Neuroendocrine Tumor Southern Africa Support. NETSAS provides support for NETs patients and empowers patients with knowledge
Joined October 2023
- Tweets 167
- Following 73
- Followers 42
- Likes 494
23 Photos and videos
Today, 10 November is NET Cancer Day
Our message is simple
✅Easily missed. Take a closer look at neuroendocrine cancer.
9 Nov 2025
#NETCancerDay is on November 10th.
🔔Join us tomorrow to raise our voices for those living with NETs.
✅Get involved with the campaign in your language: incalliance.org/ncd-2025/cam…
✅Take the #SCAN2025 Global Survey before November 30th: incalliance.org/scan2025/
#LetsTalkAboutNETs
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➡️NETs are more common than brain, ovarian, or cervical cancer, incidences are rising
➡️We need our global community to raise awareness, improve the quality of life for NET patients to improve diagnostic times.
🗣️Easily missed. Take a closer look at neuroendocrine cancer!
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🔈Easily missed.
🔎Take a closer look at neuroendocrine cancer!
incalliance.org/ncd-2025/cam…
#NETSAS #NetCancerDay #LetsTalkAboutNETs
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NETSAS retweeted
6 Oct 2025
📢#NETCancerDay is on November 10th.
NETs are easily missed but early diagnosis is possible. 📌Please prepare to join the global NET community to speak in one global voice.
📌Check out INCA’ campaign toolkit for guidance how to get involved in NET Cancer Day: incalliance.org/ncd-2025/cam…
#LetsTalkAboutNETs
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NETSAS retweeted
14 Sep 2025
📣Patients. Caregivers. Healthcare professionals.
Together, we can transform NET care.
📌Join the #SCAN2025 Global Survey and help shape the future of diagnostics & treatment worldwide.
✅Take the survey today: incalliance.org/scan2025/
#LetsTalkAboutNETs #WeSCAN #MedTwitter
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📣 Patient Perspective talk the South African Society of Nuclear Medicine Congress. Duncan Macduff bringing human side of living with NETS to the program
➡️ Patients face real challenges on a daily basis living with NETS!
netsas.org.za/sasnm-congress…
#NETSAS #NETCancerDay
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NETSAS retweeted
5 Aug 2025
💻Check out our collections of video presentations by prominent NEN researchers to be abreast of the latest in NEN clinical trials: incalliance.org/researcher-i…
🌎Available in English with captions in French, German, Italian, Portuguese and Spanish.
#LetsTalkAboutNETs #OncTwitter
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📢The #SCAN2025 Global Survey of NET diagnostics and care around the world is open!
Please take time to respond - your responses will make an impact 💥
6 Sep 2025
📢The #SCAN2025 Global Survey of NET diagnostics and care around the world is open!
· Calling to NET patients and caregivers, and HCPs
· Available in 15 languages
Share your experience to improve NET care across the globe.
✅Take the #SCAN2025 Global Survey today: incalliance.org/scan2025/
#LetsTalkAboutNETs #WeSCAN
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#INCASummit25 is underway. Wishing all the participants a productive and connecting time together!
8 Sep 2025
#INCASummit2025
Stephanie Alband, INCA President and Pheo Para Alliance @PheoPara executive director, and Teodora Kolarova @TeodoraINCA, INCA executive director, made an overview of INCA strategy and projects and highlighted food for thought on where INCA wants to go.
#LetsTalkAboutNETs
📷Emona Tsoncheva
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NETSAS retweeted
31 Jul 2025
Obrixtamig, a DLL3/CD3 IgG-like T-cell engager for SCLC and epNECs. Just out in JCO. Clearly efficacy in these hard-to-treat cancers and larger studies ongoing will hopefully confirm that.
ascopubs.org/doi/10.1200/JCO…
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NETSAS retweeted
27 Jul 2025
NENs are often missed in general practice.
🎯The #ThinkNENs program gives you the tools to spot them early.
📌Free. Online. CME-accredited.
✅Get proficient in just 60 mins: incalliance.org/think-nens/
#LetsTalkAboutNETs
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NETSAS retweeted
20 Jul 2025
🔔Calling all #PrimaryCarePhysicians: Enroll in the free #ThinkNENs e-learning designed for busy general practitioners and get a free CME credit: incalliance.org/think-nens/
🔔Get proficient in detecting this uncommon cancer to save lives.
#LetsTalkAboutNETs #MedTwitter #EndoTwitter #LungTwitter #MedED
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NETSAS retweeted
15 Jun 2025
#PrimaryCarePhysicians are the first to see NET patients when symptoms present. Among the repetitive diagnoses of common conditions, it is difficult to suspect the uncommon.
📌We help PCPs to detect NENs with a 60-minutes e-learning and a free CME credit.
✔️Check it out here: incalliance.org/think-nens/ #LetsTalkAboutNETs
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➡️Hear real life patient stories on symptoms, diagnosis, treatments and living with NENs.
🙏@ncukcharity
New to Neuroendocrine Cancer UK? Don’t miss Season 1 of our 'Not Just NE Cancer' podcast - real stories from patients on symptoms before diagnosis life after. Hear from Maxine, Simon, Michelle, Debra & Sally.
▶️ Listen now: neuroendocrinecancer.org.uk/…
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NETSAS retweeted
10 Mar 2025
6000 newly diagnosed NENs a year in England alone. ~ 16 a day, ~ 1 every 90 minutes. Not as rare as we keep being told they are. And these figures exclude some types. buff.ly/ffdMkp8
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NETSAS retweeted
2 Jun 2025
📌Dr. Grace Kong: “The future focus should be on performing more multicenter collaborative studies on NENs.”
☑️Learn about the latest nuclear medicine clinical trials related to NENs: incalliance.org/dr-grace-kon… #LetsTalkAboutNETs #RadTwitter
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✨A call to all patients to assist with advocacy and awareness
✅ Please share this free accredited course, endorsed by WONCA with your GP, physician, radiologist and any other medical people you come across in your NENs journey 🙏
22 May 2025
Prof. Martyn Caplin: “NENs are more common than you think. The incidence is said to be now about between 6 or 8 per 100 000 population.”
👉If PCPs know about NENs, they can detect them.
✅Share with your PCP - the free #ThinkNENs CME-accredited e-learning: incalliance.org/think-nens/
#LetsTalkAboutNETs
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Time is precious, especially for NETs patients, how are you going to intentionally spend your time today?
#NETSAS
#LetsTalkAboutNETs
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Congratulations on addressing critical patient need @ncukcharity thanks for all the great work you do 🙌
16 May 2025
📌A major step in raising awareness about neuroendocrine cancer and the unmet needs of patients was made by @ncukcharity through supporting the Daily Express Cancer Care campaign.
☑️Read more about NCUK article: incalliance.org/ncuk-daily-e…
#LetsTalkAboutNETs
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