A network for physiotherapists, physical therapists and respiratory therapists working with people with Primary Ciliary Dyskinesia. #IPCDPN
Joined May 2021
- Tweets 124
- Following 123
- Followers 214
- Likes 80
47 Photos and videos
27 Feb 2024
One week to go until our webinar. Hot topics in PCD research for our super physio community. We're looking forward to seeing you!
Tue 5th March 13:00-15:00 GMT
Full details and register here 👇
tickettailor.com/events/inte……
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5 Feb 2024
It's time to sign up for our webinar on current research projects. It's on Tue 5th March, 1-3pm GMT.
Here's the all important link to sign up:
tickettailor.com/events/inte…
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5 Feb 2024
Please share @PCD_UK @beatpcd @pcdcyprus @PCDFoundation @PCDAustralia @PCD_Scotland @TheACPRC @ErsPhysios
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2 Jan 2024
Time to save a date in your new calendar...the next IPCDPN webinar will be on Tuesday 5th March 13:00-15:00 GMT focussing on hot research topics. Watch this space for more info!
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We have published our updated position statement - 'Inhaler Switching: Making safe and clinically appropriate changes for patients with respiratory disease'.
Read the statement, which details PCRS's position 🔗ow.ly/953050PRCbe
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International PCD Physio Network retweeted
1 Sep 2023
Abstract submission is now open for the World Bronchiectasis Conference being held in Scotland in 2024.
Please join us! We have reserved a large number of slots on the program for spoken sessions abstracts, and awards for early career investigators
#bronchiectasis
@dundeeuni
31 Aug 2023
#WBConf24
📽 @ProfJDChalmers invites you to submit your scientific work, watch here world-bronchiectasis-confere…
📚Topics: #AATD #AirwaysClearance #Bronchiectasis #COPD #CF #NTM #PCD #Physiotherapy and many more!
⏲️Deadline: 29 March 2024
📅4-6 July 2024
🌍Dundee, Scotland
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4 Oct 2023
Can you help raise awareness of PCD this month? Follow and retweet @PCD_UK
1 Oct 2023
It's PCD Awareness month!
We'll be celebrating all month long with regular updates and sharing LOADS of information about PCD.
Join us by retweeting our posts and spreading the word!
#PrimaryCiliaryDyskinesia #PCDAwarenessmonth2023 #PCD #GetInvolved #Raredisease
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21 Sep 2023
#ERS2023 may be over but we have one last flurry of posters from the final session still to share with you...inspiratory muscle strength is associated with 6MWT distance in PCD.
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21 Sep 2023
Hyperpolarised 129 Xe MRI is feasible in pediatric PCD and looks at different disease aspects compared to FEV1
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21 Sep 2023
Hyperpolarised 129Xe MRI can be used to visualise changes following airway clearance.
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12 Sep 2023
Time to share a few more posters from ERS...
E-cigarette use in young people with PCD is higher those with CF.
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12 Sep 2023
Night time cough frequency is higher in adults with CF than PCD, but higher in childre with PCD than those with CF.
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12 Sep 2023
The genetics of haemophilus influenza in PCD.
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International PCD Physio Network retweeted
9 Sep 2023
Our @EuroRespSoc Clinical Research Collaboration Management meeting is under way in Milan at #ERSCongress
Exciting plans for the next 3 years in every of the work packages. More info on our website: beat-pcd.squarespace.com/wor…
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11 Sep 2023
A PCD packed poster session. 👊
Kicking off this thread, exercise in PCD. Higher activity associated with sputum clearance, more physio and feeling better but most people don't do enough.
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11 Sep 2023
Seeking patient feedback is useful, here the team found out more education was needed, including about news and airway clearance.
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11 Sep 2023
A preview of the English adult pcd physiotherapy standards of care, recommendations here. More evidence is needed across all areas.
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11 Sep 2023
What outcomes should be reported in PCD studies? 👇 a consensus statement from @beatpcd
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11 Sep 2023
Lower FEV1 is associated with pseudomonas growth in PCD
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