PDA Action is headed by four parents of children diagnosed with autism and who have a profile of Pathological Demand Avoidance.
Joined September 2012
- Tweets 7,215
- Following 4,171
- Followers 1,750
- Likes 7,806
366 Photos and videos
PDA ACTION retweeted
13 Aug 2020
Facebook Live Q&A this evening. 8pm - 9pm with Harry Thompson. Author of the PDA Paradox - the highs and lows of my life on a little known part of the Autism Spectrum. @Bisnetpage facebook.com/Bisnetpage #PDA
#Autism #AutismAwareness #ActuallyAutistic @PDASociety @PDAAction
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PDA ACTION retweeted
22 Jul 2020
Males tend to be shoehorned into antisocial or narcisisstic personality disorder instead :( the ratio is 3:1, female to male diagnosis. Nice to see the number of studies linking undiagnosed female autism to bpd really are increasing over the years though psva.org/wp-content/uploads/…
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PDA ACTION retweeted
22 Jul 2020
Thanks for saying. I saw too many young girls get sent to awful places knowing that in another part of the country it wouldn't happen. I just couldn't watch it anymore.
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PDA ACTION retweeted
This is horrible! So many Autists are misdiagnosed with BPD and I could totally see how an Autistic person locked in a sensory overwhelming environment would be stimming/self harming more. Thank you for helping these ppl!
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PDA ACTION retweeted
23 Jul 2020
I wouldn't say many diagnosed with BPD were correctly diagnosed - its such a messy diagnosis that all sorts of issues that challenge clinicians are slipped into that diagnosos.
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PDA ACTION retweeted
23 Jul 2020
This is really interesting. I know it’s probably not huge numbers, but I do wonder how many might be diagnosed with autism, specifically PDA, if those with experience of this were assessing...
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PDA ACTION retweeted
22 Jul 2020
Some thoughts on tribunals for those diagnosed with BPD.
"the young women (and it is always young women) are not aware of how far their treatment has moved from what NICE would recommend"
beamconsultancy.co.uk/the-bl…
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PDA ACTION retweeted
17 Jun 2020
Somerset parents this is your chance to have your say after the OFSTED/CQC SEND inspection report.
Sarah Baker and I did the survey and will be writing a briefing report, to support a campaign for change.
surveymonkey.com/r/52RDVD3
You can join us at: m.facebook.com/groups/146345…
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PDA ACTION retweeted
9 Jun 2020
Thank U😊 I will Tweet progress. Today Myself & the community team have chosen a Care provider. The @CareQualityComm R looking at what can be done 2 support Dannielle while We form a team of specially trained Carers 2 look after D in the ATU & prep her 4 transition 2 her home.
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PDA ACTION retweeted
9 Jun 2020
If a child is living in #Somerset with #SEND they will end up under one of these pathways. Children’s services is the dipleation of respite and services. CWD are the disabled social care team. Many are under all the other services! #SomersetSENDharm
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PDA ACTION retweeted
8 Jun 2020
There is a petition on the parliamentary petitions site to extend urgently the statutory age limit for SEND provision in the wake of COVID-19. As young people with disability are losing almost of a year of education, EHCP should be extended to age 26. ow.ly/JWGj30qNBET
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PDA ACTION retweeted
11 Jun 2020
You can join Somerset Parent Alliance to see tonight's live stream.
facebook.com/groups/14634522…
facebook.com/groups/14634522…
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PDA ACTION retweeted
10 Jun 2020
Somerset young carers key workers dept were dismissed with out noticed. We really need them back, too many are now entering all categories of “troubled families”. 😢
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PDA ACTION retweeted
10 Jun 2020
@SomersetCouncil other counties have allocated key workers for young carers #accountabilityNow
10 Jun 2020
Senior Key Worker - Young Carers - England, Essex, Chelmsford - Essex County Council #localgov #localgovjobs jobs.localgov.co.uk/job/1435…
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PDA ACTION retweeted
31 May 2020
@ofsted and @CQCpressoffice #SEND inspection on @SomersetCouncil and @somersetccg April 2020
docs.somerset.gov.uk/wl/?id=…
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PDA ACTION retweeted
10 Jun 2020
@BorisJohnson are the petitions team on #StayAlert? We are holding back with families outrage #SomersetSENDharm. #AccountabilityNow would be great to authorise our petition please. Thousands of Somerset suffering children needs to end please. Thank you
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PDA ACTION retweeted
7 Jun 2020
Look how handsome my boy is! He dressed himself today and I think he did a fabulous job 🥰🙌🏻
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PDA ACTION retweeted
6 Jun 2020
Please share and share!
- SOMERSET parent/carers -
PLEASE COMPLETE THIS annoymous survey regarding your SEND experiences in Somerset:
surveymonkey.com/r/52RDVD3
Follow:
#UKfailsChildren
#SomersetSENDharm
#AccountabilityNow
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PDA ACTION retweeted
5 Jun 2020
So much of my work during the pandemic essentially involves saying to government ‘you forgot about disabled people’. If disabled peoples organisations were properly involved in policy design, a large chunk of the JRs government has faced and will face would go away.
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