Mission MSA serves the MSA community by offering support, education, research funding, advocacy and awareness.
Joined October 2012
- Tweets 3,579
- Following 825
- Followers 1,899
- Likes 1,147
815 Photos and videos
Pinned Tweet
May 7
Following momentum from our event in 2025, we are so excited to announce the 2027 International MSA Congress is happening in Dallas, TX September 3-5, 2027.
To learn more, visit missionmsa.org/international…
#MSA2027 #InternationalMSACongress #MSACongress #MSA #multiplesystematrophy
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Jun 11
People diagnosed with multiple system atrophy (MSA) may be eligible to take part in the TOPAS-MSA Study now enrolling locally.
Learn More: topas-msa-study.com
#MSAResearchStudy #MSAResearch #MSAsupport #TOPASMSAStudy #MSATreatmentStudy #MSAStudy #MSAsymptoms #MSAawareness
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Jun 9
We’re thrilled to share our first-ever CURE-MSA Grant recipients! By uniting top #MSA Centers of Excellence, these collaborative projects aim to break down silos and accelerate a cure for #multiplesystematrophy. 🔬🧬
Read more: missionmsa.org/mission-msa-l…
#research #raredisease
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Jun 1
An MSA diagnosis can feel isolating, but no one should face it alone. In honor of her late husband, Stuart, Joy Stein is matching every donation up to $25,000 made to our Support and Education Impact Fund.
Read full story: missionmsa.org/the-reality-o…
Donate: missionmsa.org/donate
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May 29
Join Mission MSA and @CurePSP for a thoughtful webinar on choice, dignity, and end-of-life care. Reflections: A Conversation about Choice at End of Life will explore Medical Aid in Dying (MAID) through expert insight and lived experiences.
Learn more: missionmsa.org/education/#up…
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May 28
Your questions helped shape this new resource for the MSA community! Our Ask the Experts: Medicare, Medicaid & Social Security video is now available, featuring guidance from experts at the Social Security Administration and Patient Advocate Foundation: missionmsa.org/resource-libr…
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May 21
Joe Lindahl recently attended the MSA Trust Symposium, connect with the Trusts’ incredible staff, tour and learn with UCL researchers and clinicians on their MSA work, and engaged with the UCL Brain Bank who shared their operations and cutting edge research in the field.
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May 20
Today is #ClinicalTrialsDay! Join us in recognizing the researchers, clinicians, advocates, and community members moving MSA research forward.
Explore clinical trials making a difference for #multiplesystematrophy: missionmsa.org/findingclinic…
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May 12
Final day to submit your questions! Get expert guidance on Medicare, Medicaid, and Social Security benefits tailored to the #MSA community. Don’t miss your chance to ask the Social Security Administration and Patient Advocate Foundation for help.
Submit: missionmsaconnect.org/forum/…
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May 4
We’re excited to share a big milestone: MSA Connect now has over 1,000 active users! Since relaunching last August, our community continues to grow through support, resources, and real connection.
Join today: missionmsaconnect.org
Download mobile app: missionmsa.org/about-msa-con…
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Apr 30
Have questions about Medicare, Medicaid, Social Security, or long-term care planning and how they relate to #MSA?
Submit your questions for Mission MSA’s upcoming Ask the Experts opportunity by May 12, 2026: missionmsaconnect.org/forum/…
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Apr 27
We’re proud to introduce Mission MSA’s Quarterly Impact Report--a new way to provide a transparent, comprehensive view of the progress made possible by the generosity of our community.
Explore the full report for the first quarter of 2026: missionmsa.org/impact-report
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Apr 23
This #NationalVolunteerAppreciationWeek, we’re celebrating those who make our community stronger every day.
To all who give their time and care, thank you! You create connection, strengthen support, and drive progress for the MSA community.
#multiplesystematrophy #MSA
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Apr 21
A diagnosis of MSA can bring uncertainty--for individuals and care partners alike.
Our Newly Diagnosed Virtual Support Groups offer connection in small groups (8 spots each). Submit an interest form to join or be added to the waitlist: wkf.ms/4modjJC
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Apr 16
Planning ahead isn’t about the worst-case--it’s about clarity and peace of mind.
This #NationalHealthcareDecisionsDay, explore Mission MSA’s new resources to support you and your loved ones: missionmsa.org/resource-libr…
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Apr 6
Explore investigational treatment options for your loved ones or patients living with Multiple System Atrophy (MSA). The TOPAS-MSA Study is enrolling adults with MSA who can swallow and walk at least 10 meters (33 feet), with or without a cane.
topas-msa-study.com
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Mission MSA retweeted
Mar 20
Mike wrote off his stumbling, waning strength and fine motor issues to age, lack of sleep or a need for more exercise before he was diagnosed with multiple system atrophy (MSA).
MSA is a rare, progressive disease that is frequently misdiagnosed. #MSAAwareness #multiplesystematrophy #MSA #BrainHealth
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Mar 27
Mission MSA announces our 2026 Centers of Excellence--a growing global network advancing care, research, and education for those affected by multiple system atrophy (MSA).
Read the full press release: missionmsa.org/mission-msa-2…
@UBneuroscience @HcpbGroup @idibaps
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Mar 26
“His legacy lives on through the love, support, and awareness we continue to build together.”
Kara and her loved ones are just one example of many turning love into action during our Path to a Cure.
There’s still time to get involved: missionmsa.org/pathtoacure
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Mar 26
Living with MSA? A Springfield College doctoral student is studying how individuals find meaning and purpose while living with MSA. Participate in a virtual interview and receive a $25 gift card!
Contact: kromania@springfieldcollege.edu | (203) 741-8641
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