Research, advocacy and communication to make the way patient data is used more trustworthy.
Joined April 2017
- Tweets 2,476
- Following 1,405
- Followers 5,206
- Likes 1,610
441 Photos and videos
Pinned Tweet
15 Apr 2025
📢 Understanding Patient Data secures a new five-year funding settlement!
We are delighted to announce that, thanks to the generous support of our funders, we have secured funding for an additional five years. Read more 👇
understandingpatientdata.org…
2
4
9
2,488
15 Apr 2025
📢 Understanding Patient Data secures a new five-year funding settlement!
We are delighted to announce that, thanks to the generous support of our funders, we have secured funding for an additional five years. Read more 👇
understandingpatientdata.org…
2
4
9
2,488
15 Jan 2025
NEW RESEARCH📢
Today we're publishing the outputs from our project focusing on the experiences and perspectives of Gypsy, Roma, and Traveller communities on the collection and use of ethnicity data in health services.
🔗Explore the outputs here: understandingpatientdata.org…
7
16
2,036
14 Jan 2025
AI Opportunities Action Plan - what's in it for patient data?
Yesterday, the Government published its plans to ramp up the adoption of artificial intelligence (AI) to boost economic growth and improve lives.
Read more below 👇
🧵1/7 gov.uk/government/publicatio…
2
1
205
14 Jan 2025
More clarity is needed on how the Government plans to ensure health data is kept safe and secure, and members of the public need to be consulted to understand their perspectives on the uses of patient data for AI and ensure any access to data has public trust at the heart.
🧵6/7
1
1
114
14 Jan 2025
UPD is scoping some research and engagement work around patient data and AI in the new year - get in touch if this is something you'd like to discuss with the team!
🧵7/7
1
107
10 Jan 2025
New year, new health data policy announcements 📆
As part of wider reforms, the Government has announced plans for a new digital platform to make it easier to share up-to-date data between the NHS and adult social care providers.
Read more👇 gov.uk/government/news/new-r…
165
20 Dec 2024
UPD countdown to Christmas day 15/15 🎁
It's the last day! We're signing off for our Christmas break, returning on 6th Jan 🗓️
We hope you all have wonderful holiday and new year celebrations🥳🎉🪩🍾
See you next year!👋
1
137
19 Dec 2024
UPD countdown to Christmas day 14/15 🎅
Today we say goodbye to our Head of UPD, Nicola Hamilton!🥲She has played a pivotal role in driving UPD forward since we moved to NHS Confed, and we wish her all the best🌟
Look out for details of our future plans in the new year!🥳
151
18 Dec 2024
UPD countdown to Christmas day 13/15 🎄
Health data policy can be complex, so we put together this explainer resource that breaks down what each one means for you and your data 🤔
Think we're missing something important? Get in touch!📨
understandingpatientdata.org…
165
17 Dec 2024
UPD countdown to Christmas day 12/15 🎁
We've had a great reaction to our recent animation explaining SDEs and TREs, but did you know we have a whole host of animations explaining how data saves lives and improves care?🤔
📽️Explore the animations here: understandingpatientdata.org…
1
1
179
16 Dec 2024
UPD countdown to Christmas day 11/15 🎅
Routinely collected patient data can be used in many different ways to improve health and care - some of which are summarised below.
To read more about what data is used for, visit our website: understandingpatientdata.org…
ALT Wheel of ways to use patient data to improve health and care: individual care, improving diagnosis, treatment and prevention, patient safety, planning NHS services, evaluating policy, understanding disease
114
13 Dec 2024
UPD countdown to Christmas day 10/15🎄
@ICOnews has published an update on its trial of a revised approach to enforcement in the public sector, which favoured alternative enforcement action over fines .
Have your say via the consultation below👇
ico.org.uk/about-the-ico/ico…
1
110
12 Dec 2024
UPD countdown to Christmas day 9/15🎄
Check out this opportunity to be part of @NHSE’s Patient and Public Engagement and Communications Group, which acts as a sounding board and critical friend for key NHSE data programmes. Deadline is January 6th!⏰
🔗england.nhs.uk/get-involved/…
108
11 Dec 2024
UPD countdown to Christmas day 8/15 🎁
Today, we're highlighting a case study from our research on Integrated Care Systems' (ICSs) use of patient data.
Click below to read more about Dorset ICS's Dorset Intelligence and Insight Service 👇 understandingpatientdata.org…
125
10 Dec 2024
UPD countdown to Christmas day 7/15: New guest blog! 🎄
In today’s UPD guest blog, @JohnTStats and Helen Strongman from @ehr_lshtm share their research and discuss their perspectives on the impact of opt-outs on health research.
Read below!👇 understandingpatientdata.org…
1
185