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PV Reporter @PVReporter

PV Reporter provides tools for MPN research. David Wallace - Founder, Fierce PV patient & advocate. CEO of non-profit MPNCancerConnection.org

Joined September 2013
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218 Photos and videos
🚨 BREAKING: FDA approves Jakafi XR, a once-daily ruxolitinib tablet for MF, PV & GVHD patients. Same proven treatment, simpler schedule. Available May 8. Big win for our community. #pvreporter #myelofibrosis #polycythemiavera pvreporter.com/one-pill-once…

One Pill, Once A Day: FDA Approves Jakafi XR | PV Reporter

The FDA just approved Jakafi XR, a once-daily ruxolitinib tablet for MF, PV and GVHD patients. Same proven treatment, simpler daily routine.

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He introduced interferon for MPNs. Helped launch Gleevec. Developed the bone marrow biopsy used worldwide. Dr. Richard T. Silver passed away April 17, 2026. Age 97. Our community owes him so much. 🙏 🔗 pvreporter.com/dr-richard-si… #MPNcommunity #BloodCancer #PolycythemiaVera

Remembering Dr. Richard T. Silver (1929–2026): MPN Pioneer | PV Reporter

Dr. Richard T. Silver, the Weill Cornell hematologist who introduced interferon for MPNs and helped launch imatinib for CML, has died at 97. A tribute.

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GLP-1 drugs are being studied for possible benefit in MPN and MDS. Early research shows potential inflammation reduction and symptom relief. 🔬 pvreporter.com/glp-1-therapi… #GLP1 #MPNs #pvreporter

GLP-1 Therapies May Benefit MPN And MDS Patients | PV Reporter

GLP-1 drugs may lower inflammation and improve outcomes in MPN and MDS patients, showing promise beyond diabetes treatment.

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🧬New on PV Reporter: Interferon Treatment for MPNs Learn how interferon works, benefits for PV, ET, and MF patients, side effects, and key questions to ask your doctor. 🔗 Learn more: pvreporter.com/interferon-tr…

Interferon Treatment For MPNs: What You Need To Know | PV Reporter

Explore how interferon treatment helps treat MPNs like PV, ET, and early MF. Learn about its benefits, side effects, and why it’s ideal for younger patients.

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🩸 Red Blood Cells Gone Wild! Polycythemia Vera (PV) is a rare blood cancer where the bone marrow makes too many red blood cells, platelets, and sometimes white blood cells. Awareness matters. 👉 pvreporter.com/ #BloodCancerAwarenessMonth #bloodcancerawareness
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🎗️ September is Blood Cancer Awareness Month. MPNs (PV, ET, MF) affect thousands of patients. Raise awareness & share important resources: 👉 mpncancerconnection.org/pati… #BloodCancerAwarenessMonth #MPN
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🚿 MPN-related itching after showers? Beta-alanine may offer relief for aquagenic pruritus. Read how it works & what patients report: pvreporter.com/beta-alanine-… #MPN #PolycythemiaVera #ItchingRelief #pvreporter #bloodcancerawareness

Beta-Alanine For PV Related Itching: A Potential Solution

Discover how beta-alanine may alleviate pv related itching (aquagenic pruritus) in polycythemia vera patients based on recent research findings and anecdotal evidence.

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Brain fog in Polycythemia Vera is real. It’s not just forgetfulness—it's driven by inflammation, hyperviscosity & iron deficiency. 🧠 Read how it affects daily life coping tips: 🔗 pvreporter.com/polycythemia-… #MPNs #PolycythemiaVera #BrainFog

Polycythemia Vera PV Brain Fog | MPN Symptoms | PV Reporter

Struggling with Polycythemia Vera PV brain fog? Read a personal story backed by the clinical research of PV and MPN cognitive symptoms.

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🚨 BREAKTHROUGH for CALR-mutant #ET patients! Incyte’s new therapy INCA033989 shows 86% response rate in early trial, with most reaching full platelet normalization. 🔗 Read: pvreporter.com/breakthrough-… #MPNsm #BloodCancer #Clinicaltrial

Breakthrough CALR Therapy Shows High Response Rate In ET | PV Reporter

Incyte’s INCA033989 targets CALR mutations in ET patients, delivering high response rates and potential disease modification with minimal side effects.

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🩸 Tired of frequent blood draws for polycythemia vera? New breakthrough treatment reduces phlebotomies by 77%! Learn how this could change your PV treatment options → pvreporter.com/rusfertide-cu… #Polycythemiavera #ClinicalTrial #pvreporter

Rusfertide Cuts Phlebotomies By 77% In Polycythemia Vera | PV Reporter

New Phase 3 trial results show rusfertide reduces blood draws for polycythemia vera patients by 77% compared to placebo, offering hope for better treatment.

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16 years since my PV diagnosis. It’s been a tough road, full of setbacks & hard choices—but I’m grateful to be in remission. To everyone facing an MPN or rare blood cancer: keep pushing forward. You’re not alone. #MPN #BloodCancerAwareness
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🔬 New research connects gut health to Polycythemia Vera symptoms! Could your microbiome be affecting your PV? Learn how diet changes might help manage your condition in our latest article. #MPNsm #PolycythemiaVera #microbiome #pvreporter pvreporter.com/gut-microbiom…

Gut Microbiome And Polycythemia Vera: What You Should Know

New research shows gut microbiome changes in polycythemia vera patients may impact inflammation, treatment response, and disease progression.

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1/ 🎗 Finding the right MPN specialist is critical for your care—but many patients don’t know where to start. A regular hematologist isn’t always enough. 🩸 (🧵👇)
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3/ Inside, you’ll find ✅ the U.S.-based MPN Expert List, ✅ key questions to ask, ✅ tips for caregivers & more!
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4/ 📥 Get the guide here: mpncancerconnection.org/2025…

How To Choose Your MPN Specialist: #1 Resource for Patients - MPN Cancer Connection

Finding an MPN Specialist who understands the complexities of MPNs and aligns with your needs can significantly impact your long-term health outcomes.

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🔎 MPN patients & doctors don’t always see eye to eye on symptoms. A new study reveals a major disconnect that could impact care. Are patients being heard? Read more ➡ pvreporter.com/mpn-symptom-b… #MPNSymptoms #PatientCare #MPNResearch

MPN Symptom Burden: Discrepancy Between Patients & Doctors

New study on MPN symptom burden reveals doctors often underestimate patient-reported symptoms. Learn how this impacts treatment and survival rates.

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🔥 Good news for the MPN community! Dr. Golam Mohi at UVA just received a $2.4M NIH grant to study MPN progression & explore new #treatments. 🔬 Read more: pvreporter.com/uva-researche… #bloodcancer #Research #myelofibrosis #clinicaltrials

UVA Researcher Receives $2.4M For MPN Progression Study

Dr. Golam Mohi receives a $2.4M NIH grant to study MPN progression, focusing on JAK2V617F mutation and new therapeutic targets for better treatment options.

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🎥 New Interview! Dr. Fleischman breaks down the latest #ASH2024 research highlights for MPNs. Key advances in PV, MF, ET & what it means for patients. 👉 Watch here: mpncancerconnection.org/2025… #MPNResearch #PatientAdvocacy #myelofibrosis #pvreporter

ASH 2024: MPN Research Highlights with Dr. Fleischman

Explore key MPN research highlights from ASH 2024 with Dr. Angela Fleischman, featuring advancements in treatments, trials, and basic science concepts.

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Honored to be back in beautiful San Diego for #ASH2024 🌴, marking 10 amazing years of attending and reporting! Grateful to reconnect with friends and colleagues.
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