The Twitter page for PCD Scotland! Follow us for all things PCD. pcdsupport.org.uk/
Joined November 2017
- Tweets 326
- Following 118
- Followers 187
- Likes 234
57 Photos and videos
24 Aug 2021
7
11
PCD Scotland retweeted
11 Dec 2020
The most used face masks among people with PCD are certified single use masks or reusable fabric masks. More results from the #covid_pcd study on our website covid19pcd.ispm.ch/en/result⦠#pcd #covid19 #raredisease
1
4
8
PCD Scotland retweeted
31 Dec 2020
Congratulations go to our very own @pcdmum in being awarded a British Empire Medal for her tireless work for the PCD Family Support Group in the Queenβs New Yearβs Honours list!π₯³
More info: pcdsupport.org.uk/new-years-β¦
#PCD @lunguk @EuropeanLung #PrimaryCiliaryDyskinesia #champion
6
5
44
PCD Scotland retweeted
15 Dec 2020
A novel real-world validation of two tools (PICADAR and NA-CDCF) that use routinely collected clinical data and help triage the need for primary ciliary dyskinesia diagnostic testing is performed, showing both tools perform well with equivalent performanceΒ bit.ly/2YgzxlY
3
12
PCD Scotland retweeted
15 Oct 2020
(4/4) #PCDAwarenessMonth #PCD #cilia #genetics #raredisease #lungdisease #inheritance #inherited #genes #PrimaryCiliaryDyskinesia #rare
3
1
PCD Scotland retweeted
15 Oct 2020
(3/4) #PCDAwarenessMonth #PCD #cilia #genetics #raredisease #lungdisease #inheritance #inherited #genes #PrimaryCiliaryDyskinesia #rare
1
3
1
PCD Scotland retweeted
15 Oct 2020
(2/4) #PCDAwarenessMonth #PCD #cilia #genetics #raredisease #lungdisease #inheritance #inherited #genes #PrimaryCiliaryDyskinesia #rare
1
2
1
PCD Scotland retweeted
15 Oct 2020
Today's #PCDAwarenessMonth features genetics. How come non-PCD parents can have children with PCD? (1/4)
#PCD #cilia #genetics #raredisease #lungdisease #inheritance #inherited #genes #PrimaryCiliaryDyskinesia #rare
1
5
6
PCD Scotland retweeted
26 Sep 2020
π€©Virtual Open day, Sat 26th & 27th Septemberπ€© @MRC_IGMM
Powerful presentation on PCD will be included!
ed.ac.uk/c/igmm-dod-2020
PCD Family Support Group UK
MRC Institute of Genetics & Molecular Medicine
@MRC_HGU
#DODIGMM
#DigiDoorsOpen
#DODScot
3
3
PCD Scotland retweeted
4 Sep 2020
Study update! 483 participants π€©Getting closer to that 500 mark!
Thank you to all who are taking part and continue to help us understand the effects of #covid19 on #PCD. Please join us if you haven't!
#raredisease #research #lungdisease #primaryciiliarydyskinesia #community
2
4
PCD Scotland retweeted
19 Aug 2020
Well done #PCD community, ππ·π
Your regular participation in the survey is providing important information, so please keep completing the short surveys. If you have #PCD and are not yet involved in this international project, it's easy to join in covid19pcd.ispm.ch/study-infβ¦
19 Aug 2020
#Covid19 and #PCD Study Update! We now have 469 participants π
Full results and how to get involved: covid19pcd.ispm.ch/results/
#research #raredisease #community #primaryciliarydyskinesia #coronavirus #shieldus
4
7
22 Jun 2020
ππ»PCD Shielding update 22nd June 2020ππ»
pcdsupport.org.uk/latest-upd⦠@PCD_Scotland @PCD_UK @lunguk
1
2
16 Jun 2020
Have you participated? Click on the link to see results π€, how many people have participated from each country π΄σ §σ ’σ ³σ £σ ΄σ Ώ and if you havenβt completed the questionnaire, there is a red βparticipate in the studyβ tab! π΄ @PCD_UK @PCD_Scotland @lunguk
covid19pcd.ispm.ch/results/
2
8
PCD Scotland retweeted
2 Jun 2020
PCDers we need you! Please complete this questionnaire to help us understand the impact of Covid-19 on people with PCD. The study is open to anyone with PCD around the world: covid19pcd.ispm.ch/?fbclid=Iβ¦
#pcd #covid19 #primaryciliarydyskinesia #survey #help
2
13
14
PCD Scotland retweeted
26 Mar 2020
ππππππππππππππππππππππππππππππππππππππππππππππππππππππππππππππππππππππππππππππππππππππππππππππππππππππππππππππππ
#clapforNHS #ClapForCarers π#NHSπ
6
10
PCD Scotland retweeted
19 Mar 2020
Great idea! Make sure you keep up your exercise regimes! πββοΈποΈββοΈπ΄ββοΈπ€ΈββοΈπ§ββοΈβ½οΈπ₯
1
2
PCD Scotland retweeted
19 Mar 2020
Practising #selfcare is hugely important in these changing times - give yourself permission to rest and to just 'be' #raredisease @lunguk #relaxation #StaySafeStayHome
4
10