📣 Patient Perspective talk the South African Society of Nuclear Medicine Congress. Duncan Macduff bringing human side of living with NETS to the program
➡️ Patients face real challenges on a daily basis living with NETS!
netsas.org.za/sasnm-congress…
#NETSAS #NETCancerDay
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3 Sep 2025
se quiserem perceber um pouco mais os crimes que tem sido feitos netsas áreas, leiam isto.
Material circulante e produção nacional pcp.pt/node/304845
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Thanks WECAN for a really informative Patient Training Academy. Lots of great connections and learning in the advocacy, European policy, research and data space!
#NETCancerDay
#netsas
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Not many people understand the full picture when they see “healthy” looking NETs patients.
#LetsTalkAboutNETs #NETSAS
17 Mar 2024
Things are not always how they seem - Ronny Allan - Living with #NeuroendocrineCancer buff.ly/2LQ3hSq
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What do you see?
Look closely, look closely what do you see? Blood values and scans?
Or do you see ME?
I’m more than my cancer, more than my cells There is more to my life than my DOTA scan tells. Help me to live, help me to heal See not only my body… Learn how I feel.#NETSAS
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🌍 NETs: No Discrimination, No Exceptions 🌍 Neuroendocrine Tumors (NETs) don't discriminate. They affect men, women, and children alike. Share to spread awareness and break the stigma! 💙 #NETsAwareness #NoDiscrimination #NETSAS #NETS
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⏳Time Matters: The NET Diagnosis Journey ⏳Did you know? A NET diagnosis can often take 5-7 years. For many, the cancer has already spread by the time they are diagnosed. Time is crucial. Share to spread awareness and support early diagnosis! 💙 #NETsAwareness # #NETSAS #NETS
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4 Jan 2024
The #NETs disease #pheo #para is often called "The Great Mimic" because it often gets misdiagnosed as a more common condition. Know the symptoms -- get diagnosed!
#NETsAwareness #EarlyDetectionMatters #NETSAS
🎗️ Did you know? Around a third of Neuroendocrine Tumor (NET) patients discover their diagnosis by pure chance while checking for another condition. Early awareness can make a difference. Share to raise awareness! 💙 #NETsAwareness #EarlyDetectionMatters #NETSAS #NETS
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🔍 Neuroendocrine tumors (NETs) are on the rise, more common than brain, ovarian, or cervical cancer. Early symptom awareness is crucial for better outcomes. Help change the statistics – share to spread awareness! 💙 #NETsAwareness #EarlyDetectionMatters #NETSAS
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NETs are no longer considered rare but it takes time to change perceptions of lesser known cancers
#LetsTalkAboutNets
#NETSAS
9 Dec 2023
Neuroendocrine Neoplasms
10th most common can er in England, 7th in Australia.
#dothemath (not the myth) buff.ly/2MvIUYd
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White Elephant. Remember the main reason why all Netsas got together to push @CredaiPunemetro was FSI 4, along the metro corridor. If they had cared for commuter welfare they would have got @PMPMLPune & BRTS right. Never forget. Vote for #NOTA in the @PMCPune elections #Pune
7 Dec 2023
Pune Metro, operating on the Vanaz Ruby Hall Clinic and PCMC headquarters-to-Civil Court routes, witnessed a decline in commuter footfall for the second consecutive month in November. The ridership plummeted from 36.7 lakh in October to 14.2 lakh, following 20 lakh commuters in September. Despite satisfactory Metro trip frequency, several factors such as limited parking spaces, inadequate last-mile connectivity, and feeder services contributed to commuter hesitancy.
Read more on punemirror.com
#PuneMetro #CommuterFootfall #PMC #november #CommuterDemands
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🌐 Misdiagnosis Alert! Neuroendocrine tumors often mimic common conditions like anxiety, menopause, IBS, asthma, and diabetes. Early awareness is the key to accurate diagnosis. Share to spread awareness and save lives! 💙#NETsAwareness #EarlyDetectionMatters #NETSAS
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🧠 Neuroendocrine cancer, more common than you think, often unnoticed. Early diagnosis is crucial! Globally, 5 years from symptoms to diagnosis result in 46% with advanced-stage cancer. 💙 Break the silence on #NeuroendocrineCancer. Share for early detection! #NETSAS #NETS
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👀 the INCA highlights summary of the most successful NET Cancer Day to date!
As INCA continues to grow from strength to strength a special thanks to everyone that puts in the hard work behind the scenes 🙏
#NETS #LetsTalkAboutNETs #NETSAS
4 Dec 2023
Every day is #NETCancerDay for NET patient advocates!
🦓Watch highlights of #NETCancerDay2023 across the globe in YouTube: youtube.com/watch?v=DND865jo…
👏Thank you to all INCA members for joining the global call for action!
#LetsTalkAboutNETs
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13 Nov 2023
👏A captivating presentation of “The Patient’s Perspective on Neuroendorine Tumours” was made by @NETSAS at the biennial congress of the South African Society of Nuclear Medicine.
✅Find out more and watch the video: incalliance.org/netsas-patie… #LetsTalkAboutNETs #OncTwitter
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Thanks @RonnyAllan1 for everything you do to raise awareness and debunk many of the myths surrounding the diagnosis and treatment of NETs!
#LetsTalkAboutNets
#NETCancerDay
#NETSAS
10 Nov 2023
The earlier the better, this is improving actually. More work required though. An incidental diagnosis is still a diagnosis and very often it's early diagnosis
#WorldNeuroendocrineCancerDay #NeuroendocrineCancer
ronnyallan.net/2023/05/18/ne…
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10 Nov 2023
@FundacionAciapo @AmendInfo @AptedNew @aznets @CNETSCanada @CarciNor @LACNETS @MiddleEastNETS @netitalyonlus @NETPatient @Netespana @NETSAS @NCkanker @NECancerAus @UnicornFoundNZ @ncukcharity @PanCANJapan @CarcinoidNETs @CNETSIndia @HealingNET1 @CureNETs @PheoPara @NETenMENkanker @norcalcarcinet
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Great article by @RonnyAllan1 when seeing your oncologist the early days can be overwhelming….
✏️write down your questions &
🎙️record the conversation to digest afterwards once the emotions have subsided…
#NETSAS
#LetsTalkAboutNETs
24 Oct 2023
Metastatic Neuroendocrine Tumours – Incurable but treatable
#NeuroendocrineCancer buff.ly/474FSCD
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