New NHP Account 2022. A network providing strategic leadership, oversight & clinical decision-making for haemoglobinopathy patients. Chair: @PdbInusa
Joined May 2022
- Tweets 617
- Following 145
- Followers 275
- Likes 1,140
34 Photos and videos
Pinned Tweet
19 May 2022
Hello Twitterverse... This is our new home (no longer @PanelNational). Still the same NHP. Still championing the cause of haemoglobinopathy care. Let's talk, work and make things better! #NHP #NHS #NationalHaemoglobinopathyPanel #SickleCellDisease #Thallasaemia #RareAnaemias
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UK National Haemoglobinopathy Panel retweeted
It’s International Thalassaemia Day!
We value the amazing individuals that live with this condition every day & the wonderful healthcare workers/specialists supporting them.
As always, think; ‘How can I make a difference?’
#internationalthalassaemiaday #ITD2026 #Hiddennomore
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It's #WorldThalassaemiaDay
Thalassaemia is a blood disorder causing severe anaemia. Most people need regular transfusions from closely ethnicity-matched donors.
Your donation could save a life 🩸
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It's only 1 week to go until #COMy2026 – the 12th World Congress on Controversies in #MultipleMyeloma! 🇫🇷
From 14-17 May in Paris, France, we will be interviewing top experts to gain insights into the latest in #Myeloma.
Stay tuned on VJHemOnc.com! 👀
#MMSM #HemOnc @COMyCongress
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UK National Haemoglobinopathy Panel retweeted
Happy #ITD2026 to all our patients, families and friends!
We are promoting diagnosis, awareness and understanding today across our network
#hiddennomore #VisabilityVoiceValue
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RT @WestMidsSTN: Today is International Thalassaemia Day. How are you raising awareness today? We have lots of activities happening within…
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UK National Haemoglobinopathy Panel retweeted
May 8
For every patient.
For every family.
For every caregiver, healthcare professional, and advocate.
This #ITD2026, we raise our voices in hope, solidarity, and purpose — making the unseen visible and the unheard heard.
Together, we are #HiddenNoMore.
#8May #VisibilityVoiceValue
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UK National Haemoglobinopathy Panel retweeted
13 Dec 2025
Congratulations to @SubarnaChak for the very well deserved award for research and academia @BAPIOUK national conference @NatHaemPanel @Shivan_TT @gmenon1423 @redcellemma @BAPIOUK
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UK National Haemoglobinopathy Panel retweeted
Amazing weekend with @MFTnhs Haematology leading globally with our real world experience in treating #TDT at international masterclass. An achievement for the service. Sickle cell to follow.@FarhanAliAnjum1 @MFT_MRI @NatHaemPanel @teamukts @thalassaemiaTIF
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Here we go! 😃
☕️👩🏽🔬👨🔬📈📊📑🧐☕️🍛🍱🩸🧬🔭🤝☕️🫂🥱☕️💪🏼🤓⚡️
#ASCAT2025 #ascatconference
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UK National Haemoglobinopathy Panel retweeted
5 Aug 2025
🎉Don't forget to join us for Milestones: Life Journeys with Sickle Cell this Saturday – a powerful event celebrating the journeys of those living with sickle cell into older adulthood 🩸💪.
Register now: milestonesagingwithsicklecel… #SickleCell #Milestones #PatientVoices
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UK National Haemoglobinopathy Panel retweeted
5 Aug 2025
If you’re thinking more about dating and relationships, or love life and family planning, we’ve got you covered with two podcast episodes on these topics.
Check them out on our website or YouTube Channel or wherever you listen.
buff.ly/LS8Xv7J
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To the public & all Sickle Cell Disorder (SCD) stakeholders (patients, family, friends, carers, clinical staff); please sign this Parliamentary petition to list SCD drugs for NHS prescription charge exemption. Reduce the health inequalities. Change lives. petition.parliament.uk/petit…
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Celebrating World Sickle Cell Day at UCLH with the Red Cell Network and screenings of the docufilm 'Sickle!'
#WorldSickleCellDay #redcellnetwork #NHS @uclh
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UK National Haemoglobinopathy Panel retweeted
19 Jun 2025
World Sickle cell day …..time to raise awareness and tell it loud
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19 Jun 2025
RT @WestMidsSTN: Our paediatric patients Tell It Loud with some art work on World Sickle Cell Day
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It's #WorldSickleCellDay This year’s theme ‘Tell it Loud’ reminds us to raise vital awareness. Many #SickleCellWarriors depend on regular blood transfusions so why not do something special and #GiveBlood. A good deed plus you get free tea & biscuits! Info: blood.co.uk
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19 Jun 2025
There’s still time to show your knowledge levels before we post the answers later…
19 Jun 2025
Test your (plus family and friends’) SCD knowledge and drop your answers below. Not in the UK? Share the facts of your home country. No cheating (google searches)! 🤓
#worldsicklecellday2025 #scd2025 #sicklecelldisorder #sicklecelldisease #nationalhaemoglobinopathypanel #NHP
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UK National Haemoglobinopathy Panel retweeted
19 Jun 2025
#WorldSickleCellDay thank you Paediatric Sickle Cell Team @RWT_NHS for raising awareness #ActFasttosavealife #EverySecondCounts #SickleCellAwareness #DoYouKnowYourStatus free National Standards @SickleCellUK #iamproud to be the National Paediatric Adviser for Sickle Cell Disease
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