UK National Neonatal Research Database (NNRD): neonatal units collaborating to benefit babies via real-world data via @HDR_UK Gateway & Imperial College London
Joined June 2017
- Tweets 190
- Following 1,538
- Followers 2,669
- Likes 66
9 Photos and videos
Important understandable point @NICU_Musings. This is the fundamental (too often repeated) problem of focusing research on unvalidated surrogate outcomes. Just as we showed that GMCSF increases WCC in growth restricted preterms but does not result in patient benefit (Lancet 2009)
5 Aug 2025
Although darbepoetin for newborns 23-29 weeks increased RBCs and decreased transfusions sadly it didn’t translate into better neurodevelopmental outcome
The silver bullet remains elusive!
#neotwitter
jamanetwork.com/journals/jam…
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Thanks for highlighting @NICU_Musings; the possibility of impaired neurodevelopment is why we need the @COLLABORATE_rct to determine if donor milk or preterm formula is better for top ups when there isn’t enough own mothers milk @Blisscharity @Adultpreemies @BAPM_Official @NNRD
15 Jul 2025
There is just no equivalent replacement for mother's milk
Replacing 1 day of mixed feeds, donor milk or NPO w/ mother's milk ⬆️ cognitive, language and motor development.
A 1-day reallocation of NPO to either mother's milk, mixed feeds or donor milk ⬇️ signif NDI, CP and/or NEC
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The NNRD is used to improve the care of newborn babies and their families in many ways. The information in the NNRD is used for research studies to find out which treatments work best, in audits that measure how well neonatal units are practising and to support legislative change
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NNRD-UK retweeted
The COLLABORATE study will tackle 2 longstanding, uncertainties in preterm nutrition: should pasteurised donor milk or preterm formula be used when a supplement for own mother's milk is needed, and is routine protein-carbohydrate fortification of human milk beneficial and safe?
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NNRD-UK retweeted
“Human milk for preterm infants”, a discussion of evidence gaps & priority issues in preterm enteral enteral feeding & why the term “human milk” is unfortunate. sciencedirect.com/science/ar… @NNRDbase @BAPM_Official @NNAUK1 @EBNEO
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NNRD-UK retweeted
A fantastic gathering at Perinatal Science International 2025 on the iconic Venetian island of San Servolo. Inspiring, stimulating discussions on strengthening perinatal research from bench to bedside to policy! Thank you to all delegates!
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NNRD-UK retweeted
We invite you to join one of our upcoming COLLABORATE webinar series where the investigators will explain the study and provide opportunity for discussion and questions.
Find more here : imperial.ac.uk/neonatal-data…
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NNRD-UK retweeted
Calling all UK neonatal teams! COLLABORATE, an adaptive, 2-randomisation, real-world-data-enabled RCT to reduce NEC will go live 06/25! We are running a series of webinars to explain & discuss the study Join us! All welcome! Web-links at
imperial.ac.uk/neonatal-data…
@BAPM_Official
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NNRD-UK retweeted
2 months left until #PSI2025 - a unique forum for high-impact #PerinatalResearch that transforms care for #mothers and #babies
Register now to foster meaningful dialogue and multidisciplinary exchange with world-renowned experts 👉 bit.ly/49qCwuI
@NeenaModi1 @joylawn
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NNRD-UK retweeted
25 Dec 2024
Best wishes to all for the season, hopes for a peace-filled 2025, & thanks to all dedicated #NHS staff working over Christmas & the New Year
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NNRD-UK retweeted
4 Jan 2025
Thanks to all followers & friends over many years. Please now join me at Bluesky. I’m moving to @neenamodi1.bsky.social
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A very happy, restful & enjoyable festive break to all neonatal teams, families with babies in neonatal units, & staff working over the season to provide dedicated care; read our Christmas newsletter here: sway.cloud.microsoft/TRwgQx0…
@Blisscharity @BAPM_Official @NNAUK1 @NHSuk
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NNRD-UK retweeted
We want our research to bring real benefit to our patients & their families. That’s why learning from parents, patients & families is central to all our studies. Tx @Ampel70 ! @Adultpreemies @Blisscharity @Imperial_PERC @BAPM_Official @NNRDbase @COLLABORATE_rct
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NNRD-UK retweeted
13 Dec 2024
Great boost for newborn medicine’s development! imperial.ac.uk/news/259314/w… @BAPM_Official @CPathInstitute @BAPIOUK @MHRApress @NNRDbase
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NNRD-UK retweeted
15 Dec 2024
Some ask if a trial is justified; YES it is!Our patients deserve evidenced, safe care. Pls read the COLLABORATE Powerpoint Trial Justification & Design imperial.ac.uk/neonatal-data… @NNRDbase @NNAUK1 @BAPM_Official @NeoTRIPs1 @RCPCHtweets @Blisscharity @Adultpreemies @ImperialCTU
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NNRD-UK retweeted
13 Dec 2024
COLLABORATE coming 2025, will determine effects of donor milk, bovine fortifier & formula on surgical NEC, survival & cognition, key questions for all preterm babies. If interested in being a global partner email COLLABORATE@imperial.ac.uk @AAPneonatal @NECsociety
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NNRD-UK retweeted
25 Nov 2024
We're auctioning off the perfect Christmas gift - an original Love Actually script signed by Writer and Director Richard Curtis, along with some stills from the film signed by stars Kiera Knightly and Andrew Lincoln 🤩 Place your bids now: ow.ly/NaSa50Uf4sN
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NNRD-UK retweeted
15 Nov 2024
Fortifying flour with folic acid to prevent birth defects?
"This will disadvantage women who are sensitive to gluten."
Prof @NeenaModi1 explains why the new legislation doesn't go far enough, and why it could deepen #health inequalities, in @BBCNews 👇bbc.co.uk/news/articles/c206…
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Nerdbase for @NNRDbase is an interesting suggestion though the UK National Neonatal Research Database is widely used by non-nerds & nerds! @natetexsun @NeenaModi1
14 Nov 2024
Such important work. I’d love to see the data too like @drbretty. Also curious if you say “ nerd base” for @NNRDbase
@TinyBabyCollab
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