MightyStrongMS journey...Here’s to the Hope of a CURE!! 🧡🧡🧡💪💪💪 #MSWarrior #CureMS #WeAreStrongerTogether #spreadingOrange instagram.com/p/CCZEhFwDlVC/…

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WorldMS Day 2020!! MS Awareness for every Warrior...to Cure this MonSter!! 🧡🧡🧡🧡💪💪💪⚾️⚾️⚾️#spreadingOrange #CureMS #WeAreStrongerTogether instagram.com/p/CA1S0-cD-YM/…

Infusion Day!! Showing this MS where it can Go!! #SpreadingOrange style🧡🧡🧡💪💪💪⚾️⚾️⚾️⚾️ instagram.com/p/CAgea3LA7r9/…

MightyStrongMS retweeted
18 May 2020
What a weekend! Not only did we have hundreds of people #spreadingORANGE across the world, but we also raised over $1,200 in 12 hours to support Johns Hopkins Medicine and their MS patients! THANK YOU to all who posted throughout the day to support #MSWarriors everywhere! 🧡
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MightyStrongMS retweeted
12 May 2020
Our @MS_4_MS Team wants to invite YOU to take part in the #spreadingORANGE Challenge! Check out our video below & see if you can replicate our collaborative effort in raising awareness for #MSwarriors. We hope to get @TheRock involved! What do you say Dwayne..you in? #YourWelcome
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MightyStrongMS retweeted
15 May 2020
Tomorrow is the day!! Let’s turn the internet orange in support of the over 2.5 million #MSWarriors around the world. Make a video replicating our #spreadingORANGEChallenge, or post a pic wearing orange. Tag @ms_4_ms & be sure to use the hashtag #spreadingORANGE 🧡
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