PIPC is a coalition of health care stakeholders promoting comparative effectiveness research and patient engagement to improve health care quality.
Joined April 2013
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- Following 1,424
- Followers 3,746
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458 Photos and videos
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Gerry lives with PBC in Ireland. He struggles to access newer therapies available in the U.S. Why would the U.S. model European health care delays and denials? #MFNHurtsPatients #ValueOurHealth
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Car T-cell therapy is standard of care in many countries, but New Zealand patients still have access only through clinical trials. #MFNHurtsPatients
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In Australia, families are still fighting to get younger children with severe eczema access to medicines older patients already receive through the pbs. The U.S. should not import pricing systems that delay access and leave families paying thousands out of pocket.
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In Australia, families are still fighting to get younger children with severe eczema access to medicines older patients already receive through the pbs. The U.S. should not import pricing systems that delay access & leave families paying thousands out of pocket. #MFNHurtsPatients
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PIPC Chairman @HonTonyCoelho issued the following statement on the vetoes of HB 483 and SB 271 in Virginia.
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No patient or person with a disability is average. We look forward to future policy debates focusing on affordable access to care for people with disabilities and patients in a manner that is aligned with federal law and regulations governing disability nondiscrimination.
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We sincerely thank Governor Spanberger for hearing and acting on the disability community’s concerns regarding this legislation. pipcpatients.org/news/statem…
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Partnership to Improve Patient Care (PIPC) retweeted
May 19
“People with chronic illness deserve to have a voice.”
After decades of living with rheumatoid arthritis, Judy turned her lived experience into advocacy - helping others feel seen, supported, and understood. Sharing patient stories helps raise awareness about the realities of AiArthritis diseases and the importance of community connection.
Discover more of Judy's story at: zurl.co/9DBSq
#AiArthritis #RheumatoidArthritis #AiArthritisDay #MyAiArthritisDisease
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Despite disability opposition, Congress debating support for codifying Most Favored Nation policies that would import #QALYs to the U.S., modeling countries that discriminate, contrary to current law. #MFNHurtsPatients files.constantcontact.com/e7…
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Good read from @IPPolicyInst on tradeoffs inherent in importing #QALY -based prices and how #MFNHurts patients. blogs.uakron.edu/ualawip/202…
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PIPC Report: The UK Health System, Lessons for the U.S. and the Risks of MFN Drug Pricing. #MFNHurtsPatients #ValueOurHealth pipcpatients.org/uploads/1/2…
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Every child deserves to feel seen, heard, and supported. 💚
This Children’s Mental Health Awareness Month, let’s break the stigma, open up conversations, and prioritize emotional well-being just as much as physical health. From schools to homes to communities, we all play a role in creating safe spaces where children can thrive.
Because strong minds build brighter futures. ✨
#ChildrensMentalHealth #MentalHealthAwareness #EndTheStigma #HealthyCommunities #YouthWellbeing #NMQF
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Tony Coelho Media Scholarship alum Cassidy Huff wrote a blog about the importance of disability representation in the film industry. During a recent commercial shoot, Cassidy experienced true inclusion that showed what's possible when accessibility is prioritized.
Read her full blog: ow.ly/FcHA50YHg1N
ID: Photo of Cassidy Huff with an excerpt from the full blog below. A smiling blonde woman wearing black-framed glasses and a white off-the-shoulder top stands outdoors in soft natural light, with greenery blurred in the background
ALT Photo of Cassidy Huff with an excerpt from the full blog below. A smiling blonde woman wearing black-framed glasses and a white off-the-shoulder top stands outdoors in soft natural light, with greenery blurred in the background
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