Joined May 2013
- Tweets 1,635
- Following 287
- Followers 439
- Likes 732
622 Photos and videos
Jun 8
NF1 HealthSKETCH
We've added a short animated video to the NF Ireland website that explains NF1 in a simple and easy-to-understand way.
Developed with the Childhood Tumour Trust (CTT), special thanks to Dr Carly Jim, Manchester. Metropolitan University.
π nfaireland.ie
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Jun 3
π Mini Marathon 2026 π
A huge thank you to everyone who ran, walked & fundraised for NF Ireland at this year's Vhi Women's Mini Marathon.
Whether in Dublin or taking part from elsewhere, every step helped raise awareness for Neurofibromatosis & support for the NF community.
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May 29
Womenβs Mini Marathon Weekend
A huge thank you to everyone supporting NF Ireland this year. Best of luck to all our amazing runners and walkers this weekendπββοΈ
Join us afterwards for refreshments at Harcourt Bar & Garden, Dublin 2. Family and friends welcome π
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May 26
Womenβs Mini Marathon Weekend π
Didnβt register? You can still Run for NF from anywhere in Ireland this weekend.
π Run
πΆ Walk
π Raise Awareness
Every step supports the NF community.
π§ info@nfaireland.ie
#RunForNF #NFAwarenessMonth
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May 22
π Today is NF2 Awareness Day π
NF Ireland is committed to increasing our focus on NF2-related schwannomatosis in Ireland through awareness, new information resources, and advocacy for better NF2 services & specialist care.
@ChildrensTumor @nf2biosolution1 @NervetumoursUK
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May 15
π NF Ireland is proud to partner with Nerve Tumours UK for the #ShineALightOnNF campaign this 17th May
Over 200 landmarks across Ireland & the UK will light up blue to raise awareness for Neurofibromatosis
πFull list: nervetumours.org.uk/get-invoβ¦
@NervetumoursUK @centralbank_ie
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May 11
NF Awareness Day Family Meet-Up
π Emerald Park, Co. Meath
ποΈ 17th May 2026
Final opportunity to register for our cross-border family meet-up with Childhood Tumour Trust π
A welcoming day to connect, & meet other NF families.
π Full details: nfaireland.ie
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May 9
NF Academy 2026 - Rotterdam
π 22-28 August | Ages 19-35
A unique, week-long programme supporting young people affected by NF to become NF Ambassadors.
Travel, accommodation, and programme costs are fully covered.
β° Deadline: 10th May
π Apply: info@nfaireland.ie
@NfPatients
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May 7
Kildare Inclusivity Festival
10th May at The Curragh Racecourse π
NF Ireland will be there with a stand offering advice, info & support. Weβd love to see our members, come say hello.
More info: ckan.ie/kildare-inclusivity-β¦
@access_maynooth @RareDiseasesIE
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May 4
May NF Awareness Month Newsletter π
NF Ireland's latest newsletter is now live, covering events, campaigns & ways to get involved this May.
Letβs shine a light on NF π
π Read & download: nfaireland.ie
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Apr 22
Delighted to be selected as a Central Bank of Ireland charity partner for 2026/2027.
This partnership will strengthen support for individuals and families living with Neurofibromatosis across Ireland.
Thank you for your support π
@centralbank_ie
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Apr 19
Todayβs the day πββοΈπ
Niamh Senior is running the Manchester Marathon in support of NF Ireland, for her little cousin and all those living with Neurofibromatosis.
If you can, please support π
π gofund.me/e96f5d421
Go Niamh! πͺ
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Apr 18
NF Academy 2026 - Rotterdam (22β28 Aug)
Applications are now open!
Open to patients & siblings (19β35) to become NF Ambassadors.
π‘ Thanks to sponsors, travel, accommodation & academy costs covered.
π Apply now: nf-patients.eu/nfa-2026-applβ¦
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Apr 11
πββοΈ Almost race day!
Niamh Senior is running the Manchester Marathon (19th April) for NF Ireland π
Weβre so grateful for her support, if you can, please donate and help make a difference.
π gofund.me/e96f5d421
@Marathon_Mcr @adidas
#ManchesterMarathon #NFawareness
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Apr 10
We are deeply saddened to share the passing of Rosaleen Francis Corr, founder member of NF Ireland and a much loved part of our community.
Our thoughts are with her family and friends.
Funeral Details: rip.ie/death-notice/rosaleenβ¦
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Mar 29
NF Academy 2026 Rotterdam (22β28 Aug)
Aged 19β35. This is a unique opportunity to become an NF Ambassador
Join a 1-week training covering NF, advocacy, mental health, and patient involvement. Open to patients, siblings & young parents.
π© Register interest: info@nf-patients.eu
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Mar 25
π NF Awareness Day Meet-up
π Emerald Park
π May 17th
A cross-border family meet-up with NF Ireland & Childhood Tumour Trust β a great chance to connect and spend time together π
π Info & register your interest:
nfaireland.ie/emerald-park-nβ¦
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NF Ireland retweeted
Mar 15
π NF1 Webinar - 19 March | 2PM π
NF Ireland encourages our community to join this free webinar on Neurofibromatosis Type 1 (NF1) care, sponsored by Childhood Tumour Trust and organised by Rare Revolution Magazine.
ποΈ Register for free:
us02web.zoom.us/webinar/regiβ¦
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Mar 6
CTT NF Summer Camp 2026
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25-28 July
π Shrewsbury, UK
Places open to young people from Ireland (12-17) living with NF.
Four days of fun, confidence-building & meeting others with NF.
π For details: info@nfaireland.ie or contact us privately on Twitter.
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